Scalable Expanded Access With Analysis of Neurofilament and Other Biomarkers for Ibudilast in ALS

NCT ID: NCT06743776

Last Updated: 2026-02-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

AVAILABLE

Study Classification

EXPANDED_ACCESS

Brief Summary

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The purpose of this Expanded Access Program is to provide MN-166 (ibudilast) to ALS patients who are not eligible for an enrolling ALS clinical trial. This Expanded Access Program will assess if MN-166 can help people with ALS in slowing down the progression of the disease.

Detailed Description

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Conditions

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ALS

Interventions

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MN-166

MN-166 will be taken orally at a dose of 10 mg in the morning and 20 mg in the evening for the first 2 weeks, whereafter dose of 30 mg BID will be taken.

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

1. ALS by "Gold Coast" diagnostic criteria
2. Age \> 18 years

Exclusion Criteria

1. Time since onset of weakness due to ALS \> 36 months
2. Vital Capacity less than 50% of predicted capacity for age, height, and sex measured (by Slow Vital Capacity (SVC) or Forced Vital Capacity (FVC))
3. Cancer or history of cancer, except for the following: basal cell carcinoma or successfully treated squamous cell carcinoma of the skin, cervical carcinoma in situ, prostatic carcinoma in situ, or other malignancies curatively treated and with no evidence of disease recurrence for at least 3 years.
4. Geographic inaccessibility from nearest actively enrolling research trial site, defined as either \>200 miles or, in the opinion of the investigator, a distance that would make trial participation infeasible for the particular patient, due to significant disease progression or special logistical circumstances.

OR II) Former COMBAT-ALS participant or current participant who has completed dosing in the OLE and may be consented at the final OLE follow-up visit.
4. Female patients of childbearing potential must use one or more effective methods of contraception throughout the entire EAP and for 30 days after discontinuing MN-166.
5. Male patients agree to practice contraception (e.g., condom use and contraception by female partner) unless partner is post-menopausal or unable to conceive throughout the entire EAP and for 30 days after discontinuing MN-166.


1. Clinically significant unstable medical condition (other than ALS) that would pose a risk to the participant, according to treating physician's judgment (e.g., psychiatric, cardiovascular instability, systemic infection, untreated thyroid dysfunction, or clinically significant laboratory abnormality or ECG changes).
2. Clinically significant lab abnormalities including, but not limited to: hemoglobin \< 10 g/dL, white blood cells \< 3.0 x 103/mm3, neutrophils, absolute ≤ 1000/mm3, eosinophilia (absolute eosinophil count of ≥ 500 eosinophils per microliter), low platelet counts (\< 150 x 109 per liter), alanine aminotransferase (ALT) or aspartate aminotransferase (AST) greater than 3 times the upper limit of normal (ULN), eGFR \< 30 mL/min/1.73m2.
3. Active drug or alcohol abuse.
4. Female patient is lactating, pregnant, or planning pregnancy at Screening A or Screening B.
5. Concomitant use of another investigational medical product for treatment of ALS.
6. Concomitant use of prohibited medications. Refer to Program Procedure Manual Appendix 3 for a list of prohibited medications.
7. Past participant in COMBAT-ALS clinical trial who did not complete the study.
8. Past participant in an ALS research trial who did not complete the study without cause.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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WideTrial, Inc.

INDUSTRY

Sponsor Role collaborator

MediciNova

INDUSTRY

Sponsor Role collaborator

National Institute of Neurological Disorders and Stroke (NINDS)

NIH

Sponsor Role collaborator

Mayo Clinic

OTHER

Sponsor Role lead

Responsible Party

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Bjorn E. Oskarsson

Associate Professor of Neurology

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Bjorn E Oskarsson, MD

Role: PRINCIPAL_INVESTIGATOR

Mayo Clinic

Locations

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Mayo Clinic

Scottsdale, Arizona, United States

Site Status AVAILABLE

University of California, San Francisco

San Francisco, California, United States

Site Status AVAILABLE

Hospital for Special Care

New Britain, Connecticut, United States

Site Status AVAILABLE

Mayo Clinic

Jacksonville, Florida, United States

Site Status AVAILABLE

Augusta University

Augusta, Georgia, United States

Site Status AVAILABLE

Indiana University - IU Health Neuroscience Center

Indianapolis, Indiana, United States

Site Status AVAILABLE

Hennepin Healthcare Research Institute

Minneapolis, Minnesota, United States

Site Status AVAILABLE

Mayo Clinic

Rochester, Minnesota, United States

Site Status AVAILABLE

SUNY Upstate Medical University

Syracuse, New York, United States

Site Status AVAILABLE

Duke University

Durham, North Carolina, United States

Site Status AVAILABLE

Lehigh Valley Health Network

Allentown, Pennsylvania, United States

Site Status AVAILABLE

Semmes Murphey Foundation

Memphis, Tennessee, United States

Site Status AVAILABLE

University of Virginia

Charlottesville, Virginia, United States

Site Status AVAILABLE

Countries

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United States

Central Contacts

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Colette McHugh Strong

Role: CONTACT

904-953-4965

Facility Contacts

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Alissa Bojko

Role: primary

Zane Ashkar

Role: primary

Honora Dalamagas

Role: primary

Colette McHugh-Strong

Role: primary

Kristy Bouchard

Role: primary

Lisa Grinstead

Role: primary

Daphne Fruchtman

Role: primary

Jeff Laivell

Role: primary

Marielle Posmik

Role: primary

Role: primary

Kevin Stanley

Role: primary

Wendell Barnett

Role: primary

Mary Wagoner

Role: primary

Other Identifiers

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U01NS136022

Identifier Type: NIH

Identifier Source: secondary_id

View Link

24-009898

Identifier Type: -

Identifier Source: org_study_id

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