Psorcast Mobile Study

NCT ID: NCT05621369

Last Updated: 2025-06-11

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

1000 participants

Study Classification

OBSERVATIONAL

Study Start Date

2022-01-01

Study Completion Date

2027-01-31

Brief Summary

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The purpose of this study is to understand variation in the symptoms of psoriasis and psoriatic arthritis using simple, scalable smartphone-based measurements. This study uses an iPhone app to record these symptoms through questionnaires and sensors.

Detailed Description

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Psoriatic disease exhibits a spectrum of symptoms and can transition from psoriasis (PsO), largely affecting the skin, to psoriatic arthritis (PsA) involving widespread musculoskeletal inflammation. Early detection of the PsO-to-PsA transition and rapid administration of effective treatment is essential, as a delay in diagnosing PsA by as little as 6 months can lead to irreversible joint damage. This "ticking clock" paradigm drives the need for frequent monitoring and effective therapeutic intervention as early as possible to attenuate or possibly prevent disease progression. Using a suite of smartphone-based measurements in an app called Psorcast (psoriasis forecasts), we aim to aggregate weekly, symptom measurements from participants in a remote, longitudinal observational study to map the trajectories of treatment response and disease progression. In this study, we will explore measurements of psoriatic disease activity at least an order of magnitude more frequently (weekly vs. quarterly) than standard clinical practice or clinical trial designs. This study is not meant to provide a medical diagnosis, treatment, or medical advice. It is meant to provide a scalable, inexpensive, non-invasive and frequent measure and tracking of psoriasis and psoriatic arthritis for research purposes.

Conditions

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Psoriatic Arthritis Psoriasis Psoriatic Conditions Dermatologic Disease Rheumatologic Disease Psoriatic Nail Plaque Psoriasis Joint Pain Dactylitis

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Participants with Psoriasis

People who report a diagnosis of Psoriasis. Participants are invited via the Psorcast mobile application to complete the following assessments: Participant self-assessment surveys, skin assessments (Psoriasis Area Draw and Psoriasis Area Photo) and musculoskeletal assessments (Finger/Toe Photos, Joint Count, Digital Jar Open, 30s Walk).

Participant self-assessment surveys

Intervention Type BEHAVIORAL

At enrollment, participants are asked to complete a baseline health history, family history, and a participant-reported symptom inventory.

Psoriasis Draw

Intervention Type BEHAVIORAL

Participants are asked to draw the location and size of psoriasis they currently experience. Participants are provided a body template onto which they can draw on their screen. Investigators estimate the percentage of body area affected.

Psoriasis Area Photo

Intervention Type BEHAVIORAL

Participants are asked to take a picture of a representative psoriasis plaque and indicate the location of the plaque. They are asked to take a picture of the same area over time. The investigators are developing computer vision algorithms to assess the plaque.

Finger and Toe Photos

Intervention Type BEHAVIORAL

Participants are asked to take pictures of the back of each hand and the top of each foot. These photos can be used to assess finger and toe swelling as well as psoriatic nail involvement. The investigators are developing computer vision algorithms to assess psoriatic nail involvement and digit swelling.

Digital Jar Open

Intervention Type BEHAVIORAL

Participants are asked to internally and externally rotate the phone as it rests on a flat surface. Participants perform each direction (internal and external) and each arm (left and right) in turn. Gyroscope sensors measure the degree of rotation.

30 Second Walk

Intervention Type BEHAVIORAL

Participants are asked to walk in a straight line for 30 seconds. Gait is measured by gyroscope and accelerometer sensors. The investigators examine step-dependent and sequence-dependent features from these sensors. The investigators apply feature selection and classifier algorithms to analyze these data.

Psorcast mobile application

Intervention Type OTHER

Participants complete all described behavioral interventions via a dedicated iPhone app, Psorcast.

Participants with Psoriatic Arthritis

People who report a diagnosis of Psoriatic Arthritis. Participants are invited via the Psorcast mobile application to complete the following assessments: Participant self-assessment surveys, skin assessments (Psoriasis Area Draw and Psoriasis Area Photo) and musculoskeletal assessments (Finger/Toe Photos, Joint Count, Digital Jar Open, 30s Walk).

Participant self-assessment surveys

Intervention Type BEHAVIORAL

At enrollment, participants are asked to complete a baseline health history, family history, and a participant-reported symptom inventory.

Psoriasis Draw

Intervention Type BEHAVIORAL

Participants are asked to draw the location and size of psoriasis they currently experience. Participants are provided a body template onto which they can draw on their screen. Investigators estimate the percentage of body area affected.

Psoriasis Area Photo

Intervention Type BEHAVIORAL

Participants are asked to take a picture of a representative psoriasis plaque and indicate the location of the plaque. They are asked to take a picture of the same area over time. The investigators are developing computer vision algorithms to assess the plaque.

Finger and Toe Photos

Intervention Type BEHAVIORAL

Participants are asked to take pictures of the back of each hand and the top of each foot. These photos can be used to assess finger and toe swelling as well as psoriatic nail involvement. The investigators are developing computer vision algorithms to assess psoriatic nail involvement and digit swelling.

Digital Jar Open

Intervention Type BEHAVIORAL

Participants are asked to internally and externally rotate the phone as it rests on a flat surface. Participants perform each direction (internal and external) and each arm (left and right) in turn. Gyroscope sensors measure the degree of rotation.

30 Second Walk

Intervention Type BEHAVIORAL

Participants are asked to walk in a straight line for 30 seconds. Gait is measured by gyroscope and accelerometer sensors. The investigators examine step-dependent and sequence-dependent features from these sensors. The investigators apply feature selection and classifier algorithms to analyze these data.

Psorcast mobile application

Intervention Type OTHER

Participants complete all described behavioral interventions via a dedicated iPhone app, Psorcast.

Participants without Psoriasis or Psoriatic Arthritis

People who report no prior diagnosis of Psoriasis or Psoriatic Arthritis. Participants are invited via the Psorcast mobile application to complete the following assessments: Participant self-assessment surveys, skin assessments (Psoriasis Area Draw and Psoriasis Area Photo) and musculoskeletal assessments (Finger/Toe Photos, Joint Count, Digital Jar Open, 30s Walk).

Participant self-assessment surveys

Intervention Type BEHAVIORAL

At enrollment, participants are asked to complete a baseline health history, family history, and a participant-reported symptom inventory.

Psoriasis Draw

Intervention Type BEHAVIORAL

Participants are asked to draw the location and size of psoriasis they currently experience. Participants are provided a body template onto which they can draw on their screen. Investigators estimate the percentage of body area affected.

Psoriasis Area Photo

Intervention Type BEHAVIORAL

Participants are asked to take a picture of a representative psoriasis plaque and indicate the location of the plaque. They are asked to take a picture of the same area over time. The investigators are developing computer vision algorithms to assess the plaque.

Finger and Toe Photos

Intervention Type BEHAVIORAL

Participants are asked to take pictures of the back of each hand and the top of each foot. These photos can be used to assess finger and toe swelling as well as psoriatic nail involvement. The investigators are developing computer vision algorithms to assess psoriatic nail involvement and digit swelling.

Digital Jar Open

Intervention Type BEHAVIORAL

Participants are asked to internally and externally rotate the phone as it rests on a flat surface. Participants perform each direction (internal and external) and each arm (left and right) in turn. Gyroscope sensors measure the degree of rotation.

30 Second Walk

Intervention Type BEHAVIORAL

Participants are asked to walk in a straight line for 30 seconds. Gait is measured by gyroscope and accelerometer sensors. The investigators examine step-dependent and sequence-dependent features from these sensors. The investigators apply feature selection and classifier algorithms to analyze these data.

Psorcast mobile application

Intervention Type OTHER

Participants complete all described behavioral interventions via a dedicated iPhone app, Psorcast.

Interventions

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Participant self-assessment surveys

At enrollment, participants are asked to complete a baseline health history, family history, and a participant-reported symptom inventory.

Intervention Type BEHAVIORAL

Psoriasis Draw

Participants are asked to draw the location and size of psoriasis they currently experience. Participants are provided a body template onto which they can draw on their screen. Investigators estimate the percentage of body area affected.

Intervention Type BEHAVIORAL

Psoriasis Area Photo

Participants are asked to take a picture of a representative psoriasis plaque and indicate the location of the plaque. They are asked to take a picture of the same area over time. The investigators are developing computer vision algorithms to assess the plaque.

Intervention Type BEHAVIORAL

Finger and Toe Photos

Participants are asked to take pictures of the back of each hand and the top of each foot. These photos can be used to assess finger and toe swelling as well as psoriatic nail involvement. The investigators are developing computer vision algorithms to assess psoriatic nail involvement and digit swelling.

Intervention Type BEHAVIORAL

Digital Jar Open

Participants are asked to internally and externally rotate the phone as it rests on a flat surface. Participants perform each direction (internal and external) and each arm (left and right) in turn. Gyroscope sensors measure the degree of rotation.

Intervention Type BEHAVIORAL

30 Second Walk

Participants are asked to walk in a straight line for 30 seconds. Gait is measured by gyroscope and accelerometer sensors. The investigators examine step-dependent and sequence-dependent features from these sensors. The investigators apply feature selection and classifier algorithms to analyze these data.

Intervention Type BEHAVIORAL

Psorcast mobile application

Participants complete all described behavioral interventions via a dedicated iPhone app, Psorcast.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Adult age 18 and older who consent to participate in the study
* Own a compatible iPhone or iPod Touch device running iOS 12.2 or above
* Be able to read and understand an official language of the country of participation

Exclusion Criteria

* Age 17 years or younger
* Not a resident of the a country where the app is approved for use
* Not have a personal (i.e., not shared) iPhone (4s or newer running iOS 8.0 or later)
* Not be able to read and understand an official language of the country of participation
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Brigham and Women's Hospital

OTHER

Sponsor Role collaborator

NYU Langone Health

OTHER

Sponsor Role collaborator

University of Pennsylvania

OTHER

Sponsor Role collaborator

Harvard Medical School (HMS and HSDM)

OTHER

Sponsor Role collaborator

New York University

OTHER

Sponsor Role collaborator

Sage Bionetworks

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Solveig Sieberts, Ph.D

Role: PRINCIPAL_INVESTIGATOR

Sage Bionetworks

Jose Scher, MD

Role: PRINCIPAL_INVESTIGATOR

NYU Langone Medical Center

Joseph Merola, MD, MMSc

Role: PRINCIPAL_INVESTIGATOR

Brigham and Women's Hospital & Harvard Medical School

Locations

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Sage Bionetworks

Seattle, Washington, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Solveig K Sieberts, Ph.D

Role: CONTACT

206-928-8266

Christine Suver, Ph.D

Role: CONTACT

206-667-2128

Facility Contacts

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Christine Suver, PhD

Role: primary

2066672128

References

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DE Webster, RH Haberman, LM Perez Chada, M Tummalacherla, A Tediarjo, V Yadav, E Chaibub Neto, W MacDuffie, M DePhillips, E Sieg, S Catron, C Grant, W Francis, M Nguyen, M Yussuff, RL Castillo, D Yan, AL Neimann, SM Reddy, A Ogdie, A Kolivras, MR Kellen, LM Mangravite, SK Sieberts, L Omberg, JF Merola, JU Scher medRxiv 2022.04.13.22273676; doi: https://doi.org/10.1101/2022.04.13.22273676

Reference Type BACKGROUND

Related Links

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Other Identifiers

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202110921

Identifier Type: -

Identifier Source: org_study_id

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