Biomarkers in Different Types of Amyotrophic Lateral Sclerosis (ALS) Patients Being Treated With Edaravone

NCT ID: NCT04097158

Last Updated: 2025-05-21

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

160 participants

Study Classification

OBSERVATIONAL

Study Start Date

2019-10-08

Study Completion Date

2026-04-30

Brief Summary

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This study is being conducted to help the investigators better understand how the new FDA approved medication Edaravone (also known as Radicava) works in subsets of patients with ALS. The investigators are also trying to understand if there are specific ALS patients, with different presentations of ALS, who might benefit most from this medication. Also, the investigators are following specific biomarkers to determine the optimal treatment duration in patients with different forms of ALS

There is no study medication being offered in this trial. Edaravone is prescribed as part of regular care. In this trial we are collecting blood, urine, and spinal fluid samples in ALS patients who are taking Edaravone and ALS patients who are not taking Edaravone to measure certain markers that could indicate why the drug may be working in a specific type of ALS.

Detailed Description

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Conditions

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Amyotrophic Lateral Sclerosis

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Upper Motor Neuron predominant ALS

Sample Collection

Intervention Type OTHER

The investigators will be collecting blood, urine, and spinal fluid samples.

Lower Motor Neuron predominant ALS

Sample Collection

Intervention Type OTHER

The investigators will be collecting blood, urine, and spinal fluid samples.

Bulbar predominant ALS

Sample Collection

Intervention Type OTHER

The investigators will be collecting blood, urine, and spinal fluid samples.

Generalized ALS

Sample Collection

Intervention Type OTHER

The investigators will be collecting blood, urine, and spinal fluid samples.

Interventions

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Sample Collection

The investigators will be collecting blood, urine, and spinal fluid samples.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

1. Either possible, probable, or definite ALS, predominantly lower motor neuron disease, predominantly upper motor neuron disease, or bulbar
2. With or without cognitive involvement
3. Willing to participate
4. On no experimental treatment
5. Ages 18 - 85
6. No prior exposure to Edaravone (Radicava)
7. On a stable dose of Riluzole for 30 days or off Riluzole
8. Male or female
9. Females of childbearing age must use contraception

Exclusion Criteria

1. Unstable medical illness
2. Abnormal liver function (\>2x ULN)
3. Unlikely to survive for 26 weeks
Minimum Eligible Age

18 Years

Maximum Eligible Age

85 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Temple University

OTHER

Sponsor Role collaborator

Thomas Jefferson University

OTHER

Sponsor Role collaborator

University of Southern California

OTHER

Sponsor Role collaborator

Northwestern University

OTHER

Sponsor Role collaborator

Loma Linda University

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Jeffrey Rosenfeld, PhD, MD

Role: PRINCIPAL_INVESTIGATOR

Loma Linda University

Locations

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Loma Linda University

Loma Linda, California, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Imran Qasim

Role: CONTACT

(909) 558-2037 ext. 25388

Facility Contacts

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Imran Qasim

Role: primary

909-558-2037 ext. 25388

Other Identifiers

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IRB#5190061

Identifier Type: -

Identifier Source: org_study_id

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