Tysabri Observational Cohort Study - Multiple Sclerosis (MS) Registries

NCT ID: NCT03399981

Last Updated: 2024-03-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

80327 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-06-01

Study Completion Date

2023-12-31

Brief Summary

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The primary purpose of this study is to estimate the incidence of progressive multifocal leukoencephalopathy (PML) among patients who switched to Tysabri from disease modifying therapies (DMTs), including newer DMTs (including fingolimod, dimethyl fumarate and teriflunomide) and the established DMTs (interferon beta and glatiramer acetate). Researchers will also look to estimate the incidence of other serious opportunistic infections among patients who switch to Tysabri from newer DMTs (including fingolimod, dimethyl fumarate and teriflunomide) and the established DMTs (interferon beta and glatiramer acetate)

Detailed Description

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This is an observational cohort study utilising all available data from the Tysabri TOUCH (TYSABRI Outreach: Unified Commitment to Health) prescribing programme (US) supplemented with data from European Union (EU) multiple sclerosis (MS) registries to estimate the risk of PML and other serious opportunistic infections (OIs) among patients on Tysabri who have switched from newer DMTs (including fingolimod, dimethyl fumarate and teriflunomide) and the established DMTs (interferon beta and glatiramer acetate).

This study will provide cumulative data from its two components: a retrospective component (data captured prior to 01 January 2016) and a prospective component (data captured, and patients followed up, from 01 January 2016 through 31 December 2023; total prospective study duration of 8 years). All patients who switched to Tysabri from another DMT through 31 December 2020 will be included. The study will continue to follow-up patients until 31 December 2023 to allow for a minimal follow-up of 3 years.

Conditions

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Progressive Multifocal Leukoencephalopathy

Study Design

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Observational Model Type

COHORT

Study Time Perspective

OTHER

Study Groups

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Tysabri (TOUCH Cohort)

Participants from the Tysabri TOUCH prescribing programme who have switched to Tysabri from newer DMTs (including fingolimod, dimethyl fumarate and teriflunomide) and the established DMTs (interferon beta and glatiramer acetate).

Tysabri

Intervention Type BIOLOGICAL

Administered as specified in the treatment arm.

Tysabri (EU MS Cohort)

Participants from the EU MS registry who have switched to Tysabri from newer DMTs (including fingolimod, dimethyl fumarate and teriflunomide) and the established DMTs (interferon beta and glatiramer acetate).

Tysabri

Intervention Type BIOLOGICAL

Administered as specified in the treatment arm.

Interventions

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Tysabri

Administered as specified in the treatment arm.

Intervention Type BIOLOGICAL

Other Intervention Names

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Natalizumab BG00002

Eligibility Criteria

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Inclusion Criteria

* All TOUCH and available EU MS registry participants who have switched from DMTs (including fingolimod, dimethyl fumarate, teriflunomide, interferon beta and glatiramer acetate) and have one or more infusion(s) of Tysabri.

Exclusion Criteria

* Not applicable
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Biogen

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Medical Director

Role: STUDY_DIRECTOR

Biogen

Locations

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Research Site

Cambridge, Massachusetts, United States

Site Status

Countries

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United States

Other Identifiers

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EUPAS19800

Identifier Type: REGISTRY

Identifier Source: secondary_id

101MS411

Identifier Type: -

Identifier Source: org_study_id

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