Effect of Thickened Feeds on Clinical Outcomes in Children With Brief Resolved Unexplained Event

NCT ID: NCT04477460

Last Updated: 2025-12-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

250 participants

Study Classification

OBSERVATIONAL

Study Start Date

2021-04-01

Study Completion Date

2026-08-31

Brief Summary

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This observational study will examine the effects of thickened feeds on clinical outcomes and healthcare utilization in infants with brief resolved unexplained event (BRUE).

Detailed Description

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Brief resolved unexplained events (BRUE) are frightening episodes characterized by the appearance of life-threatening choking, pallor, cyanosis, and limpness in infants. These common events are resource-intensive and current management approaches inadequately address persistent symptoms. Infants with BRUE commonly have oropharyngeal dysphagia with aspiration, which is a modifiable risk factor for persistent symptoms, but there are no studies determining the mechanism behind this swallowing dysfunction and if swallowing interventions reduce morbidity. This is a prospective, longitudinal cohort study of infants who experienced brief resolved unexplained event receiving thickened feedings compared to those not receiving thickened feedings over 1 year.

Conditions

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Brief Resolved Unexplained Event Apparent Life Threatening Event Oropharyngeal Dysphagia

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Infants with BRUE receiving thickened feeds

Thickened feeds

Intervention Type DIETARY_SUPPLEMENT

Thickened feeds directed by medical team

Infants with BRUE not receiving thickened feeds

Non-thickened feeds

Intervention Type DIETARY_SUPPLEMENT

Non-thickened feeds directed by medical team

Interventions

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Thickened feeds

Thickened feeds directed by medical team

Intervention Type DIETARY_SUPPLEMENT

Non-thickened feeds

Non-thickened feeds directed by medical team

Intervention Type DIETARY_SUPPLEMENT

Eligibility Criteria

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Inclusion Criteria

* Less than 1 year of age
* Admitted to Boston Children's Hospital after experiencing first lifetime brief resolved unexplained event.

Exclusion Criteria

* Any pre-existing medical diagnoses that exclude brief resolved unexplained event diagnosis including seizure disorders and cyanotic congenital heart disease
* Already receiving thickened liquids for treatment of another condition
Minimum Eligible Age

0 Months

Maximum Eligible Age

12 Months

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

NIH

Sponsor Role collaborator

Boston Children's Hospital

OTHER

Sponsor Role lead

Responsible Party

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Daniel Duncan

Assistant Professor of Pediatrics

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Sudarshan Jadcherla, MD

Role: STUDY_DIRECTOR

Nationwide Children's Hospital

Taher Omari, PhD

Role: STUDY_DIRECTOR

Flinders University

Samuel Nurko, MD, MPH

Role: STUDY_DIRECTOR

Boston Children's Hospital

Daniel R Duncan, MD, MPH

Role: PRINCIPAL_INVESTIGATOR

Boston Children's Hospital

Rachel Rosen, MD, MPH

Role: STUDY_DIRECTOR

Boston Children's Hospital

Locations

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Boston Children's Hospital

Boston, Massachusetts, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Daniel R Duncan, MD, MPH

Role: CONTACT

6173550897

Facility Contacts

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Daniel R Duncan, MD, MPH

Role: primary

6173550897

References

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Duncan DR, Growdon AS, Liu E, Larson K, Gonzalez M, Norris K, Rosen RL. The Impact of the American Academy of Pediatrics Brief Resolved Unexplained Event Guidelines on Gastrointestinal Testing and Prescribing Practices. J Pediatr. 2019 Aug;211:112-119.e4. doi: 10.1016/j.jpeds.2019.04.007. Epub 2019 May 15.

Reference Type BACKGROUND
PMID: 31103259 (View on PubMed)

Duncan DR, Amirault J, Mitchell PD, Larson K, Rosen RL. Oropharyngeal Dysphagia Is Strongly Correlated With Apparent Life-Threatening Events. J Pediatr Gastroenterol Nutr. 2017 Aug;65(2):168-172. doi: 10.1097/MPG.0000000000001439.

Reference Type BACKGROUND
PMID: 27741062 (View on PubMed)

Duncan DR, Liu E, Growdon AS, Larson K, Rosen RL. A Prospective Study of Brief Resolved Unexplained Events: Risk Factors for Persistent Symptoms. Hosp Pediatr. 2022 Dec 1;12(12):1030-1043. doi: 10.1542/hpeds.2022-006550.

Reference Type BACKGROUND
PMID: 36336644 (View on PubMed)

Other Identifiers

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K23DK127251

Identifier Type: NIH

Identifier Source: secondary_id

View Link

IRB-P00038785

Identifier Type: -

Identifier Source: org_study_id

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