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Pulmonary Care and Research Collaborative Patient Registry

NCT ID: NCT05445817

Last Updated: 2022-07-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

150 participants

Study Classification

OBSERVATIONAL

Study Start Date

2022-07-31

Study Completion Date

2024-03-31

Brief Summary

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The purpose of this research study is to build and maintain a registry of people with interstitial lung disease (ILD). Medical information collected for this registry may be used to advance ILD and pulmonary research and improve patient care. This is an observational registry. Participants will not receive any investigational treatments or investigational drugs as part of their participation in this registry.

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Detailed Description

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The registry will contain longitudinal medical histories of ILD patients. The creation and curation of the registry with utilize release of information services, biomedical informatics methods and human expert reviews. Among the registry's long-term goals is to utilize its data and informatics resources to study and advance ILD diagnosis and treatment. The registry will be developed with a set of capabilities to consistently, repeatedly, and economically build research-grade datasets that allow cohort development from natively unstructured and non-standard phenotypic clinical and imaging data.

Conditions

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Interstitial Lung Disease

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* People with a confirmed diagnosis of interstitial lung disease by a primary care physician and/or pulmonologist.

Exclusion Criteria

\-
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Genentech, Inc.

INDUSTRY

Sponsor Role collaborator

Pulmonary Care and Research Collaborative Limited

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Aliaa Barakat, PhD

Role: PRINCIPAL_INVESTIGATOR

Pulmonary Care and Research Collaborative, Ltd.

Locations

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Pulmonary Care and Research Collaborative, Ltd.

Boston, Massachusetts, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Aliaa Barakat, PhD

Role: CONTACT

[email protected]
617-895-6636

Arthur Dea, BA

Role: CONTACT

[email protected]
617-895-9879

Facility Contacts

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Aliaa Barakat, PhD

Role: primary

[email protected]
617-895-6636

Arthur Dea, BA

Role: backup

[email protected]
617-895-9879

Other Identifiers

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ILDC-001

Identifier Type: -

Identifier Source: org_study_id

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