COVID-19 in PID Survey

NCT ID: NCT04459689

Last Updated: 2025-03-05

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

200 participants

Study Classification

OBSERVATIONAL

Study Start Date

2020-03-15

Study Completion Date

2027-02-18

Brief Summary

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With the emergence of SARS-CoV-2 and the COVID-19 pandemic, there is an urgent need to understand the impact of infection on immunodeficient individuals. Whilst co-morbidities (such as diabetes, cancer, arterial hypertension, heart disease...) have been documented in people infected with SARS-CoV-2, there is currently no information on the consequences and outcomes for individuals with primary immunodeficiencies (PID).

Following the 1st phase of the survey (launched by Isabelle Meyts (ESID), Nizar Mahlaoui (CEREDIH \& IPOPI) and Kate Sullivan with Stuart Tangye (IUIS), that gave an idea of the number of affected PID patients and the impact of SARS-CoV-2 and directly focusing on obtaining this top level of information), we are launching the 2nd phase: "COPID19".

COPID19 survey is a secured online GDPR compliant platform based in Paris (Imagine Institute). It has been approved by the Paris-Necker-Enfants malades IRB and Ethics Committee. However, this retrospective survey is designed for global distribution. Data can be entered by a health care professional (mostly clinicians) through a personal login and password.

Each documenting person will have access to his/her own patients' data. COPID19 require a greater level of information than the 1st phase. The eCRF will be open to evolutions depending on progresses in our knowledge of this pandemic.

Detailed Description

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Conditions

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Primary Immune Deficiency COVID

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

PROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* Diagnosed with a Primary Immune Deficiency
* COVID-19 (proven or probable)

Exclusion Criteria

* Secondary Immune Deficiency
* Other Coronovirus infection
Minimum Eligible Age

0 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Imagine Institute

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Nizar MAHLAOUI, MD, MPH, PhD

Role: STUDY_CHAIR

Necker Enfants Malades University Hospital

Locations

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Imagine Institute

Paris, , France

Site Status RECRUITING

Countries

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France

Central Contacts

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Nizar MAHLAOUI, MD, MPH, PhD

Role: CONTACT

+33144494622

Hassan FAOUR, BS

Role: CONTACT

+33 1 42 75 44 73

Facility Contacts

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Nizar MAHLAOUI, MD, MPH, PhD

Role: primary

+33144494622

Other Identifiers

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COPID19

Identifier Type: -

Identifier Source: org_study_id

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