Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care

NCT ID: NCT04820998

Last Updated: 2023-07-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

45 participants

Study Classification

OBSERVATIONAL

Study Start Date

2021-09-01

Study Completion Date

2023-01-01

Brief Summary

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Study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in the various social spaces and improve collaboration between professionals and parents

Detailed Description

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Identify the living conditions related to the housing of children with autism spectrum disorders (ASD) treated at the Léo Kanner Center (CLK), psychopathology department of the Saint-Étienne University Hospital. The aim is to describe through the trajectories of children with ASD and their families, their living conditions, and through interviews with professionals who support them, how the specificities related to precarious situations are identified and taken into account.

A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat.

The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.

Conditions

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Autistic Disorder

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

PROSPECTIVE

Interventions

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Families

Families's interviews about their precarious situation of living and the consequences on their autistic child care

Intervention Type OTHER

professionals

Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Families having their child followed in the child psychiatry service of the Léo Kanner Center (CLK),
* Children followed for Autism Spectrum Disorders (ASD),
* Families who received informed information about the study and who co-signed a consent to participate in the study with the investigator.

Exclusion Criteria

* Opinion of the child's referring physician contraindicating inclusion
* Refusal of one of the legal guardians to participate in the study
Maximum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Centre Hospitalier Universitaire de Saint Etienne

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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VALERIE ROUSSELON-CHARLES, MD

Role: PRINCIPAL_INVESTIGATOR

CHU ST ETIENNE FRANCE

Locations

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Chu St Etienne

Saint-Etienne, , France

Site Status

Countries

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France

Other Identifiers

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20CH029

Identifier Type: -

Identifier Source: org_study_id

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