Development and Validation of the SWADOC Tool

NCT ID: NCT04706689

Last Updated: 2024-02-22

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

104 participants

Study Classification

OBSERVATIONAL

Study Start Date

2020-07-24

Study Completion Date

2025-06-30

Brief Summary

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Background: After a period of coma, patients with severe brain injury may present disorders of consciousness (DOC). A wide proportion of these patients also suffer from severe dysphagia. Assessment and therapy of swallowing disabilities of DOC patients are essential because dysphagia has major functional consequences and comorbidities. Dysphagia evaluation in patients with DOC is hampered by the lack of adapted tools. The first aim of the study was to develop a new tool, the SWallowing Assessment in Disorders Of Consciousness (SWADOC), and propose a validation protocol. The SWADOC tool has been developed to help therapists to apprehend components related to swallowing in patients with DOC. The second aim is to appreciate the relationship between patients' level of consciousness and SWADOC items and scores.

Method/design: In this multicentric prospective cohort, 104 patients with DOC will be tested three times during two consecutive days with the SWADOC tool. Statistical analyses will focus on the reliability and validity of the SWADOC tool, especially the intra and inter-rater reliability, internal consistency, measures of dispersion and concurrent validity with the FOTT Swallowing Assessment of Saliva (FOTT-SAS). The level of consciousness will be assessed with the Simplified Evaluation of CONsciousness Disorders (SECONDs) and the Coma Recovery Scale-Revised (CRS-R)

Discussion: The assessment of swallowing abilities among patients with DOC is the first necessary step towards the development of an individualized dysphagia care plan. A validated scoring tool will be essential for clinicians to better apprehend dysphagia in DOC patients and to document the evolution of their disorders.

Detailed Description

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Conditions

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Swallowing Disorders Dysphagia Disorders of Consciousness Assessment Tool Speech Therapy

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Unresponsive wakefulness syndrome patients (UWS)

The level of consciousness will be assessed with the Simplified Evaluation of CONsciousness Disorder (SECONDs) and the Coma Recovery Scale-Revised (CRS-R).

SWADOC tool

Intervention Type BEHAVIORAL

The tool explores some oral and pharyngeal components of swallowing as well as a range of prerequisite and related components of swallowing in DOC patients.

It is composed of an average of 50 qualitative items and a subsection named "SWADOC-scored" comprising 8 quantitative items.

FOTT-SAS

Intervention Type BEHAVIORAL

Facial Oral Tract Therapy Swallowing Assessment of Saliva : the results of the SWADOC-scored in one of the sessions will be compared to the FOTT Swallowing Assessment of Saliva (FOTT-SAS) (27). The test is based on 7 questions under which if items 1-4 are answered "Yes" and items 5-7 are answered "No", oral intake should be initiated. The FOTT-SAS includes items that can be scored based on the administration of the SWADOC tool. In that respect, no additional administration will be required

Minimally conscious patients MINUS (MCS-)

The level of consciousness will be assessed with the Simplified Evaluation of CONsciousness Disorder (SECONDs) and the Coma Recovery Scale-Revised (CRS-R).

SWADOC tool

Intervention Type BEHAVIORAL

The tool explores some oral and pharyngeal components of swallowing as well as a range of prerequisite and related components of swallowing in DOC patients.

It is composed of an average of 50 qualitative items and a subsection named "SWADOC-scored" comprising 8 quantitative items.

FOTT-SAS

Intervention Type BEHAVIORAL

Facial Oral Tract Therapy Swallowing Assessment of Saliva : the results of the SWADOC-scored in one of the sessions will be compared to the FOTT Swallowing Assessment of Saliva (FOTT-SAS) (27). The test is based on 7 questions under which if items 1-4 are answered "Yes" and items 5-7 are answered "No", oral intake should be initiated. The FOTT-SAS includes items that can be scored based on the administration of the SWADOC tool. In that respect, no additional administration will be required

Minimally conscious patients PLUS

The level of consciousness will be assessed with the Simplified Evaluation of CONsciousness Disorder (SECONDs) and the Coma Recovery Scale-Revised (CRS-R).

SWADOC tool

Intervention Type BEHAVIORAL

The tool explores some oral and pharyngeal components of swallowing as well as a range of prerequisite and related components of swallowing in DOC patients.

It is composed of an average of 50 qualitative items and a subsection named "SWADOC-scored" comprising 8 quantitative items.

FOTT-SAS

Intervention Type BEHAVIORAL

Facial Oral Tract Therapy Swallowing Assessment of Saliva : the results of the SWADOC-scored in one of the sessions will be compared to the FOTT Swallowing Assessment of Saliva (FOTT-SAS) (27). The test is based on 7 questions under which if items 1-4 are answered "Yes" and items 5-7 are answered "No", oral intake should be initiated. The FOTT-SAS includes items that can be scored based on the administration of the SWADOC tool. In that respect, no additional administration will be required

Patients emerging from the minimally conscious state (EMCS)

The level of consciousness will be assessed with the Simplified Evaluation of CONsciousness Disorder (SECONDs) and the Coma Recovery Scale-Revised (CRS-R).

SWADOC tool

Intervention Type BEHAVIORAL

The tool explores some oral and pharyngeal components of swallowing as well as a range of prerequisite and related components of swallowing in DOC patients.

It is composed of an average of 50 qualitative items and a subsection named "SWADOC-scored" comprising 8 quantitative items.

FOTT-SAS

Intervention Type BEHAVIORAL

Facial Oral Tract Therapy Swallowing Assessment of Saliva : the results of the SWADOC-scored in one of the sessions will be compared to the FOTT Swallowing Assessment of Saliva (FOTT-SAS) (27). The test is based on 7 questions under which if items 1-4 are answered "Yes" and items 5-7 are answered "No", oral intake should be initiated. The FOTT-SAS includes items that can be scored based on the administration of the SWADOC tool. In that respect, no additional administration will be required

Interventions

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SWADOC tool

The tool explores some oral and pharyngeal components of swallowing as well as a range of prerequisite and related components of swallowing in DOC patients.

It is composed of an average of 50 qualitative items and a subsection named "SWADOC-scored" comprising 8 quantitative items.

Intervention Type BEHAVIORAL

FOTT-SAS

Facial Oral Tract Therapy Swallowing Assessment of Saliva : the results of the SWADOC-scored in one of the sessions will be compared to the FOTT Swallowing Assessment of Saliva (FOTT-SAS) (27). The test is based on 7 questions under which if items 1-4 are answered "Yes" and items 5-7 are answered "No", oral intake should be initiated. The FOTT-SAS includes items that can be scored based on the administration of the SWADOC tool. In that respect, no additional administration will be required

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Age above 18-year-old
* Perfect knowledge of French language before the injury
* Previous event of coma phase caused by a severe acquired brain injury
* Medical stability (absence of mechanical ventilation and sedation, no acute medical pathology such as infection or respiratory distress)
* No neurological or otorhinolaryngological disease which can impact swallowing prior to the brain injury
* Minimum of 28 days since the acquired brain injury at inclusion
* Diagnosis of UWS, MCS-, MCS+ or EMCS based on the CRS-R or SECONDs
* Informed consent from legal representative of the patient
* Affiliated patient or beneficiary of a health insurance plan (for French participants only).
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Centre du Cerveau², Centre hospitalier universitaire de Liège

UNKNOWN

Sponsor Role collaborator

Centre de Traumatologie et de Réadaptation de Jette (Erasme, ULB)

UNKNOWN

Sponsor Role collaborator

Cliniques de Soins Spécialisés Valdor-Pèrî

UNKNOWN

Sponsor Role collaborator

Centre Hospitalier Neurologique William Lennox (UCL)

UNKNOWN

Sponsor Role collaborator

Centre Hospitalier Universitaire de Liege

OTHER

Sponsor Role collaborator

Centre Hospitalier Universitaire de Nīmes

OTHER

Sponsor Role collaborator

Uzès hospital

UNKNOWN

Sponsor Role collaborator

Fontfroide functional re-education centre, Montpellier, France

UNKNOWN

Sponsor Role collaborator

University of Liege

OTHER

Sponsor Role lead

Responsible Party

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Olivia Gosseries

Neuropsychologist, PhD, Co-director of the Coma Science Group, Research Associate at FRS-FNRS

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Olivia Gosseries, PhD

Role: STUDY_DIRECTOR

University of Liege, Giga Consciousness

Locations

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Centre Hospitalier Neurologique William Lennox (UCL)

Ottignies-Louvain-la-Neuve, Brabant Wallon, Belgium

Site Status RECRUITING

Centre neurologique et de réadaptation fonctionnelle de Fraiture-en-Condroz

Fraiture, , Belgium

Site Status RECRUITING

Centre de Traumatologie et de Réadaptation de Jette (Erasme, ULB)

Jette, , Belgium

Site Status RECRUITING

Centre du Cerveau², University Hospital of Liège

Liège, , Belgium

Site Status RECRUITING

Cliniques de Soins Spécialisés Valdor-Pèrî

Liège, , Belgium

Site Status RECRUITING

Fontfroide functional re-education centre

Montpellier, , France

Site Status RECRUITING

CHU Nîmes

Nîmes, , France

Site Status NOT_YET_RECRUITING

Uzès hospital

Uzès, , France

Site Status NOT_YET_RECRUITING

Countries

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Belgium France

Central Contacts

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Evelyne Mélotte, M.D.

Role: CONTACT

00323663915

Marion Belorgeot, M.D.

Role: CONTACT

Facility Contacts

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Nicolas Lejeune, M.D., Ph.D.

Role: primary

Jenny Paluszkiewicz

Role: primary

Valérie Chavet, M.D.

Role: primary

Elodie Guichard, M.D.

Role: backup

Evelyne Mélotte, M.D.

Role: primary

+323667248

Olivia Gosseries, Ph.D.

Role: backup

+3243663954

Haroun Jedidi, M.D.

Role: primary

Jean-Baptiste Chevallier

Role: primary

+33 4 67 61 79 79

Frederic Pellas

Role: primary

+33 4 66 68 38 56

Valérie Dimanchin

Role: primary

+33 4 66 63 71 00

References

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Melotte E, Maudoux A, Delhalle S, Lagier A, Thibaut A, Aubinet C, Kaux JF, Vanhaudenhuyse A, Ledoux D, Laureys S, Gosseries O. Swallowing in individuals with disorders of consciousness: A cohort study. Ann Phys Rehabil Med. 2021 Jul;64(4):101403. doi: 10.1016/j.rehab.2020.04.008. Epub 2020 Jul 18.

Reference Type BACKGROUND
PMID: 32535170 (View on PubMed)

Sanz LRD, Aubinet C, Cassol H, Bodart O, Wannez S, Bonin EAC, Barra A, Lejeune N, Martial C, Chatelle C, Ledoux D, Laureys S, Thibaut A, Gosseries O. SECONDs Administration Guidelines: A Fast Tool to Assess Consciousness in Brain-injured Patients. J Vis Exp. 2021 Feb 6;(168). doi: 10.3791/61968.

Reference Type BACKGROUND
PMID: 33616111 (View on PubMed)

Mortensen J, Jensen D, Kjaersgaard A. A validation study of the Facial-Oral Tract Therapy Swallowing Assessment of Saliva. Clin Rehabil. 2016 Apr;30(4):410-5. doi: 10.1177/0269215515584381. Epub 2015 Apr 28.

Reference Type BACKGROUND
PMID: 25920675 (View on PubMed)

Bicego A, Lejoly K, Maudoux A, Lefebvre P, Laureys S, Schweizer V, Diserens K, Faymonville ME, Vanhaudenhuyse A. [Swallowing in disorders of consciousness]. Rev Neurol (Paris). 2014 Oct;170(10):630-41. doi: 10.1016/j.neurol.2014.04.004. Epub 2014 Jun 18. French.

Reference Type BACKGROUND
PMID: 24952924 (View on PubMed)

Wannez S, Gosseries O, Azzolini D, Martial C, Cassol H, Aubinet C, Annen J, Martens G, Bodart O, Heine L, Charland-Verville V, Thibaut A, Chatelle C, Vanhaudenhuyse A, Demertzi A, Schnakers C, Donneau AF, Laureys S. Prevalence of coma-recovery scale-revised signs of consciousness in patients in minimally conscious state. Neuropsychol Rehabil. 2018 Dec;28(8):1350-1359. doi: 10.1080/09602011.2017.1310656. Epub 2017 Apr 11.

Reference Type BACKGROUND
PMID: 28399715 (View on PubMed)

Melotte E, Belorgeot M, Herr R, Simon J, Kaux JF, Laureys S, Sanz LRD, Lagier A, Morsomme D, Pellas F, Gosseries O. The Development and Validation of the SWADOC: A Study Protocol for a Multicenter Prospective Cohort Study. Front Neurol. 2021 Apr 29;12:662634. doi: 10.3389/fneur.2021.662634. eCollection 2021.

Reference Type DERIVED
PMID: 33995257 (View on PubMed)

Other Identifiers

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2020_79

Identifier Type: -

Identifier Source: org_study_id

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