Prospective Cohort Study of Germline Variant Carriers with BRCA1 or BRCA2

NCT ID: NCT03296826

Last Updated: 2025-02-11

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

600 participants

Study Classification

OBSERVATIONAL

Study Start Date

2017-11-08

Study Completion Date

2032-03-31

Brief Summary

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To determine the incidence and risk factors in the development of ovarian, fallopian tube, and peritoneal cancers in Japanese women carrying Breast Cancer Susceptibility Gene (BRCA)1/2 variants.

Detailed Description

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1. To estimate the incidence of ovarian, fallopian tube and peritoneal cancers in women carrying BRCA1/2 variants.
2. To investigate risk factors concerning the development of ovarian, fallopian tube, and peritoneal cancers (loci of BRCA1/2 genetic variants, modifier genes, genetic polymorphism, hormones, and lifestyle habits.) in women carrying BRCA1/2 variants.
3. To estimate the detection rates of occult cancer based on histopathological evaluations, using risk-reducing salpingo-oophorectomy (RRSO).
4. To examine the risk-reducing effect of RRSO on the development of ovarian, fallopian tube, and peritoneal cancers in women carrying BRCA1/2 variants, and compare with those not undergoing RRSO.
5. To identify clinicopathological features in women carrying BRCA1/2 variants who had undergone RRSO.
6. To identify the appropriate interval or degree of surveillance.

Conditions

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BRCA1 And/or BRCA2 Variant Carriers Ovarian Carcinoma Fallopian Tube Carcinoma Peritoneal Carcinoma

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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BRCA1/2 variant carriers

Japanese women who carry BRCA 1/2 variants.

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

1. Women carrying BRCA1/2 variants (those with either BRCA1 or BRCA2 variants, or those carrying both variants) and women carrying a variant of uncertain significance (VUS).
2. Women who have received sufficient genetic counseling at any medical institution, prior to enrollment to the study.
3. Women who provide consent should be 20 years of age or older.
4. Women who provide written consent.

Exclusion Criteria

1. Women without ovarian or fallopian tube cancer at the time of informed consent.
2. Women previously diagnosed with ovarian, fallopian tube, or peritoneal cancer, and not excluding those with a personal history of breast cancer development.
3. Other individuals considered inappropriate for involvement in this study by the investigator.
Minimum Eligible Age

20 Years

Eligible Sex

FEMALE

Accepts Healthy Volunteers

No

Sponsors

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Okayama University

OTHER

Sponsor Role collaborator

Japanese Gynecologic Oncology Group

OTHER

Sponsor Role collaborator

Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Akira Hirasawa, M.D., Ph.D.

Role: STUDY_CHAIR

Okayama University

Locations

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Okayama University

Okayama, , Japan

Site Status RECRUITING

Countries

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Japan

Central Contacts

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Akira Hirasawa, M.D., Ph.D.

Role: CONTACT

+81-86-235-7436

Facility Contacts

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Akira Hirasawa, M.D., Ph.D.

Role: primary

Other Identifiers

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UMIN000028740

Identifier Type: REGISTRY

Identifier Source: secondary_id

JGOG3024

Identifier Type: -

Identifier Source: org_study_id

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