Patient Preferences and Experiences of Waiting for Heart Surgery

NCT ID: NCT05996640

Last Updated: 2023-08-18

Basic Information

• Recruitment Status: UNKNOWN
• Total Enrollment: 268 participants
• Study Classification: OBSERVATIONAL
• Study Start Date: 2023-08-14
• Study Completion Date: 2023-11-15

Brief Summary

Waiting for heart surgery could be difficult and anxiety-provoking for some patients. Research suggests that some specific factors (e.g., individual coping strategies, communication with the clinical team, having a more active role in care decision-making) could reduce the stress associated with waiting. However, most of this research has looked at patients waiting for other types of surgery (e.g., cancer surgery). Therefore, more research focusing on patients waiting for heart surgery is needed.

This project aims to investigate patients' experiences, perceptions and preferences about waiting for elective (non-emergency) heart surgery across four London-based National Health Service (NHS) hospitals that belong to King's Health Partners (KHP): Royal Brompton, Harefield, St Thomas', and King's College hospitals. The project is led by the research team at King's Improvement Science, (King's College London), in collaboration with clinicians and patients with lived experience of waiting for heart surgery.

This project will look at:

• how patients feel their heart condition affects their day-to-day life;
• how patients experience being on a waiting list;
• what factors patients consider as most important for their upcoming surgery (e.g. to have their surgery as soon as possible, at their nearest hospital, or carried out by a specific surgeon);
• patients' opinions about how the heart surgery waiting list process could be improved.

Adult patients (>18 years old) waiting for elective heart surgery at the four hospitals listed above will be invited, via a text message and a letter, to complete an online survey (i.e. a list of questions). Completing reading study information and completing the survey will likely take approximately 30 minutes. The survey will be open for 8 weeks in total.

Findings from this project, together with other work looking at clinical processes and outcomes across heart surgery services at the four KHP hospitals, will inform a wider quality improvement project.

Conditions

Cardiac Disease

Study Design

• Observational Model Type: OTHER
• Study Time Perspective: CROSS_SECTIONAL

Interventions

This is study does not use an intervention

This is study does not use an intervention. A survey will be used to collected data on patients' experiences and preferences about waiting list for heart surgery.

Intervention Type: OTHER

Eligibility Criteria

Inclusion Criteria

• being on a waiting list for elective cardiac surgery under any of the following surgical prioritisation categories P2, P3, and P4;
• being at least 18 years old;
• being on a waiting list for cardiac surgery across any of the four KHP participating sites: RBH, HH, STH, and KCH.

Exclusion Criteria

• being on a waiting list for cardiac surgery at sites other than Royal Brompton Hospital, Harefield Hospital, St Thomas Hospital, and King's College Hospital;
• not having any recorded contact details in the form of mobile phone and home address

• Minimum Eligible Age: 18 Years
• Maximum Eligible Age: 99 Years
• Eligible Sex: ALL
• Accepts Healthy Volunteers: No

Sponsors

King's College London

OTHER

Sponsor Role: lead

Responsible Party

Responsibility Role: SPONSOR

References

Russo M, Watson K, Richards K, Olive RR, Krausova B, Kumar R, Burridge J, Goulding L, Chua KC, Hardy D, Vassilios A, Kamran B, Bhudia S, Alia N, Habib K, Sevdalis N, Petrou M. Study protocol for a cross-sectional online survey investigating patient preferences and experiences of waiting for elective cardiac surgery. BMJ Open. 2024 Mar 4;14(3):e079692. doi: 10.1136/bmjopen-2023-079692.

Reference Type: DERIVED

PMID: 38443077 (View on PubMed)

Other Identifiers

319498

Identifier Type: -

Identifier Source: org_study_id