Parenting Skills Intervention in Improving Medication Adherence in Pediatric Cancer Patients

NCT ID: NCT03895918

Last Updated: 2021-09-16

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

9 participants

Study Classification

INTERVENTIONAL

Study Start Date

2019-01-03

Study Completion Date

2020-11-25

Brief Summary

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This trial studies how well a parenting skills intervention works in improving medication adherence in pediatric cancer patients. The parenting skills intervention provides support and skills training to parents who administer medicine daily to their child and may improve the childs taking of medications correctly as prescribed by the doctor. Ultimately, this may improve treatment outcomes, among children who are experiencing an illness.

Detailed Description

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PRIMARY OBJECTIVES:

I. To pilot test a novel parenting intervention. II. To examine the feasibility and preliminary efficacy of the parenting intervention on child medication adherence among children who are experiencing an illness.

OUTLINE: Participants with poor medication adherence are randomized to 1 of 3 groups.

EARLY GROUP: Participants continue medication adherence monitoring over 1 week and then receive parental skills intervention sessions consisting of 4 integrated components: creating consistent medication routines, education in child management strategies, strategies for helping children adhere to medication, and training in specific parental behavioral techniques over 30 minutes weekly for 4 weeks.

DELAYED GROUP: Participants continue medication adherence monitoring over 2 weeks and then receive parental skills intervention sessions consisting of 4 integrated components: creating consistent medication routines, education in child management strategies, strategies for helping children adhere to medication, and training in specific parental behavioral techniques over 30 minutes weekly for 4 weeks.

LATE GROUP: Participants continue medication adherence monitoring over 3 weeks and then receive parental skills intervention sessions consisting of 4 integrated components: creating consistent medication routines, education in child management strategies, strategies for helping children adhere to medication, and training in specific parental behavioral techniques over 30 minutes weekly for 4 weeks.

Conditions

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Guardian Hematologic and Lymphocytic Disorder Malignant Neoplasm Parent

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Delayed Group (delayed parental skills)

Participants continue medication adherence monitoring over 2 weeks and then receive parental skills intervention sessions consisting of 4 integrated components: creating consistent medication routines, education in child management strategies, strategies for helping children adhere to medication, and training in specific parental behavioral techniques over 30 minutes weekly for 4 weeks.

Group Type EXPERIMENTAL

Educational Activity

Intervention Type OTHER

Undergo parenting skills intervention

Patient Monitoring

Intervention Type PROCEDURE

Undergo medication adherence monitoring

Questionnaire Administration

Intervention Type OTHER

Ancillary studies

Early Group (early parental skills)

Participants continue medication adherence monitoring over 1 week and then receive parental skills intervention sessions consisting of 4 integrated components: creating consistent medication routines, education in child management strategies, strategies for helping children adhere to medication, and training in specific parental behavioral techniques over 30 minutes weekly for 4 weeks.

Group Type EXPERIMENTAL

Educational Activity

Intervention Type OTHER

Undergo parenting skills intervention

Patient Monitoring

Intervention Type PROCEDURE

Undergo medication adherence monitoring

Questionnaire Administration

Intervention Type OTHER

Ancillary studies

Late Group (late parental skills)

Participants continue medication adherence monitoring over 3 weeks and then receive parental skills intervention sessions consisting of 4 integrated components: creating consistent medication routines, education in child management strategies, strategies for helping children adhere to medication, and training in specific parental behavioral techniques over 30 minutes weekly for 4 weeks.

Group Type EXPERIMENTAL

Educational Activity

Intervention Type OTHER

Undergo parenting skills intervention

Patient Monitoring

Intervention Type PROCEDURE

Undergo medication adherence monitoring

Questionnaire Administration

Intervention Type OTHER

Ancillary studies

Interventions

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Educational Activity

Undergo parenting skills intervention

Intervention Type OTHER

Patient Monitoring

Undergo medication adherence monitoring

Intervention Type PROCEDURE

Questionnaire Administration

Ancillary studies

Intervention Type OTHER

Other Intervention Names

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monitor

Eligibility Criteria

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Inclusion Criteria

* Be a parent of a child (2 to 10 years old) with any hematology or oncology diagnosis who is receiving treatment at Roswell Park Comprehensive Cancer Center. We define parents as biological parents, adoptive parents, foster parents, stepparents, and legal guardians
* Parent must have primary medication responsibility
* The child's treatment must include home-based daily oral medication
* Parent must have verbal English fluency
* Participant or legal representative must understand the investigational nature of this study and sign an Independent Ethics Committee/Institutional Review Board approved written informed consent form prior to receiving any study related procedure

Exclusion Criteria

* Be a parent of a pediatric patient with any hematology or oncology diagnosis who is receiving treatment at Roswell Park and is \< 2 or \> 10 years old
* Parent does not have primary medication responsibility
* Child's treatment does not include home-based daily oral medication
* Parent does not have verbal English fluency
* If unable to consent or a prisoner
* Unwilling or unable to follow protocol requirements
* Any condition which in the investigator?s opinion deems the participant an unsuitable candidate to receive study intervention
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Roswell Park Cancer Institute

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Elizabeth Bouchard

Role: PRINCIPAL_INVESTIGATOR

Roswell Park Cancer Institute

Locations

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Roswell Park Cancer Institute

Buffalo, New York, United States

Site Status

Countries

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United States

Other Identifiers

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NCI-2019-01554

Identifier Type: REGISTRY

Identifier Source: secondary_id

I 77618

Identifier Type: OTHER

Identifier Source: secondary_id

I 77618

Identifier Type: -

Identifier Source: org_study_id

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