A Phase 3 Study Of OCU400 Gene Therapy for the Treatment Of Retinitis Pigmentosa

NCT ID: NCT06388200

Last Updated: 2026-01-08

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

PHASE3

Total Enrollment

150 participants

Study Classification

INTERVENTIONAL

Study Start Date

2024-06-18

Study Completion Date

2026-12-31

Brief Summary

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This is a Phase 3 study to Assess the Efficacy, Safety and Tolerability of OCU400 in patients with retinitis pigmentosa (RP) associated with RHO mutations and patients with any other RP associated mutation with a clinical phenotype of RP.

This is a multicenter, assessor blinded and randomized study which will enroll 150 subjects.

Detailed Description

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A total of one hundred and fifty (150) RP participants will be enrolled in this study- 75 in each of either two arms, RHO arm (n=75) or Gene agnostic arm (n=75). RHO arm will only enroll participants with confirmed genetic diagnosis of mutation in RHO gene; whereas Gene Agnostic arm will enroll RP Participants based on clinical diagnosis of RP and a confirmed genetic diagnosis with a gene associated with RP.

Subjects in each arm will be randomized into treatment (N=50) and control groups (N=25). Subjects in the treatment group will receive a sequential, bilateral sub-retinal injection of OCU400 if both eyes meet inclusion criteria. Control or untreated group subjects will receive OCU400 subretinal injection after completion of 12-month follow-up.

Conditions

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Retinitis Pigmentosa

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

SINGLE

Outcome Assessors
This is outcome assessor blinded study

Study Groups

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RHO Arm

Subjects will receive a sub-retinal injection of OCU400-301 modifier gene therapy product with a concentration of 2.5 x 10\^10 vg/eye

Group Type EXPERIMENTAL

Sub-Retinal Administration of OCU400-301

Intervention Type GENETIC

Sub-Retinal Administration of OCU400-301

Gene Agnostic Arm

Subjects will receive a sub-retinal injection of OCU400-301 modifier gene therapy product with a concentration of 2.5 x 10\^10 vg/eye

Group Type EXPERIMENTAL

Sub-Retinal Administration of OCU400-301

Intervention Type GENETIC

Sub-Retinal Administration of OCU400-301

Control for RHO Arm

Will not receive any active study intervention

Group Type NO_INTERVENTION

No interventions assigned to this group

Control for Gene Agnostic Arm

Will not receive any active study intervention

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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Sub-Retinal Administration of OCU400-301

Sub-Retinal Administration of OCU400-301

Intervention Type GENETIC

Eligibility Criteria

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Inclusion Criteria

1. Males or females ≥ 3 years of age
2. Confirmed genetic diagnosis of autosomal dominant RHO mutation with clinical diagnosis of RP
3. Clinical Diagnosis of Syndromic or Non-Syndromic RP with/without confirmed genetic diagnosis of any other RP associated mutation (except AD-NR2E3)
4. BCVA ≤ 80 letters and ≥25 letters as measured by an ETDRS chart
5. Visual field of \>5° in any meridian as measured by a III4e isopter or equivalent
6. Able to perform a Luminance LDNA at certain light intensity at the Screening visit
7. Presence of photoreceptors as determined by SD-OCT

Exclusion Criteria

1. Subject lacks evidence of outer nuclear layer
2. Previous treatment with a gene-therapy or cell therapy product or treatment with any investigational drug or ocular device within one year.
3. History of any corticosteroid contraindication, corticosteroid related IOP spikes or uncontrolled glaucoma.
4. Cataract surgery within 3 months. YAG capsulotomy within 1 month. Any other intraocular surgery within 6 months.
5. Active ocular/intraocular infection, any history of rhegmatogenous retinal detachment or Current retinal detachment or retinal implant.
6. Breast-feeding, pregnancy, sperm donation or inability to practice strict contraception
Minimum Eligible Age

3 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Ocugen

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Huma Qamar

Role: STUDY_CHAIR

Ocugen

Locations

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Associated Retina Consultants

Phoenix, Arizona, United States

Site Status RECRUITING

University of Southern Califormia

La Jolla, California, United States

Site Status RECRUITING

University of Southern California, Roski Eye Insitute

Los Angeles, California, United States

Site Status RECRUITING

Advanced Research, LLC.

Deerfield Beach, Florida, United States

Site Status RECRUITING

Bascom Palmer Eye Institute, University of Miami, Miller School of Medicine

Miami, Florida, United States

Site Status RECRUITING

Erie Retina Research LLC

Erie, Pennsylvania, United States

Site Status RECRUITING

Vanderbilt Eye Institute

Nashville, Tennessee, United States

Site Status RECRUITING

Retina Consultants of Texas

Bellaire, Texas, United States

Site Status RECRUITING

Retina Foundation of the Southwest

Dallas, Texas, United States

Site Status RECRUITING

Baylor College of Medicine

Houston, Texas, United States

Site Status RECRUITING

Valley Retina Institute

McAllen, Texas, United States

Site Status RECRUITING

Gundersen Health System

La Crosse, Wisconsin, United States

Site Status RECRUITING

Calgary Retina Consultants

Calgary, Alberta, Canada

Site Status RECRUITING

University of Alberta

Edmonton, Alberta, Canada

Site Status RECRUITING

The University of British Columbia

Vancouver, British Columbia, Canada

Site Status RECRUITING

Sunnybrook Health Sciences Centre

Toronto, Ontario, Canada

Site Status RECRUITING

Research Institute of the McGill University Health Centre

Montreal, Quebec, Canada

Site Status NOT_YET_RECRUITING

Countries

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United States Canada

Central Contacts

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Umair Qazi, MD, MPH

Role: CONTACT

484-237-3390

Sahar Matloob, MD, ACRP-CP

Role: CONTACT

484-237-3390

Facility Contacts

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Mallory Mintert, MS

Role: primary

480-999-5458

Jillian Bollinger, BS

Role: backup

480-999-5458

Iliana Molina

Role: primary

858-822-2585

Mariana Edwards

Role: primary

323-442-6490

Danahe Navarrete

Role: primary

954-302-3047 ext. 103

Samarth Shah

Role: backup

Adriana Drada, FMD/ CCRP

Role: primary

Bethany Scott

Role: primary

814-737-0203

Christina Futty

Role: backup

Saige Priddy

Role: primary

615-936-1417

Rebbeca C Taing

Role: primary

713-524-3434

Kirsten Locke, RN

Role: primary

214-363-3911 ext. 0

Victoria Herrick

Role: primary

713-798-7862

Lamesha Davis

Role: backup

713-798-3356

Alfred Halder

Role: primary

956-631-8875 ext. 1126

Patricia Silva

Role: backup

Trinity Lee

Role: primary

608-775-9539

Chase Penzkover

Role: backup

Norah Hannah, COA

Role: primary

403-286-6802

Rita Whitford

Role: primary

780 492 8869

Ronald N Adjekum, Ph.D

Role: primary

604-875-5475

Cindy Rutz

Role: primary

416-480-5091

Christine Gannon

Role: primary

514-934-1934 ext. 23647

Daphne Doucet

Role: backup

514-934-1934 ext. 35378

Other Identifiers

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OCU400-301

Identifier Type: -

Identifier Source: org_study_id

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