Liver Cirrhosis Network Cohort Study

NCT ID: NCT05740358

Last Updated: 2026-01-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ACTIVE_NOT_RECRUITING

Total Enrollment

1222 participants

Study Classification

OBSERVATIONAL

Study Start Date

2022-11-18

Study Completion Date

2030-10-24

Brief Summary

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Liver Cirrhosis Network (LCN) Cohort Study is an observational study designed to identify risk factors and develop prediction models for risk of decompensation in adults with liver cirrhosis. LCN Cohort Study involves multiple institutions and an anticipated 1200 participants. Enrolled participants will have study visits every 6 months (180 days), with opportunities to complete specific visit components via telehealth or remotely. Visits will include collection of questionnaire data and the in-person visits will include questionnaires, physical exams, imaging, and sample collection.

Detailed Description

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Conditions

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Cirrhosis Cirrhosis, Liver Cirrhosis Early Cirrhosis Due to Hepatitis B Cirrhosis Advanced Cirrhosis Infectious Cirrhosis Alcoholic Cirrhosis, Biliary Cirrhosis Cryptogenic Cirrhosis Due to Hepatitis C Cirrhosis Due to Primary Sclerosing Cholangitis Autoimmune Hepatitis

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* Age ≥ 18 years
* Willing to provide samples at baseline
* Cirrhosis

Where Cirrhosis is defined as:

1. At least one liver biopsy within 5 years prior to consent showing either: a) Metavir stage 4 fibrosis; Ishak Stage 5-6 fibrosis OR
2. At least 2 of the following:

1\. Evidence on imaging: Nodular liver with either splenomegaly or recanalized umbilical vein within the past year 2. Liver stiffness: VCTE within one year prior to consent or during Screening ≥12.5 kPa or MRE within one year prior to consent or during Screening ≥5 kPa 3. Evidence of varices demonstrated on imaging or endoscopy within 3 years prior to consent or during Screening 4. Either: FIB-4\>2.67 or platelets \<150/mL within 6 months prior to consent or during Screening 5. \>5 years METAVIR stage 4 fibrosis or Ishak stage 5-6

Exclusion Criteria

* Known and documented prior or current hepatocellular carcinoma (HCC) or cholangiocarcinoma
* Known transjugular intrahepatic portosystemic shunt (TIPS), balloon retrograde transvenous obliteration (BRTO) or porto-systemic shunt surgery regardless of time of occurrence
* Known prior solid organ transplant or bone marrow transplant
* Current participation in active medication treatment trials at the time of consent for LCN Cohort Study
* Prisoners or individuals with more than 180 days incarceration pending due to difficulty with visits
* Bariatric surgery in the last 180 days prior to consent
* Known history of fontan procedure-associated liver disease (FALD)
* Known current medical or psychiatric conditions which, in the opinion of the investigator, would make the participant unsuitable for the study or interfere with or prevent follow-up per protocol
* Current liver-unrelated end-stage organ failures (Dialysis, stage 3-4 congestive heart failure (CHF), current chronic obstructive pulmonary disease (COPD) on home oxygen, current known active malignancy besides non-melanomatous skin cancer or carcinoma in situ)
* Documented history of acute alcohol-associated hepatitis (according to NIAAA criteria as described in the MOP) in the 180 days prior to consent
* Documented current or continued signs and symptoms of acute Wilson disease (acute liver failure, acute neurological deficits, hemolysis)
* In patients with primary sclerosing cholangitis (PSC): Current active cholangitis with 90 days prior to consent
* Documented cardiac cirrhosis
* Known recent (within the last 365 days) or present hepatic decompensation with ascites/hydrothorax (including trace ascites discovered at screening not requiring intervention), hepatic encephalopathy or variceal bleeding. If a patient has had a history of decompensation, they must have been off any medications to treat decompensation for at least 365 days. Refer to the MOP for clarifying details on evaluating eligibility for patients with a history of prior decompensation.
* Known or documented habitual non-adherence to previous research studies or medical procedures or unwillingness to adhere to protocol (e.g., unwilling to obtain consent or samples)
* Current model for end-stage liver disease (MELD-Na) cut off ≥ 15\*
* Current Child-Turcotte-Pugh (CTP) B or C\*
* Current known Hepatitis C Virus (HCV) without sustained virologic response (SVR)
* Current known quantifiable Hepatitis B Virus (HBV) viral DNA on therapy with ongoing adherence on suppressive therapy\*
* In patients with autoimmune hepatitis: serum aspartate aminotransferase (AST) \> 2X upper limit of normal (ULN) within 90 days prior to consent or during Screening\*
* In patients living with HIV: CD4+ T cell count less than 100 cells/mm3 within 90 days prior to consent or during Screening\*

* Indicates an exclusion criterion that may depend on laboratory results and other clinical assessments to be ordered during Screening after confirming the participant is otherwise eligible. If the test was performed as standard-of-care in the 90 days prior to consent, it does not need to be re-done for eligibility.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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The Cleveland Clinic

OTHER

Sponsor Role collaborator

Columbia University

OTHER

Sponsor Role collaborator

Weill Medical College of Cornell University

OTHER

Sponsor Role collaborator

Duke University

OTHER

Sponsor Role collaborator

Mayo Clinic

OTHER

Sponsor Role collaborator

University of Miami

OTHER

Sponsor Role collaborator

University of Michigan

OTHER

Sponsor Role collaborator

University of California, San Diego

OTHER

Sponsor Role collaborator

University of California, San Francisco

OTHER

Sponsor Role collaborator

LAC+USC Medical Center

OTHER

Sponsor Role collaborator

Virginia Commonwealth University

OTHER

Sponsor Role collaborator

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

NIH

Sponsor Role collaborator

National Institute on Alcohol Abuse and Alcoholism (NIAAA)

NIH

Sponsor Role collaborator

National Cancer Institute (NCI)

NIH

Sponsor Role collaborator

University of Southern California

OTHER

Sponsor Role collaborator

Central Virginia Veterans Healthcare System

UNKNOWN

Sponsor Role collaborator

Northwestern University

OTHER

Sponsor Role lead

Responsible Party

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Abigail Smith

Associate Professor

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Abigail Smith

Role: PRINCIPAL_INVESTIGATOR

Northwestern University

Locations

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University of California San Diego NAFLD Research Center

La Jolla, California, United States

Site Status

Keck Medical Center of USC

Los Angeles, California, United States

Site Status

LAC + USC Medical Center

Los Angeles, California, United States

Site Status

UCSF/Zuckerberg San Francisco General Hospital and Trauma Center

San Francisco, California, United States

Site Status

UCSF Medical Center

San Francisco, California, United States

Site Status

University of Miami Health System

Miami, Florida, United States

Site Status

University of Michigan

Ann Arbor, Michigan, United States

Site Status

Mayo Clinic

Rochester, Minnesota, United States

Site Status

New York Presbyterian/Weill Cornell

New York, New York, United States

Site Status

Columbia University Iriving School of Medicine

New York, New York, United States

Site Status

Duke Liver Center

Durham, North Carolina, United States

Site Status

Cleveland Clinic

Cleveland, Ohio, United States

Site Status

Central Virginia Veterans Healthcare System

Richmond, Virginia, United States

Site Status

Virginia Commonwealth University

Richmond, Virginia, United States

Site Status

Countries

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United States

References

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Tapper EB, Goldberg D, Parikh ND, Terrault NA, Welch N, Sharpton S, Hameed B, Khalili M, Stolz A, Verna EC, Brown RS Jr, Sanyal AJ, VanWagner L, Ladner DP, Moylan CA, Diehl AM, Jones PD, Loomba R, Dasarathy S, Simonetto DA, Shah VH, Bajaj JS; LCN Study Group. The Liver Cirrhosis Network Cohort Study: Cirrhosis Definition, Study Population, and Endpoints. Am J Gastroenterol. 2025 Mar 1;120(3):570-575. doi: 10.14309/ajg.0000000000002953. Epub 2024 Jul 17.

Reference Type DERIVED
PMID: 39018024 (View on PubMed)

Related Links

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https://www.lcnstudy.org

Information about the study

Other Identifiers

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1U24DK130164-01

Identifier Type: NIH

Identifier Source: secondary_id

View Link

Pro00064389

Identifier Type: OTHER

Identifier Source: secondary_id

5U01DK130177-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130197-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130185-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130180-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130221-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130134-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130168-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130190-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130113-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U01DK130181-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

5U24DK130164-02

Identifier Type: NIH

Identifier Source: secondary_id

View Link

LCN Cohort Study

Identifier Type: -

Identifier Source: org_study_id

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