Register Schweres Asthma - German Asthma Net e.V.

NCT ID: NCT06035289

Last Updated: 2024-10-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

4500 participants

Study Classification

OBSERVATIONAL

Study Start Date

2011-11-01

Study Completion Date

2026-11-01

Brief Summary

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The German Asthma Net e.V. focusses on science and research in patients with severe asthma. This includes, in particular, the optimization of medical care and treatment for patients with severe asthma as well as the elucidation and information. An unavoidable basis for a better understanding of severe asthma is the registration and comprehensive characterization of a large patient population. To date, there are only few reliable data on incidence, prevalence, phenotypes and treatment of patients with severe asthma. For this reason, the German Asthma Net e.V. was established in December 2011 as a clinical registry for patients with severe asthma, initially set up on a national basis.

Detailed Description

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Sociodemographic parameters (e.g., gender, date of birth) and medical parameters (diagnosis, therapy) are entered in the register. In addition, data on lung function, laboratory values (IgE and eosinophil granulocytes), asthma control (symptoms, nocturnal awakenings, on-demand medication, exacerbations), smoking status, and concomitant therapy (inhalable corticosteroids, bronchodilators, and systemic steroids) are collected. This information will be collected at the baseline visit, and then once a year at a follow up visit, for fifteen years.

Participants will be assigned a unique study ID to protect the confidentiality of their personal health care information. Personal data and register data are on separate servers and thus meet the requirements of data protection.

The primary purpose is to establish a clinical registry for patients with severe asthma. The number of patients with severe asthma at a single center or practice is usually small, so several centers (clinics and practices) in Germany have joined together to form the German Asthma Net e.V. to optimize the diagnostic evaluation and treatment of patients with severe asthma.

Conditions

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Severe Asthma

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

a. Positive bronchodilator reversibility testing (≥ 12% increase in FEV1 after SABA) or b. Significant bronchial hyperreactivity (BHR) after unspecific provocation test (e.g. methacholine challenge or treadmill) according to ATS criteria (Am J Respir Crit Care Med 2000) (vi) High level of treatment:

1. Maintenance treatment with high doses of ICS (\>400 μg budesonide or equivalent / ≥ 200 μg of fluticasone as monotherapy) or
2. Maintenance treatment with medium to high doses of ICS (≥400 μg budesonide or equivalent / ≥ 200 μg fluticasone) combined with LABA and/or LTRA and/or theophylline or
3. Treatment with oral steroids for ≥ 3 months (vii) Poor asthma control:

a. Inadequate symptom in the past 4 weeks: i. asthma symptoms ≥3 x / week or use of rescue medication ≥3 x / week; or ii. activity limitations due to asthma; or iii. any nighttime asthma symptoms; or b. ≥ 1 exacerbation in the last year with ≥ 3 days of OCS treatment or hospitalisation or b. Poor lung function with reduced Tiffeneau index or FEV1 at inclusion (viii) written informed consent (parent or legal guardian)

Exclusion Criteria

(i) Diagnosis of other obstructive or systemic pulmonary diseases (e.g. cystic fibrosis, COPD) despite BPD at inclusion (ii) Other congenital lung diseases or pulmonary malformations (iii) Other significant chronic diseases (iv) Congenital or acquired heart defects with significant functional limitations

Definition: Severe asthma in adults

High level of treatment (A), i.e. step 5 of GINA guideline or (B) medium level of treatment and poor symptom control:

(A) High level of treatment:

1. Maintenance treatment with high-dose inhaled corticosteroids (≥ 1000 μg beclomethasone (BDP, powder) or equivalent) in combination with LABA or LTRA or theophylline or
2. Maintenance treatment with oral corticosteroids (OCS) for ≥3 months independent of other asthma treatments or
3. Treatment with monoclonal antibodies independent of other asthma treatments

B) Medium level of treatment and poor symptom control:

1. Maintenance treatment with medium to high doses of ICS (≥ 500 μg BDP (powder) or equivalent) in combination with LABA or LTRA or theophylline and
2. Poor symptom control:

(i) asthma symptoms ≥ 3 x / week or use of rescue medication ≥ 3 x / week; or (ii) activities limited due to asthma; or (iii) any nighttime asthma symptoms; or (iv) ≥ 1 exacerbation in the last year with ≥ 3 days of OCS treatment or (v) FEV1\<80% of predicted
Minimum Eligible Age

6 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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AstraZeneca

INDUSTRY

Sponsor Role collaborator

GlaxoSmithKline

INDUSTRY

Sponsor Role collaborator

Sanofi

INDUSTRY

Sponsor Role collaborator

Chiesi Farmaceutici S.p.A.

INDUSTRY

Sponsor Role collaborator

German Asthma Net e.V.

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Kardiologische und fachinternistische ÜBAG Dr. Sandrock und Partner

Altdorf, , Germany

Site Status RECRUITING

Universitätsklinikum Augsburg Kinderpulmologie und -allergologie

Augsburg, , Germany

Site Status ACTIVE_NOT_RECRUITING

Praxis Dr. Grün

Bad Windsheim, , Germany

Site Status RECRUITING

CIMS Studienzentrum Bamberg

Bamberg, , Germany

Site Status RECRUITING

Lungenpraxis Tegel

Berlin, , Germany

Site Status RECRUITING

Evangelisches Klinikum Bethel v. Bodelschwinghsche Stiftungen Bethel

Bielefeld, , Germany

Site Status RECRUITING

Helios Lungen- und Allergiezentrum Bonn

Bonn, , Germany

Site Status RECRUITING

Universitätsnedizin Bonn

Bonn, , Germany

Site Status RECRUITING

Zentrum für Kinderheilkunde, Klinik und Poliklinik für Allgemeine Pädiatrie, Allergieabteilung

Bonn, , Germany

Site Status ACTIVE_NOT_RECRUITING

Lungenpraxis Medicum Böblingen

Böblingen, , Germany

Site Status RECRUITING

Prof.-Hess-Kinderklinik Bremen-Mitte

Bremen, , Germany

Site Status RECRUITING

MECS Cottbus

Cottbus, , Germany

Site Status RECRUITING

Evangelisches Krankenhaus Düsseldorf

Düsseldorf, , Germany

Site Status RECRUITING

Lunge im Zentrum

Erlangen, , Germany

Site Status RECRUITING

Universitätsmedizin Essen

Essen, , Germany

Site Status ACTIVE_NOT_RECRUITING

Pneumologie am Schelztor Esslingen

Esslingen am Neckar, , Germany

Site Status RECRUITING

Praxis Dr. Herden

Freising, , Germany

Site Status RECRUITING

ALB FILS Kliniken

Göppingen, , Germany

Site Status RECRUITING

Hamburger Institut für Therapieforschung GmbH

Hamburg, , Germany

Site Status RECRUITING

Medizinische Hochschule Hannover

Hanover, , Germany

Site Status RECRUITING

Praxisgmeinschaft Dr. Abenhardt und Jochen Hinrichs-Pavlik

Heidelberg, , Germany

Site Status RECRUITING

Thoraxklinik Heidelberg gGmbH

Heidelberg, , Germany

Site Status RECRUITING

Lungenarztpraxis Dr. Hubatsch

Heilbronn, , Germany

Site Status ACTIVE_NOT_RECRUITING

Atemwegszentrum Kaiserslautern

Kaiserslautern, , Germany

Site Status RECRUITING

MVZ Klinikum Kempten

Kempten, , Germany

Site Status RECRUITING

Pneumologische Gemeinschaftspraxis

Koblenz, , Germany

Site Status RECRUITING

Lungenpraxis Konstanz

Konstanz, , Germany

Site Status ACTIVE_NOT_RECRUITING

DONAUISAR Klinikum Deggendorf-Dingolfing-Landau

Landau an der Isar, , Germany

Site Status RECRUITING

Asthma Allergiezentrum

Leverkusen, , Germany

Site Status RECRUITING

Lungenfachklinik Medizinische Klinik I, Pneumologie

Löwenstein, , Germany

Site Status RECRUITING

IKF Pneumologie GmbH & Co. KG

Mainz, , Germany

Site Status RECRUITING

Lungenfacharztpraxis Dr. C. Lüttecke-Hecht

Mainz, , Germany

Site Status RECRUITING

Lungenfacharztpraxis Dr. Gall

Mainz, , Germany

Site Status ACTIVE_NOT_RECRUITING

Univsersitätsmedizin Mainz

Mainz, , Germany

Site Status RECRUITING

Dr. von Haunersches Kinderspital

München, , Germany

Site Status RECRUITING

LMU Klinikum der Universität München, Ambulanz für Schweres Asthma (Erwachsene)

München, , Germany

Site Status RECRUITING

Universitätsklinikum Regensburg

Regensburg, , Germany

Site Status RECRUITING

Universitätsmedizin Rostock, Med. Klinik I, Abt. Pneumologie & Interdiszipl. Internistische Intensivmedizin

Rostock, , Germany

Site Status ACTIVE_NOT_RECRUITING

Lungenpraxis Schleswig/ Respiratio

Schleswig, , Germany

Site Status RECRUITING

Ambulante Pneumologie mit Allergiezentrum (BAG)

Stuttgart, , Germany

Site Status RECRUITING

RBK Lungenzentrum Stuttgart

Stuttgart, , Germany

Site Status RECRUITING

Internistische Gemeinschaftspraxis Bitburg-Trier

Trier, , Germany

Site Status RECRUITING

Uniklinik Ulm, Sektion Pneumologie, Klinik für Innere Medizin II

Ulm, , Germany

Site Status RECRUITING

Fachkliniken Wangen

Wangen, , Germany

Site Status RECRUITING

Marien-Hospital, Klinik für Kinder- und Jugendmedizin

Wesel, , Germany

Site Status RECRUITING

Countries

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Germany

Central Contacts

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Stephanie Korn, Prof.

Role: CONTACT

+49 (0)1577-6948673

Mandy Seefeldt

Role: CONTACT

+49 (0)1577-6948673

Facility Contacts

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Markus Gasplmayr

Role: primary

Borghild Grün, Dr.

Role: primary

Joachim Kirschner, Dr.

Role: primary

Thomas Hering

Role: primary

Eckard Hamelmann, Prof.

Role: primary

Marcus Joest

Role: primary

Dirk Skowasch, Prof.

Role: primary

Stefan Veitshans, Dr.

Role: primary

Petra Kaiser-Labusch

Role: primary

Frank Käßner, Dr.

Role: primary

Monika Gappa, Prof.

Role: primary

Sabine Lampert, Dr.

Role: primary

Silke Hellmich, Dr.

Role: primary

Markus Herden, Dr.

Role: primary

Timo Deininger, Dr.

Role: primary

Margret Jandl, Dr.

Role: primary

Hendrik Suhling, PD Dr.

Role: primary

Birgit Abenhardt, Dr.

Role: primary

Felix Herdt, Prof.

Role: primary

Florian Schmitz, Dr.

Role: primary

Kim Husemann, Dr.

Role: primary

Olaf Schmidt, Dr.

Role: primary

Christian Geltner, Dr.

Role: primary

Norbert Mülleneisen

Role: primary

Monika Stephan, Dr.

Role: primary

Stephanie Korn, Prof.

Role: primary

Camilla Lüttecke-Hecht, Dr.

Role: primary

Roland Buhl, Prof.

Role: primary

Bianca Schaub, Prof.

Role: primary

Katrin Milger-Kneidinger, PD Dr.

Role: primary

Christian Schulz, Prof.

Role: primary

Andreas Deimling, Dr.

Role: primary

Rainer Ehmann

Role: primary

Claus Neurohr, Dr.

Role: primary

Patrick Albrecht, Dr.

Role: primary

Cornelia Kropf-Sanchen

Role: primary

Susanne Hirschmann

Role: primary

Cordula Körner-Rettberg, Dr.

Role: primary

References

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Bal C, Pohl W, Milger K, Skowasch D, Schulz C, Gappa M, Koerner-Rettberg C, Jandl M, Schmidt O, Zehetmayer S, Taube C, Hamelmann E, Buhl R, Korn S, Idzko M; German Asthma Net (GAN) study group. Characterization of Obesity in Severe Asthma in the German Asthma Net. J Allergy Clin Immunol Pract. 2023 Nov;11(11):3417-3424.e3. doi: 10.1016/j.jaip.2023.06.049. Epub 2023 Jul 4.

Reference Type RESULT
PMID: 37406803 (View on PubMed)

Milger K, Suhling H, Skowasch D, Holtdirk A, Kneidinger N, Behr J, Timmermann H, Schulz C, Schmidt O, Ehmann R, Hamelmann E, Idzko M, Taube C, Lommatzsch M, Buhl R, Korn S. Response to Biologics and Clinical Remission in the Adult German Asthma Net Severe Asthma Registry Cohort. J Allergy Clin Immunol Pract. 2023 Sep;11(9):2701-2712.e2. doi: 10.1016/j.jaip.2023.05.047. Epub 2023 Jun 8.

Reference Type RESULT
PMID: 37301433 (View on PubMed)

Korn S, Milger K, Skowasch D, Schulz C, Mohrlang C, Wernitz M, Paulsson T, Hennig M, Buhl R. Real-World Experience on the Use of Mepolizumab from the Severe Asthma Registry of the German Asthma Net (MepoGAN-Study). J Asthma Allergy. 2023 May 11;16:541-552. doi: 10.2147/JAA.S403286. eCollection 2023.

Reference Type RESULT
PMID: 37197193 (View on PubMed)

Milger K, Skowasch D, Hamelmann E, Mummler C, Idzko M, Gappa M, Jandl M, Korner-Rettberg C, Ehmann R, Schmidt O, Taube C, Holtdirk A, Timmermann H, Buhl R, Korn S. Bronchodilator Reversibility in the GAN Severe Asthma Cohort. J Investig Allergol Clin Immunol. 2023 Dec 14;33(6):446-456. doi: 10.18176/jiaci.0850. Epub 2022 Aug 24.

Reference Type RESULT
PMID: 36000830 (View on PubMed)

Bal C, Idzko M, Skrgat S, Koch A, Milger K, Schulz C, Zehetmayer S, Hamelmann E, Buhl R, Korn S; collaborators from the German Asthma Net (GAN). Fraction of exhaled nitric oxide is associated with disease burden in the German Asthma Net severe asthma cohort. Eur Respir J. 2022 Jun 2;59(6):2101233. doi: 10.1183/13993003.01233-2021. Print 2022 Jun.

Reference Type RESULT
PMID: 35273030 (View on PubMed)

Related Links

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Other Identifiers

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2018-13614

Identifier Type: -

Identifier Source: org_study_id

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