Autism, Sport and Society: Conversations With Parents

NCT ID: NCT04275063

Last Updated: 2020-02-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

30 participants

Study Classification

OBSERVATIONAL

Study Start Date

2020-03-01

Study Completion Date

2020-08-01

Brief Summary

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In order to examine the experience of children with ASC in physical activity at home, at school, and in the local community, parents of children with ASC will be asked a number of open ended interview questions. To see if these experiences are unique to parents of children ASC, parents of non-ASC children will also be interviewed to allow for these perspectives to be compared and contrasted.

Detailed Description

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Background:

77% of boys and 80% of girls aged 5-15 in the UK fall below the national physical activity guidelines of 60 minutes of moderate to vigorous activity per day.

Research shows children with an Autism Spectrum Condition (ASC) are even less physically active than their neurotypical, age related peers and as a result are at increased risk of cardiovascular diseases, metabolic disorders, low self-esteem and depression. This physical activity gap has been shown to increase as children get older.

If a gap between the activity levels of children with ASC and the so called 'normal population' exists, there are a number of possible explanations for why this might be. Research points to either some facet of the autism spectrum causing difficulties engaging with a certain feature of a physical activity i.e. the physical environment in which activities take place which is difficult from the sensory point of view (noisy, busy, brightly lit) or lack of specific provision tailored towards children with ASC readily available in the local community. With repeated negative experiences, children and adults with ASC may come to believe these opportunities are 'not for them'.

To date, there has been limited research conducted on the attitudes of young people with ASC to sport and physical activity. The research that has been conducted has mainly focused on interviewing the young people themselves to gather their perspectives. However, little is known about their parent's perceptions of sports participation or if parents value being physically active themselves. This is of particular interest as parental modelling has been shown to be a predictor of children's PA behaviours with a positive correlation between adult and child PA levels. Furthermore, parents may offer additional insights into barriers of physical activity beyond that of their children and this information could help to advise the sports sector on how clubs and leisure centres could offer a better experience for children with ASC.

In order to examine the experience of children with ASC in physical activity at home, at school, and in the local community, parents of children with ASC will be asked a number of open ended interview questions. To see if these experiences are unique to parents of children ASC, parents of non-ASC children will also be interviewed to allow for these perspectives to be compared and contrasted.

Conditions

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Autism Spectrum Disorder

Study Design

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Observational Model Type

OTHER

Study Time Perspective

RETROSPECTIVE

Eligibility Criteria

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Inclusion Criteria

* Parent of child with an Autism Spectrum Condition aged 5-15
* Parent of child aged 5-15

Exclusion Criteria

* Parents with children with autism older than 15 or younger than 5
* Parents of children older than 15 or younger than 5
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Midlands Psychology CIC

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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James Smolinski, MSc

Role: PRINCIPAL_INVESTIGATOR

Midlands Psychology CIC

Central Contacts

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Jez Janda, MSc

Role: CONTACT

01785 748447

James Smolinski, MSc

Role: CONTACT

01785 748447

References

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Cridland EK, Jones SC, Magee CA, Caputi P. Family-focused autism spectrum disorder research: a review of the utility of family systems approaches. Autism. 2014 Apr;18(3):213-22. doi: 10.1177/1362361312472261. Epub 2013 Oct 3.

Reference Type BACKGROUND
PMID: 24092840 (View on PubMed)

Healy, S., Msetfi, R., & Gallagher, S. (2013). 'Happy and a bit nervous': The experiences of children with autism in physical education. British Journal of Learning Disabilities, 41(3), 222-228.

Reference Type BACKGROUND

Kohl HW 3rd, Hobbs KE. Development of physical activity behaviors among children and adolescents. Pediatrics. 1998 Mar;101(3 Pt 2):549-54.

Reference Type BACKGROUND
PMID: 12224661 (View on PubMed)

Memari, A. H., Kordi, R., Ziaee, V. et al. (2012). Weight status in Iranian children with autism spectrum disorders: Investigation of underweight, overweight and obesity. Research in Autism Spectrum Disorders, 6(1), 234-239.

Reference Type BACKGROUND

Padgett, D. K. (1998). Qualitative methods in social work research: Challenges and rewards. Thousand Oaks, CA: Sage.

Reference Type BACKGROUND

Pan CY. Objectively measured physical activity between children with autism spectrum disorders and children without disabilities during inclusive recess settings in Taiwan. J Autism Dev Disord. 2008 Aug;38(7):1292-301. doi: 10.1007/s10803-007-0518-6. Epub 2007 Dec 18.

Reference Type BACKGROUND
PMID: 18157623 (View on PubMed)

Public Health England (2016). Health matters: getting every adult active every day. [online] Available at: https://www.gov.uk/government/publications/health-matters-getting-every-adult-active-every-day/health-matters-getting-every-adult-active-every-day [Accessed 20 Aug. 2019].

Reference Type BACKGROUND

Rimmer JH, Yamaki K, Lowry BM, Wang E, Vogel LC. Obesity and obesity-related secondary conditions in adolescents with intellectual/developmental disabilities. J Intellect Disabil Res. 2010 Sep;54(9):787-94. doi: 10.1111/j.1365-2788.2010.01305.x. Epub 2010 Jul 12.

Reference Type BACKGROUND
PMID: 20630017 (View on PubMed)

Other Identifiers

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MP/KA-2

Identifier Type: -

Identifier Source: org_study_id

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