Living in a Precarious Situation With an Autistic Child: What Are the Issues at Stake for Support in Care
NCT ID: NCT04820998
Last Updated: 2023-07-10
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
45 participants
OBSERVATIONAL
2021-09-01
2023-01-01
Brief Summary
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Detailed Description
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A qualitative survey, carried out by sociological interviews with families whose children are followed at the Léo Kanner Center (CLK) and the professionals who care for them, would make it possible to collect data on the development of a young child with autism in his home and more generally in his habitat.
The purpose of this study is to study the specificities of families in a precarious situation with a child with autism spectrum disorders (ASD) in terms of housing, in order to better support them in different social spaces and improve collaboration between professionals and parents. The project aims to bring children with autism spectrum disorders (ASD) into a dynamic of access to human rights. He suggests three levers to achieve this: rely on a precise inventory of needs; work towards a transformation of representations; streamline access to healthcare and common law services.
Conditions
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Study Design
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CASE_ONLY
PROSPECTIVE
Interventions
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Families
Families's interviews about their precarious situation of living and the consequences on their autistic child care
professionals
Interviews so as to know how the specifics of precarious situations are identified and taken into account by the professionals
Eligibility Criteria
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Inclusion Criteria
* Children followed for Autism Spectrum Disorders (ASD),
* Families who received informed information about the study and who co-signed a consent to participate in the study with the investigator.
Exclusion Criteria
* Refusal of one of the legal guardians to participate in the study
18 Years
ALL
No
Sponsors
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Centre Hospitalier Universitaire de Saint Etienne
OTHER
Responsible Party
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Principal Investigators
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VALERIE ROUSSELON-CHARLES, MD
Role: PRINCIPAL_INVESTIGATOR
CHU ST ETIENNE FRANCE
Locations
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Chu St Etienne
Saint-Etienne, , France
Countries
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Other Identifiers
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20CH029
Identifier Type: -
Identifier Source: org_study_id
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