Assessing the Quality of Life and Social Support in Age-Related Macular Degeneration Patients
NCT ID: NCT05427994
Last Updated: 2022-09-01
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
458 participants
OBSERVATIONAL
2021-04-05
2022-07-27
Brief Summary
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Detailed Description
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Who can participate? Patients with AMD, who wish to participate, will be recruited. Patients will be recruited from three locations of the Kazakh Scientific - Research Institute of Eye Diseases in Almaty, Nur-Sultan and Shymkent.
What does the study involve? The study involves collecting demographic data of the participants, collecting baseline visual testing data from medical records, filling out of the NEI-VFQ-25, and answering two yes/no questions related to the social support and reliability of social support.
What are possible benefits and risks of participating? Assessment of quality of life and social support of the AMD patients is a first step of developing targeted psycho-social support programs for AMD patients.
Where is the study run from? Patients will be recruited from three locations of the Kazakh Scientific - Research Institute of Eye Diseases in Almaty, Nur-Sultan and Shymkent.
When is the study starting and how long it is expected to run for? Start date 03/02/2020. End date 27/08/2022.
Who is funding the study? No funding for this study. Who is the main contact? Principal investigator: Inara Ismailova; +380 73 200 0688; [email protected]
Conditions
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Study Design
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OTHER
CROSS_SECTIONAL
Study Groups
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Patients with age-related macular degeneration
Patients with age-related macular degeneration who fill out the quality of life questionnaire, and answer questions about social support and reliability of social support
National Eye Institute Visual Function Questionnaire
National Eye Institute Visual Function Questionnaire (NEI-VFQ-25) measures the quality of life related to vision. This questionnaire has been validated for use on low vision patients.
Interventions
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National Eye Institute Visual Function Questionnaire
National Eye Institute Visual Function Questionnaire (NEI-VFQ-25) measures the quality of life related to vision. This questionnaire has been validated for use on low vision patients.
Other Intervention Names
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Eligibility Criteria
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Inclusion Criteria
Exclusion Criteria
30 Years
90 Years
ALL
No
Sponsors
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Asfendiyarov Kazakh National Medical University
OTHER
Responsible Party
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Ildar Fakhradiyev
Principal Investigator
Principal Investigators
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Inara Isamyilova, PhD
Role: PRINCIPAL_INVESTIGATOR
Asfendiyarov Kazakh National Medical University
Locations
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Kazakh Scientific - Research Institute of Eye Diseases
Almaty, , Kazakhstan
Medical Centre Hospital of President'S Affairs Administration of the Republic of Kazakhstan
Astana, , Kazakhstan
Countries
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References
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Ismayilova I, Turdaliyeva B, Aldasheva N, Veselovskaya N. Assessing the quality of life in age-related macular degeneration patients: a cross-sectional study in Kazakhstan. Acta Biomed. 2022 Dec 16;93(6):e2022299. doi: 10.23750/abm.v93i6.13580.
Other Identifiers
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1394
Identifier Type: -
Identifier Source: org_study_id
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