Acquired Methemoglobinemia Observational Registry

NCT ID: NCT03542760

Last Updated: 2023-04-12

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

24 participants

Study Classification

OBSERVATIONAL

Study Start Date

2018-05-31

Study Completion Date

2021-08-31

Brief Summary

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This prospective, observational registry aims to collect real-world data regarding the safety and efficacy of ProvayBlue® (methylene blue 0.5%) used according to normal standard of care for the treatment of acquired methemoglobinemia. Methylene blue has been used for decades as a rescue medication for the treatment of methemoglobinemia, a rare and potentially life-threatening condition in which elevated levels of methemoglobin impede the delivery of oxygen from blood to body tissues. However, consistent prospective data about the safety and efficacy of this medication are sparse, simply because of the rarity of the disorder. ProvayBlue® received accelerated FDA approval for treatment of acquired methemoglobinemia in 2016. This large, prospective, multi-center observational registry has been initiated to gain more information on the use of methylene blue in the treatment of acquired methemoglobinemia.

Detailed Description

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Conditions

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Methemoglobinemia, Acquired Methemoglobinemia

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

PROSPECTIVE

Study Groups

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Primary Treated Group

Subjects who are administered methylene blue for treatment of acquired methemoglobinemia that is symptomatic (eg, exhibiting sleepiness, cyanosis, dizziness, etc) or with measured methemoglobin levels \> 30%.

Methylene Blue

Intervention Type DRUG

Administration of methylene blue as per the treating physician's diagnosis and the acute care facility's standard of care

Secondary Treated Group

Subjects who are administered methylene blue for treatment of acquired methemoglobinemia with measured methemoglobin levels ≤ 30 and lack of clinical symptoms

Methylene Blue

Intervention Type DRUG

Administration of methylene blue as per the treating physician's diagnosis and the acute care facility's standard of care

Interventions

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Methylene Blue

Administration of methylene blue as per the treating physician's diagnosis and the acute care facility's standard of care

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Adult or pediatric patients diagnosed with acquired methemoglobinemia and receiving treatment with ProvayBlue® (methylene blue 0.5%) as per the treating physician's diagnosis and the acute care facility's standard of care
* Those acquired methemoglobinemia patients whose diagnosis is aided by measurement of methemoglobin and whose ongoing treatment is guided by re-measurement of methemoglobin \~1h post-treatment with ProvayBlue® in accordance with the US FDA Label prescribing information

Exclusion Criteria

* Refusal of consent (in those subjects approached for consent where required by local institutional procedures)
* Treatment of methemoglobinemia with another methylene blue product
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Prove pharm

INDUSTRY

Sponsor Role collaborator

Hospital Quality Foundation

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Charles V Pollack, MD

Role: PRINCIPAL_INVESTIGATOR

Hospital Quality Foundation

Locations

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Cedars Sinai

Los Angeles, California, United States

Site Status

UC Davis Health

Sacramento, California, United States

Site Status

Bridgeport Hospital

Bridgeport, Connecticut, United States

Site Status

Hartford Hospital

Hartford, Connecticut, United States

Site Status

Palmetto General

Palm Beach Gardens, Florida, United States

Site Status

Tampa General

Tampa, Florida, United States

Site Status

IU Health

Indianapolis, Indiana, United States

Site Status

University of Iowa

Iowa City, Iowa, United States

Site Status

University of Kansas Health System

Kansas City, Kansas, United States

Site Status

University of Maryland

Baltimore, Maryland, United States

Site Status

Partners Healthcare; Brigham and Women's

Boston, Massachusetts, United States

Site Status

UMass Memorial Medical Center

Worcester, Massachusetts, United States

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Henry Ford Health System

Detroit, Michigan, United States

Site Status

St John Medical Center

Detroit, Michigan, United States

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HealthPartners Regions

Saint Paul, Minnesota, United States

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Washington University

St Louis, Missouri, United States

Site Status

University of Nebraska

Omaha, Nebraska, United States

Site Status

Holy Name Medical Center

Teaneck, New Jersey, United States

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New York Methodist

New York, New York, United States

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Carolinas Medical Center

Charlotte, North Carolina, United States

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University of Cincinnati

Cincinnati, Ohio, United States

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University Hospitals

Cleveland, Ohio, United States

Site Status

Mercy Health

Youngstown, Ohio, United States

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Oregon Health & Sciences University

Portland, Oregon, United States

Site Status

Einstein Medical Center

Philadelphia, Pennsylvania, United States

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University of Pittsburgh

Pittsburgh, Pennsylvania, United States

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University of Tennessee Health Science Center

Memphis, Tennessee, United States

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UT Southwestern

Dallas, Texas, United States

Site Status

Baylor College of Medicine

Houston, Texas, United States

Site Status

Houston Methodist

Houston, Texas, United States

Site Status

University of Washington

Seattle, Washington, United States

Site Status

Medical College of Wisconsin

Milwaukee, Wisconsin, United States

Site Status

Countries

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United States

Other Identifiers

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HQF-METHB-2018001

Identifier Type: -

Identifier Source: org_study_id

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