General Population Level Estimation for Type 1 Diabetes Risk in Children During Routine Care Delivery

NCT ID: NCT04477928

Last Updated: 2024-04-22

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

33000 participants

Study Classification

OBSERVATIONAL

Study Start Date

2020-07-17

Study Completion Date

2031-03-31

Brief Summary

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In partnership with Helmsley Charitable Trust, the Sanford PLEDGE Study is a large-scale, observational, feasibility study of general population screening for T1D and celiac autoantibodies. Screening is incorporated into routine health care visits within an integrated health system.

Detailed Description

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Most children with type 1 diabetes (T1D) do not have a family member with diabetes and often are not diagnosed until the child is very sick. Research suggests that screening and identifying children at risk for T1D autoantibodies can prevent serious illness at the time of diagnosis and improve long-term health outcomes.

The investigators will screen children, ages 0-5.99 or 9-16 years for blood markers related to T1D and celiac disease during routine healthcare delivery at birth, 1, 2 and 5 years, or once between 9 and 16 years of age. Children with confirmed autoantibodies will be offered participation in other monitoring or prevention trials (T1D), or referred to clinical care (celiac).

Conditions

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Type 1 Diabetes Celiac Disease

Study Design

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Observational Model Type

OTHER

Study Time Perspective

PROSPECTIVE

Study Groups

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Study Group

Children receiving routine care at a Sanford facility

Sera and whole blood sampling

Intervention Type DIAGNOSTIC_TEST

* Study Entry: Single Nucleotide Polymorphism (SNP)-Based Genetic Risk Score at study entry.
* 2 years old: T1D autoantibodies, Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2) antibodies
* 5 years old: T1D and celiac autoantibodies
* 9-16 year old: one-time T1D and celiac autoantibodies
* Siblings of people with T1D autoimmunity, ages 6-17 years: one-time T1D and celiac autoantibodies

Differential Gene Expression (DGE)

Intervention Type DIAGNOSTIC_TEST

Opt-in: Differential Gene Expression from cord blood at birth and peripheral blood at 12 months of age

Interventions

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Sera and whole blood sampling

* Study Entry: Single Nucleotide Polymorphism (SNP)-Based Genetic Risk Score at study entry.
* 2 years old: T1D autoantibodies, Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2) antibodies
* 5 years old: T1D and celiac autoantibodies
* 9-16 year old: one-time T1D and celiac autoantibodies
* Siblings of people with T1D autoimmunity, ages 6-17 years: one-time T1D and celiac autoantibodies

Intervention Type DIAGNOSTIC_TEST

Differential Gene Expression (DGE)

Opt-in: Differential Gene Expression from cord blood at birth and peripheral blood at 12 months of age

Intervention Type DIAGNOSTIC_TEST

Eligibility Criteria

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Inclusion Criteria

* Newborn Entry: Viable, term infants, defined as 36 weeks gestation by either dates or ultrasound who are born to pregnant women, 18 years or older, who are willing and able to provide informed consent (IC) prior to the onset of active labor. Who are born at a Sanford Health Hospital and plan to have routine well-child care at a Sanford Clinic
* Pediatric Entry: Children less than 6 years of age who receive their routine care at a Sanford facility and whose parents are able to provide IC.
* Adolescent Entry: Children, ages 9-16 years old, who receive their routine care at a Sanford facility and whose parents are able to provide IC.
* Siblings of children known to have T1D-relevant antibodies; ages 6 to 17 years old who receive care at a Sanford clinic
* Have an active MyChart account (with proxy access).

Exclusion Criteria

* Subject is in the opinion of the investigator, unable to comply with the requirements of the study protocol.
* Children known to have T1D
Minimum Eligible Age

0 Minutes

Maximum Eligible Age

17 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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The Leona M. and Harry B. Helmsley Charitable Trust

OTHER

Sponsor Role collaborator

Pacific Northwest Research Institute

OTHER

Sponsor Role collaborator

University of Exeter

OTHER

Sponsor Role collaborator

Sanford Health

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Kurt Griffin, PhD, MD

Role: PRINCIPAL_INVESTIGATOR

Sanford Research

Locations

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Sanford Bemidji Region Clinics

Bemidji, Minnesota, United States

Site Status RECRUITING

Sanford Bismarck Region Clinics

Bismarck, North Dakota, United States

Site Status RECRUITING

Sanford Fargo Region Clinics

Fargo, North Dakota, United States

Site Status RECRUITING

Sanford Sioux Falls Region Clinics

Sioux Falls, South Dakota, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Ann Mays, RN, CPN

Role: CONTACT

605-312-6052

Facility Contacts

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Ann Mays, RN, CPN

Role: primary

605-312-6052

Ann Mays, RN, CPN

Role: primary

605-312-6052

Ann Mays

Role: primary

605-312-6052

Ann Mays

Role: primary

605-312-6052

References

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Sims EK, Besser REJ, Dayan C, Geno Rasmussen C, Greenbaum C, Griffin KJ, Hagopian W, Knip M, Long AE, Martin F, Mathieu C, Rewers M, Steck AK, Wentworth JM, Rich SS, Kordonouri O, Ziegler AG, Herold KC; NIDDK Type 1 Diabetes TrialNet Study Group. Screening for Type 1 Diabetes in the General Population: A Status Report and Perspective. Diabetes. 2022 Apr 1;71(4):610-623. doi: 10.2337/dbi20-0054.

Reference Type BACKGROUND
PMID: 35316839 (View on PubMed)

Other Identifiers

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PLEDGE

Identifier Type: -

Identifier Source: org_study_id

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