Therapeutic Education Using an Internet Application in Hereditary Ichthyosis
NCT ID: NCT03641261
Last Updated: 2024-04-12
Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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COMPLETED
NA
42 participants
INTERVENTIONAL
2018-10-29
2023-02-21
Brief Summary
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Detailed Description
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Conditions
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Study Design
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NA
SINGLE_GROUP
SUPPORTIVE_CARE
NONE
Study Groups
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Therapeutic Patient Education program
All included patients will follow a Therapeutic Patient Education program dedicated to the hereditary ichthyosis and using a web application, WebIchtyose
Therapeutic patient education program
WebIchtyose is a specific therapeutic patient education program for patients with hereditary Ichthyosis targeting the problems of each patient by means of a personalized follow-up and a constant interaction between the patient and the educational team
Interventions
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Therapeutic patient education program
WebIchtyose is a specific therapeutic patient education program for patients with hereditary Ichthyosis targeting the problems of each patient by means of a personalized follow-up and a constant interaction between the patient and the educational team
Other Intervention Names
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Eligibility Criteria
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Inclusion Criteria
* Who has given his informed consent form
* Who is affiliated to a social security system
Exclusion Criteria
* Unable to connect or use a computer tool
* Impossibility to be present at the only face-to-face session
* Patient who is not available for the collective educational session
* Patient with little or no motivation to follow a therapeutic patient education program (motivation evaluated by the educational team by phone call before inclusion)
* Patient not mastering the French language
* Person under legal protection (guardianship, curators or safeguard of justice)
15 Years
60 Years
ALL
No
Sponsors
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University Hospital, Toulouse
OTHER
Responsible Party
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Principal Investigators
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Juliette Mazereeuw-Hautier, MD
Role: PRINCIPAL_INVESTIGATOR
University Hospital, Toulouse
Locations
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CHU Toulouse, Hôpital Larrey
Toulouse, , France
Countries
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Other Identifiers
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RC31/16/8765
Identifier Type: -
Identifier Source: org_study_id
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