Long-term Safety of Linaclotide in Pediatric Participants With FC or IBS-C

NCT ID: NCT04166058

Last Updated: 2026-01-06

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

View full results

Basic Information

Get a concise snapshot of the trial, including recruitment status, study phase, enrollment targets, and key timeline milestones.

Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

381 participants

Study Classification

INTERVENTIONAL

Study Start Date

2019-11-19

Study Completion Date

2025-06-05

Brief Summary

Review the sponsor-provided synopsis that highlights what the study is about and why it is being conducted.

LIN-MD-66 is a Phase 3 open-label study with 24 weeks (Functional Constipation participants) or 52 weeks (Irritable bowel syndrome with constipation participants) of linaclotide exposure that will enroll pediatric participants (6-17 years of age) with FC or IBS-C who completed study intervention in studies LIN-MD-62, LIN-MD-63, or LIN-MD-64 based on the individual study criteria.

Detailed Description

Dive into the extended narrative that explains the scientific background, objectives, and procedures in greater depth.

Conditions

See the medical conditions and disease areas that this research is targeting or investigating.

Irritable Bowel Syndrome With Constipation Functional Constipation

Study Design

Understand how the trial is structured, including allocation methods, masking strategies, primary purpose, and other design elements.

Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

Review each arm or cohort in the study, along with the interventions and objectives associated with them.

72 μg linaclotide

An oral capsule that is taken once daily. It may be taken whole or sprinkled into 1 teaspoonful of applesauce or 30mL of bottled water.

Group Type ACTIVE_COMPARATOR

Functional Constipation (FC) participants (LIN-MD-62 and LIN-MD-64 completers)

Intervention Type DRUG

Participants whom are between the ages of 6-11 years old at their time of enrollment will be assigned a dose of 72 μg.

Participants whom are between the ages of 12-17 years old at their time of enrollment will be randomized at 1:1 ratio to 72 or 145 μg linaclotide.

145 μg linaclotide

An oral capsule that is taken once daily. It may be taken whole or sprinkled into 1 teaspoonful of applesauce or 30mL of bottled water.

Group Type ACTIVE_COMPARATOR

Irritable Bowel Syndrome with Constipation (IBS-C) participants (LIN-MD-63 and LIN-MD-64 completers)

Intervention Type DRUG

Participants who completed study LIN-MD-63 at their time of enrollment will be assigned a dose of 290 μg. Participants who received ≤ 145 μg linaclotide or placebo in study LIN-MD-63 at the time of completion will continue to receive 145 μg.

Participants who completed study LIN-MD-64 at their time of enrollment will be assigned a dose of 290 μg if they choose to receive open-label or continue to receive blinded dose of 145 or 290 μg if they choose to remain on the same blinded dose.

Functional Constipation (FC) participants (LIN-MD-62 and LIN-MD-64 completers)

Intervention Type DRUG

Participants whom are between the ages of 6-11 years old at their time of enrollment will be assigned a dose of 72 μg.

Participants whom are between the ages of 12-17 years old at their time of enrollment will be randomized at 1:1 ratio to 72 or 145 μg linaclotide.

290 μg linaclotide

An oral capsule that is taken once daily. It may be taken whole or sprinkled into 1 teaspoonful of applesauce or 30mL of bottled water.

Group Type ACTIVE_COMPARATOR

Irritable Bowel Syndrome with Constipation (IBS-C) participants (LIN-MD-63 and LIN-MD-64 completers)

Intervention Type DRUG

Participants who completed study LIN-MD-63 at their time of enrollment will be assigned a dose of 290 μg. Participants who received ≤ 145 μg linaclotide or placebo in study LIN-MD-63 at the time of completion will continue to receive 145 μg.

Participants who completed study LIN-MD-64 at their time of enrollment will be assigned a dose of 290 μg if they choose to receive open-label or continue to receive blinded dose of 145 or 290 μg if they choose to remain on the same blinded dose.

Interventions

Learn about the drugs, procedures, or behavioral strategies being tested and how they are applied within this trial.

Irritable Bowel Syndrome with Constipation (IBS-C) participants (LIN-MD-63 and LIN-MD-64 completers)

Participants who completed study LIN-MD-63 at their time of enrollment will be assigned a dose of 290 μg. Participants who received ≤ 145 μg linaclotide or placebo in study LIN-MD-63 at the time of completion will continue to receive 145 μg.

Participants who completed study LIN-MD-64 at their time of enrollment will be assigned a dose of 290 μg if they choose to receive open-label or continue to receive blinded dose of 145 or 290 μg if they choose to remain on the same blinded dose.

Intervention Type DRUG

Functional Constipation (FC) participants (LIN-MD-62 and LIN-MD-64 completers)

Participants whom are between the ages of 6-11 years old at their time of enrollment will be assigned a dose of 72 μg.

Participants whom are between the ages of 12-17 years old at their time of enrollment will be randomized at 1:1 ratio to 72 or 145 μg linaclotide.

Intervention Type DRUG

Eligibility Criteria

Check the participation requirements, including inclusion and exclusion rules, age limits, and whether healthy volunteers are accepted.

Inclusion Criteria

* Participant weighs ≥ 18 kg at the time the parent/guardian/LAR and/or caregiver has provided signed consent.
* Female participants who have had their first menstrual period and are sexually active must agree to use a reliable form of contraception.
* Participants must have completed study intervention in their lead-in study.


\- Female participants of childbearing potential must have a negative serum pregnancy test at the Screening Visit (Visit 1) and negative urine pregnancy test prior to the first dose on the Day 1 Visit (Visit 2).

Exclusion Criteria

* Participant has a known allergy or sensitivity to the study intervention or its components or other medications in the same drug class.
* Participant received an investigational drug, other than linaclotide, during the 30 days before the Screening Visit (Visit 1) or is planning to receive an investigational drug (other than that administered during this study) or use an investigational device at any time during the study.
* Female participants who are currently pregnant or nursing, or plan to become pregnant or nurse during the clinical study.
* Participant has required manual disimpaction any time prior to study intervention or disimpaction during in-patient hospitalization within 1 year prior to study intervention.
* Participant has any of the following conditions:

* a) Down's syndrome or any other chromosomal disorder
* b) Anatomic malformations (eg, imperforate anus, anal stenosis, anterior displaced anus)
* c) Intestinal nerve or muscle disorders (eg, Hirschprung disease, visceral myopathies, visceral neuropathies)
* d) Neuropathic conditions (eg, spinal cord abnormalities, neurofibromatosis, tethered cord, spinal cord trauma)
* e) Neurodevelopmental disabilities (early-onset, chronic disorders that share the essential feature of a predominant disturbance in the acquisition of cognitive, motor, language, or social skills, which has a significant and continuing impact on the developmental progress of an individual) producing a cognitive delay that precludes comprehension by the participant.
* Participant has a mechanical bowel obstruction or pseudo-obstruction.
* Participant currently has both unexplained and clinically significant alarm symptoms (lower GI bleeding \[rectal bleeding or heme-positive stool\], iron-deficiency anemia, or any unexplained anemia, or weight loss) and systemic signs of infection or colitis, or any neoplastic process.
* Participant has an active anal fissure (Note: history of anal fissure is not an exclusion).
* Participant has had surgery that meets any of the following criteria:

* a) Bariatric surgery for treatment of obesity, or surgery to remove a segment of the GI tract at any time before the Screening Visit (Visit 1).
* b) Surgery of the abdomen, pelvis, or retroperitoneal structures during the 6 months before the Screening Visit (Visit 1)
* c) An appendectomy or cholecystectomy during the 60 days before the Screening Visit
* d) Other major surgery during the 30 days before the Screening Visit (Visit 1)
* Participant is receiving enteral tube feeding
* Participants who have positive urine drug screen results for cocaine, barbiturates, opiates, or cannabinoids will be excluded from study participation.


* Participant has a history of nonretentive fecal incontinence
* Participant has a history of drug or alcohol abuse
* Participant has any of the following conditions:

* a) Celiac disease, or positive serological test for celiac disease and the condition has not been ruled out by endoscopic biopsy
* b) Cystic fibrosis
* c) Hypothyroidism that is untreated or treated with thyroid hormone at a dose that has not been stable for at least 3 months prior to the Screening (Visit 1)
* d) Lead toxicity, hypercalcemia
* e) Inflammatory bowel disease
* f) Childhood functional abdominal pain syndrome
* g) Childhood functional abdominal pain
* h) Poorly treated or poorly controlled psychiatric disorders that might influence his or her ability to participate in the study
* i) Lactose intolerance that is associated with abdominal pain or discomfort and could confound the assessments in this study
* j) History of cancer other than treated basal cell carcinoma of the skin. (Note: Participants with a history of cancer are allowed provided that the malignancy has been in a complete remission for at least 5 years before the Randomization Visit. A complete remission is defined as the disappearance of all signs of cancer in response to treatment.)
* k) History of diabetic neuropathy
* Participants who have positive urine drug screen results for cocaine, barbiturates, opiates, or cannabinoids.
Minimum Eligible Age

6 Years

Maximum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

Meet the organizations funding or collaborating on the study and learn about their roles.

Ironwood Pharmaceuticals, Inc.

INDUSTRY

Sponsor Role collaborator

AbbVie

INDUSTRY

Sponsor Role lead

Responsible Party

Identify the individual or organization who holds primary responsibility for the study information submitted to regulators.

Responsibility Role SPONSOR

Principal Investigators

Learn about the lead researchers overseeing the trial and their institutional affiliations.

ABBVIE INC.

Role: STUDY_DIRECTOR

AbbVie

Locations

Explore where the study is taking place and check the recruitment status at each participating site.

Central Research Associates /ID# 237953

Birmingham, Alabama, United States

Site Status

G & L Research, LLC /ID# 238093

Foley, Alabama, United States

Site Status

The Center for Clinical Trials Inc. /ID# 234605

Saraland, Alabama, United States

Site Status

HealthStar Research of Hot Springs PLLC /ID# 234608

Hot Springs, Arkansas, United States

Site Status

Preferred Research Partners /ID# 237109

Little Rock, Arkansas, United States

Site Status

Applied Research Center of Arkansas /ID# 238069

Little Rock, Arkansas, United States

Site Status

Advanced Research Center /ID# 237960

Anaheim, California, United States

Site Status

Kindred Medical Institute, LLC /ID# 237367

Corona, California, United States

Site Status

Duplicate_Center for Clinical Trials LLC /ID# 234629

Paramount, California, United States

Site Status

Medical Ctr for Clin Research /ID# 236911

San Diego, California, United States

Site Status

Lynn Institute of Denver /ID# 238086

Aurora, Colorado, United States

Site Status

Childrens National Medical Center /ID# 234417

Washington D.C., District of Columbia, United States

Site Status

Prohealth Research Center /ID# 234659

Doral, Florida, United States

Site Status

Dolphin Medical Research /ID# 234676

Doral, Florida, United States

Site Status

Amedica Research Institute Inc /ID# 234666

Hialeah, Florida, United States

Site Status

Nemours Childrens Specialty Care /ID# 237991

Jacksonville, Florida, United States

Site Status

Elite Clinical Research /ID# 234651

Miami, Florida, United States

Site Status

My Preferred Research LLC /ID# 237943

Miami, Florida, United States

Site Status

South Miami Medical & Research Group Inc. /ID# 234654

Miami, Florida, United States

Site Status

Valencia Medical & Research Center /ID# 234671

Miami, Florida, United States

Site Status

Advanced Research for Health Improvement /ID# 238253

Naples, Florida, United States

Site Status

Pediatric & Adult Research Center /ID# 234681

Orlando, Florida, United States

Site Status

Nemours Children's Hospital /ID# 234429

Orlando, Florida, United States

Site Status

Oviedo Medical Research /ID# 234692

Oviedo, Florida, United States

Site Status

Treken Primary Care /ID# 234645

Atlanta, Georgia, United States

Site Status

Children's Healthcare of Atlanta - Ferry Rd /ID# 237005

Atlanta, Georgia, United States

Site Status

Children's Ctr Digestive, US /ID# 237574

Atlanta, Georgia, United States

Site Status

River Birch Research Alliance /ID# 237963

Blue Ridge, Georgia, United States

Site Status

Clinical Research Institute /ID# 234702

Stockbridge, Georgia, United States

Site Status

Sleep Care Research Institute d/b/a Clinical Research Institute /ID# 236342

Stockbridge, Georgia, United States

Site Status

KU Wichita Center for Clinical Research /ID# 234500

Wichita, Kansas, United States

Site Status

Michael W. Simon, MD, PSC /ID# 236516

Lexington, Kentucky, United States

Site Status

Virgo Carter Pediatrics /ID# 234518

Silver Spring, Maryland, United States

Site Status

MNGI Digestive Health, P. A. /ID# 234437

Minneapolis, Minnesota, United States

Site Status

GI associates and Endoscopy Ce /ID# 237969

Flowood, Mississippi, United States

Site Status

David M. Headley, MD, P.A. /ID# 238216

Port Gibson, Mississippi, United States

Site Status

Private Practice - Dr. Craig Spiegel /ID# 234545

Bridgeton, Missouri, United States

Site Status

Medclinical Research Partners LLC/ Foundation Pediatrics /ID# 234566

East Orange, New Jersey, United States

Site Status

University of New Mexico /ID# 236983

Albuquerque, New Mexico, United States

Site Status

Columbia University Irving Medical Center /ID# 235686

New York, New York, United States

Site Status

Advantage Clinical Trials /ID# 237932

The Bronx, New York, United States

Site Status

East Carolina University - Brody School of Medicine /ID# 237509

Greenville, North Carolina, United States

Site Status

PMG Research of Piedmont Healthcare-Statesville /ID# 238257

Statesville, North Carolina, United States

Site Status

Univ Oklahoma HSC /ID# 237546

Oklahoma City, Oklahoma, United States

Site Status

IPS Research Company /ID# 237669

Oklahoma City, Oklahoma, United States

Site Status

Frontier Clinical Research, LLC - Scottdale /ID# 238022

Scottdale, Pennsylvania, United States

Site Status

Duplicate_Frontier Clinical Research /ID# 237923

Smithfield, Pennsylvania, United States

Site Status

Rhode Island Hospital /ID# 237861

Providence, Rhode Island, United States

Site Status

Coastal Pediatric Research - West Ashley B /ID# 234678

Charleston, South Carolina, United States

Site Status

Coastal Pediatric Research - Summerville /ID# 234674

Summerville, South Carolina, United States

Site Status

The Jackson Clinic, PA /ID# 236772

Jackson, Tennessee, United States

Site Status

Accellacare of Knoxville /ID# 234462

Jefferson City, Tennessee, United States

Site Status

Cook Children's Med. Center /ID# 237536

Fort Worth, Texas, United States

Site Status

Valley Institute of Research /ID# 234475

Harlingen, Texas, United States

Site Status

Vilo Research Group Inc /ID# 238228

Houston, Texas, United States

Site Status

Cullen Research /ID# 234482

Houston, Texas, United States

Site Status

Pioneer Research Solutions - Houston /ID# 236935

Houston, Texas, United States

Site Status

AIM Trials /ID# 236364

Plano, Texas, United States

Site Status

Sun Research Institute /ID# 236932

San Antonio, Texas, United States

Site Status

ClinPoint Trials /ID# 236615

Waxahachie, Texas, United States

Site Status

Duplicate_Chrysalis Clinical Research /ID# 234515

St. George, Utah, United States

Site Status

Office of Maria Ona /ID# 234539

Franklin, Virginia, United States

Site Status

Health Research of Hampton Roads, Inc. (HRHR) /ID# 237252

Newport News, Virginia, United States

Site Status

Clinical Research Partners, LLC /ID# 237158

Richmond, Virginia, United States

Site Status

Duplicate_Multicare Institute for Research and Innovation /ID# 236979

Tacoma, Washington, United States

Site Status

London Health Sciences Center- University Hospital /ID# 234309

London, Ontario, Canada

Site Status

Bluewater Clinical Research Group Inc /ID# 234618

Sarnia, Ontario, Canada

Site Status

Stouffville Medical Centre /ID# 234619

Stouffville, Ontario, Canada

Site Status

Hadassah Hebrew University Hospital - Ein Kerem /ID# 234735

Jerusalem, Jerusalem, Israel

Site Status

The Baruch Padeh Medical Center Poriya /ID# 234768

Tiberias, Northern District, Israel

Site Status

The Chaim Sheba Medical Center /ID# 236760

Ramat Gan, Tel Aviv, Israel

Site Status

Duplicate_Academisch Medisch Centrum /ID# 237116

Amsterdam, North Holland, Netherlands

Site Status

Countries

Review the countries where the study has at least one active or historical site.

United States Canada Israel Netherlands

Provided Documents

Download supplemental materials such as informed consent forms, study protocols, or participant manuals.

Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Other Identifiers

Review additional registry numbers or institutional identifiers associated with this trial.

2019-001955-38

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

LIN-MD-66

Identifier Type: -

Identifier Source: org_study_id

More Related Trials

Additional clinical trials that may be relevant based on similarity analysis.

Long Term Safety Study of Plecanatide
NCT02706483 COMPLETED PHASE3