The REgistry of Very Early Estrogen and AnovuLation

NCT ID: NCT06583408

Last Updated: 2025-11-21

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

100000 participants

Study Classification

OBSERVATIONAL

Study Start Date

2024-07-01

Study Completion Date

2029-08-01

Brief Summary

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The purpose of this study is to to build a registry of women with early estrogen loss due to Functional Hypothalamic Amenorrhea (FHA) to understand the prevalence, racial and ethnic diversity of this condition.

Detailed Description

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Conditions

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Hypothalamic Amenorrhea, Functional Hypothalamic Amenorrhea Functional Hypogonadotropic Hypogonadism

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Women with > 3 months amenorrhea

Women aged 18-40 years old with a diagnosis of functional hypothalamic amenorrhea, or lab results that are within the inclusion criteria.

Automated Self-Administered 24-hour Dietary Assessment Tool (ASA24)

Intervention Type OTHER

Subjects will complete the ASA food diary for 2 weekdays and 1 weekend day

REVEAL Questionnaire

Intervention Type OTHER

Subjects will complete the REVEAL questionnaire form. This form includes questions about current and past medical history, including reproductive history, lifestyle specifics, and assessment of current health status.

Interventions

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Automated Self-Administered 24-hour Dietary Assessment Tool (ASA24)

Subjects will complete the ASA food diary for 2 weekdays and 1 weekend day

Intervention Type OTHER

REVEAL Questionnaire

Subjects will complete the REVEAL questionnaire form. This form includes questions about current and past medical history, including reproductive history, lifestyle specifics, and assessment of current health status.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* 3 or more months of consecutive amenorrhea with a diagnosis of functional hypothalamic amenorrhea or screening hormones consistent with functional hypothalamic amenorrhea including but not limited to:

* Estradiol: \< 50pg/mL
* LH: \< 10 IU/mL
* FSH: \< 10 IU
* Testosterone: 2 - 45 ng/dL
* Free Testosterone: 0.1 - 6.4 pg/mL
* FT4: 0.93 - 1.70 ng/dL
* Prolactin: \< 20 ng/mL
* AMH: \> 1 ng/mL
* Urine or serum human chorionic gonadotropin: Negative
* LH:FSH Ratio \<1
* No signs of male-like hair growth on the upper lip, chin, chest, abdomen, buttocks, or back
* Does not have a diagnosis for secondary amenorrhea, including prolactinoma, PCOS, premature ovarian insufficiency, pituitary surgery, infection, or infarction
* Premenopausal status determined by WISE criteria
* Able to give informed consent
* Able to read English

Exclusion Criteria

* Parturition/lactating in the last 6-12 months
* Lack of consent
Minimum Eligible Age

18 Years

Maximum Eligible Age

40 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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Mayo Clinic

OTHER

Sponsor Role lead

Responsible Party

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Chrisandra L. Shufelt, MD

Chair and Professor of Medicine

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Chrisandra Shufelt, MD

Role: PRINCIPAL_INVESTIGATOR

Mayo Clinic

Locations

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Mayo Clinic

Jacksonville, Florida, United States

Site Status RECRUITING

Mayo Clinic

Rochester, Minnesota, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Chandler E. Palmer, MHA

Role: CONTACT

904-953-5438

Chrisandra L Shufelt, MD

Role: CONTACT

904 953-7224

Facility Contacts

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Chrisandra Shufelt, MD

Role: primary

Chandler E. Palmer, MHA

Role: primary

904-953-5438

Other Identifiers

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24-000952

Identifier Type: -

Identifier Source: org_study_id

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