Data Collection Protocol for Patients With Von Hippel Lindau Disease
NCT ID: NCT05955014
Last Updated: 2025-11-20
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
125 participants
OBSERVATIONAL
2023-08-24
2026-12-31
Brief Summary
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Detailed Description
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* Obtain prospective and retrospective data on lesion development, surgical history and systemic therapy use in patients with vHL disease
* Assess genotype-phenotype correlation between VHL mutation type and patterns of lesion development
* Assess genotype-phenotype correlation for response to belzutifan in an organ-specific manner
Secondary Objectives:
--Obtain quality of life data in patients with vHL disease
Conditions
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Study Design
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COHORT
OTHER
Eligibility Criteria
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Inclusion Criteria
* Ability to understand and the willingness to sign a written informed consent document.
Exclusion Criteria
18 Years
ALL
No
Sponsors
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M.D. Anderson Cancer Center
OTHER
Responsible Party
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Principal Investigators
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Locations
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M D Anderson Cancer Center
Houston, Texas, United States
Countries
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Central Contacts
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Facility Contacts
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Related Links
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M D Anderson Cancer Center
Other Identifiers
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NCI-2023-05216
Identifier Type: OTHER
Identifier Source: secondary_id
2022-0665
Identifier Type: -
Identifier Source: org_study_id
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