COPD Patient-Powered Research Network

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

75000 participants

Study Classification

OBSERVATIONAL

Study Start Date

2014-08-31

Study Completion Date

2030-01-31

Brief Summary

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The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

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Detailed Description

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Conditions

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Chronic Obstructive Pulmonary Disorder Chronic Obstructive Lung Disease Emphysema Chronic Bronchitis

Study Design

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Observational Model Type

COHORT

Study Time Perspective

OTHER

Interventions

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Patient Reported Outcomes

Intervention Type OTHER

Other Intervention Names

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Patient reported outcomes will be collected using self-report questionnaires to asses lung health status

Eligibility Criteria

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Inclusion Criteria

* 18 years or older that says yes to one of the following:
* COPD diagnosis
* Current or former smoker
* Family history of respiratory disease
* Symptomatic of respiratory disease