Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
NCT ID: NCT04690374
Last Updated: 2026-01-12
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
250 participants
OBSERVATIONAL
2020-12-22
2027-12-31
Brief Summary
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The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
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Detailed Description
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Conditions
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Study Design
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COHORT
OTHER
Study Groups
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Desmoplastic small round cell tumor (DSRCT)
Collect historical/longitudinal clinical, radiographic and molecular features of DSRCT patients as documented in medical records to improve knowledge about DSRCT
No interventions assigned to this group
Eligibility Criteria
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Inclusion Criteria
* Participants may be of any age as long as the appropriate consent and assent may be obtained
* Willing to provide historical and longitudinal clinical data
Exclusion Criteria
ALL
No
Sponsors
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Memorial Sloan Kettering Cancer Center
OTHER
Responsible Party
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Principal Investigators
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Emily Slotkin, MD
Role: PRINCIPAL_INVESTIGATOR
Memorial Sloan Kettering Cancer Center
Locations
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Memorial Sloan Kettering Cancer Center (All Protocol Activities)
New York, New York, United States
Countries
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Central Contacts
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Shakeel Modak, MD
Role: CONTACT
Facility Contacts
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Emily Slotkin, MD
Role: primary
Shakeel Modak, MD
Role: backup
Related Links
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Memorial Sloan Kettering Cancer Center
Other Identifiers
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20-551
Identifier Type: -
Identifier Source: org_study_id
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