Turkish Version of The Measure of Processes of Care (MPOC)

NCT ID: NCT03508583

Last Updated: 2018-04-27

Basic Information

• Recruitment Status: UNKNOWN
• Total Enrollment: 300 participants
• Study Classification: OBSERVATIONAL
• Study Start Date: 2018-05-01
• Study Completion Date: 2019-08-01

Brief Summary

Family-centred care (FCS) is considered the best practice in providing rehabilitation to children with disabilities and special needs. Family-centred care has been described as a partnership approach to healthcare decision making. As a philosophy of healthcare, today many multidisciplinary healthcare facilities have organized their services according to a family-centred approach. TheMeasure of Processes of Care (MPOC) is the most widely used instrument to assess parents' self-reported experiences of family-centred behaviours of rehabilitation services providers. The aim of this study is to translate the scale to Turkish and to determine validity and reliability of The Measure of Processes of Care (MPOC 56- 20- SP)

Detailed Description

The MPOC is a questionnaire designed to find out what parents of children with disabilities think of the services they and their children receive and how these services affect their psychosocial outcome. MPOC exists in two versions: the 56-item version was published in 1995 and the MPOC-20 in 2004. The20-item version was developed due to disadvantage of the longer version, because its completion can be very time consuming and the consequences of low respondent percentages . King and colleagues assert that the56-item MPOC is useful for research, while the MPOC-20 is better applied as a measure of parents' perceptions of the elements of FCS. The 20 items in the short version are distributed among the same five scales as in the MPOC-56. This ensures that the MPOC-56/20 captures aspects of care and services that have most importance for parents. The items are included in one of the following five scales:

1 Enabling and partnership; 2 Providing general information; 3 Providing specific information about the child; 4 Coordinated and comprehensive care; 5 Respectful and supportive care.

The Measure of Processes of Care for Service Providers (MPOC-SP) was developed to assess FCS from the perspective of professionals. The MPOC-SP has also been used in many different studies with different populations.

Conditions

Cerebral Palsy; Muscular Dystrophies; Autism Spectrum Disorder; Traumatic Brain Injury; Down Syndrome; Disability, Developmental; Disability Physical

Study Design

• Observational Model Type: CASE_ONLY
• Study Time Perspective: PROSPECTIVE

Study Groups

Participation

Parents will complete the The Measure of Processes of Care 56- 20 (MPOC 56-20) questionary

Service providers will complete The Measure of Processes of Care for Service Providers (MPOC-SP)

Participation

Intervention Type: OTHER

The mpoc 56 and mpoc 20 will be field-tested with a sample of 300 parents of children with disabilities residing in the Turkey.

Professionals working with children with disabilities will be assessed with MPOC SP questionnaires

Interventions

Participation

The mpoc 56 and mpoc 20 will be field-tested with a sample of 300 parents of children with disabilities residing in the Turkey.

Professionals working with children with disabilities will be assessed with MPOC SP questionnaires

Intervention Type: OTHER

Eligibility Criteria

Inclusion Criteria

• To be diagnosed as disabilities and special needs
• Pediatric service providers who agree to participate to study

Exclusion Criteria

• Children whose family didn't accept to participate to study

• Minimum Eligible Age: 5 Years
• Maximum Eligible Age: 25 Years
• Eligible Sex: ALL
• Accepts Healthy Volunteers: No

Sponsors

Hacettepe University

OTHER

Sponsor Role: lead

Responsible Party

Duygu Turker

Principal Investigator

Responsibility Role: PRINCIPAL_INVESTIGATOR

Principal Investigators

Mintaze Kerem Günel, prof.dr

Role: STUDY_CHAIR

Hacettepe University

Central Contacts

Duygu Türker, PhD, pt

Role: CONTACT

duyguturker@yahoo.com

+905304602723

Cemil Özal, MSc, pt

Role: CONTACT

cemilozal@hotmail.com

+905376054373

References

Dyke P, Buttigieg P, Blackmore AM, Ghose A. Use of the measure of process of care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child Care Health Dev. 2006 Mar;32(2):167-76. doi: 10.1111/j.1365-2214.2006.00604.x.

Reference Type: BACKGROUND

PMID: 16441851 (View on PubMed)

Hagen AK, Bjorbaekmo WS. Parents evaluation of the processes of care in child rehabilitation: a reliability study of the Norwegian translation of MPOC-20. Child Care Health Dev. 2012 Jan;38(1):48-53. doi: 10.1111/j.1365-2214.2010.01192.x. Epub 2010 Dec 28.

Reference Type: BACKGROUND

PMID: 21198778 (View on PubMed)

Bjerre IM, Larsson M, Franzon AM, Nilsson MS, Stromberg G, Westbom LM. Measure of Processes of Care (MPOC) applied to measure parent's perception of the habilitation process in Sweden. Child Care Health Dev. 2004 Mar;30(2):123-30. doi: 10.1111/j.1365-2214.2003.00403.x.

Reference Type: BACKGROUND

PMID: 14961865 (View on PubMed)

Other Identifiers

46418926

Identifier Type: -

Identifier Source: org_study_id