Neuroblastoma Maintenance Therapy Trial

NCT ID: NCT02679144

Last Updated: 2026-01-21

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

PHASE2

Total Enrollment

441 participants

Study Classification

INTERVENTIONAL

Study Start Date

2016-02-29

Study Completion Date

2033-02-28

Brief Summary

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Difluoromethylornithine (DFMO) will be used in an open label, single agent, multicenter, study for patients with neuroblastoma in remission. In this study subjects will receive 730 Days of oral difluoromethylornithine (DFMO) at a dose of 750 mg/m2 ± 250 mg/m2 BID (strata 1, 2, 3, and 4) OR 2500 mg/m2 BID (stratum 1B) on each day of study. This study will focus on the use of DFMO in high risk neuroblastoma patients that are in remission as a strategy to prevent recurrence.

Detailed Description

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Conditions

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Neuroblastoma

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

PREVENTION

Blinding Strategy

NONE

Study Groups

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Difluoromethylornithine (DFMO)

Subjects will receive 730 Days of oral difluoromethylornithine (DFMO) at a dose of 750 mg/m2 ± 250 mg/m2 BID (strata 1, 2, 3, and 4) OR 2500 mg/m2 BID (stratum 1B) on each day of study.

Group Type EXPERIMENTAL

Difluoromethylornithine (DFMO)

Intervention Type DRUG

Subjects will receive 730 Days of oral difluoromethylornithine (DFMO) at a dose of 750 mg/m2 ± 250 mg/m2 BID (strata 1, 2, 3, and 4) OR 2500 mg/m2 BID (stratum 1B) on each day of study.

Interventions

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Difluoromethylornithine (DFMO)

Subjects will receive 730 Days of oral difluoromethylornithine (DFMO) at a dose of 750 mg/m2 ± 250 mg/m2 BID (strata 1, 2, 3, and 4) OR 2500 mg/m2 BID (stratum 1B) on each day of study.

Intervention Type DRUG

Other Intervention Names

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eflornithine

Eligibility Criteria

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Inclusion Criteria

* All patients must have a pathologically confirmed diagnosis of neuroblastoma, \< 30.99 years of age and classified as high risk at the time of diagnosis. Exception: patients who are initially diagnosed as non-high-risk neuroblastoma, but later converted (and/or relapsed) to high risk neuroblastoma are also eligible.
* All patients must be in complete remission (CR):

1. No evidence of residual disease on scan
2. No evidence of disease metastatic to bone marrow.
* Specific Criteria by Stratum:

Stratum 1/1B: All patients must have completed standard upfront therapy that replicates treatment which patients who were enrolled on ANBL0032 received, including:

intensive induction chemotherapy and (if feasible) resection of primary tumor, followed by: consolidation with high-dose chemotherapy with stem cell transplant and radiotherapy, followed by: immunotherapy with Ch14.18/IL-2/GM-CSF (dinutuximab) and retinoic acid;.

All subjects on Stratum 1/B must have also met the following criteria:

• A pre-transplant disease status evaluation that met International Neuroblastoma Response Criteria (INRC) for CR (complete response), VGPR (very good partial response), or PR (partial response) for primary site, soft tissue metastases and bone metastases. Patients who meet those criteria must also meet the protocol-specified criteria for bone marrow response prior to transplant as outlined below: No more than 10% tumor involvement (based on total nucleated cellular content) seen on any specimen from a bilateral bone marrow aspirate/biopsy.

Stratum 2: Neuroblastoma that is in first complete remission following standard upfront therapy different from that described for Stratum 1.

Stratum 3: Neuroblastoma that failed to have a response of at least PR following induction chemotherapy and surgical resection of the primary tumor, but that has achieved CR following additional therapy.

Stratum 4: Patients who have achieved a second or subsequent CR following relapse(s).

* Pre-enrollment tumor survey: Prior to enrollment on this study, a determination of mandatory disease staging must be performed:

* Tumor imaging studies including
* Bilateral bone marrow aspirates and biopsy
* This disease assessment is required for eligibility and preferably should be done within 2 weeks prior to enrollment, but must be done within a maximum of 4 weeks before enrollment.
* Timing from prior therapy:

Stratum 1/1B: Enrollment no later than 60 days after completion of upfront therapy, (last dose of cis-retinoic acid) with a maximum of 6 cycles of cis-retinoic acid maintenance therapy.

Stratum 2, 3 and 4: Enrollment no later than 60 days from last dose of the most recent therapy.

* Patients must have a Lansky or Karnofsky Performance Scale score of \> 50% and patients must have a life expectancy of ≥ 2 months.
* All clinical and laboratory studies for organ functions to determine eligibility must be performed within 7 days prior to enrollment unless otherwise indicated below.
* Patients must have adequate organ functions at the time of registration:

* Hematological: Total absolute phagocyte count ≥1000/μL
* Liver: Subjects must have adequate liver function
* Renal: Adequate renal function
* Females of childbearing potential must have a negative pregnancy test. Patients of childbearing potential must agree to use an effective birth control method. Female patients who are lactating must agree to stop breast-feeding.
* Written informed consent in accordance with institutional and FDA (food and drug administration) guidelines must be obtained from all subjects (or patients' legal representative).

Exclusion Criteria

* BSA (Body Surface Area) of \<0.25 m2.
* Investigational Drugs: Subjects who are currently receiving another investigational drug are excluded from participation.
* Anti-cancer Agents: Subjects who are currently receiving other anticancer agents are not eligible. Subjects must have fully recovered from hematological and bone marrow suppression effects of prior chemotherapy.
* Infection: Subjects who have an uncontrolled infection are not eligible until the infection is judged to be well controlled in the opinion of the investigator.
* Subjects who, in the opinion of the investigator, may not be able to comply with the safety monitoring requirements of the study, or in whom compliance is likely to be suboptimal, should be excluded.
Minimum Eligible Age

1 Year

Maximum Eligible Age

30 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Beat NB Cancer Foundation

OTHER

Sponsor Role collaborator

Team Parker for Life

UNKNOWN

Sponsor Role collaborator

Giselle Sholler

OTHER

Sponsor Role lead

Responsible Party

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Giselle Sholler

Beat Childhood Cancer Chair

Responsibility Role SPONSOR_INVESTIGATOR

Principal Investigators

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Giselle Sholler, MD

Role: STUDY_CHAIR

Beat Childhood Cancer at Atrium Health

Locations

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University of Alabama, Children's of Alabama

Birmingham, Alabama, United States

Site Status RECRUITING

Arkansas Children's Hospital

Little Rock, Arkansas, United States

Site Status RECRUITING

UCSF Benioff Children's Hospital Oakland-

Oakland, California, United States

Site Status RECRUITING

Rady Children's Hospital

San Diego, California, United States

Site Status RECRUITING

Rocky Mountain Pediatric Hematology

Denver, Colorado, United States

Site Status RECRUITING

Connecticut Children's Hospital

Hartford, Connecticut, United States

Site Status RECRUITING

University of Florida

Gainesville, Florida, United States

Site Status RECRUITING

Arnold Palmer Hospital for Children

Orlando, Florida, United States

Site Status RECRUITING

All Children's Hospital Johns Hopkins Medicine

St. Petersburg, Florida, United States

Site Status RECRUITING

St. Joseph's Children's Hospital

Tampa, Florida, United States

Site Status RECRUITING

Augusta University Health

Augusta, Georgia, United States

Site Status RECRUITING

Kapiolani Medical Center for Women and Children

Honolulu, Hawaii, United States

Site Status RECRUITING

St. Lukes

Boise, Idaho, United States

Site Status COMPLETED

Advocate Aurora Research Institute

Chicago, Illinois, United States

Site Status RECRUITING

University of Iowa

Iowa City, Iowa, United States

Site Status RECRUITING

Kentucky Children's Hospital

Lexington, Kentucky, United States

Site Status RECRUITING

Norton Children's Research Institute/Affiliated with University of Louisville School of Medicine

Louisville, Kentucky, United States

Site Status RECRUITING

Tufts Medical Center

Boston, Massachusetts, United States

Site Status COMPLETED

University of Massachusetts Medical School Worcester

Worcester, Massachusetts, United States

Site Status WITHDRAWN

Helen DeVos Children's Hospital

Grand Rapids, Michigan, United States

Site Status RECRUITING

Children's Hospital and Clinics of Minnesota

Minneapolis, Minnesota, United States

Site Status RECRUITING

Children's Mercy Hospitals and Clinics

Kansas City, Missouri, United States

Site Status RECRUITING

Cardinal Glennon Children's Medical Center

St Louis, Missouri, United States

Site Status RECRUITING

Hackensack University Medical Center

Hackensack, New Jersey, United States

Site Status RECRUITING

NYU Langone Health Hassenfeld Children's Hospital

New York, New York, United States

Site Status RECRUITING

The Children's Hospital at Montefiore

The Bronx, New York, United States

Site Status COMPLETED

Levine Children's Hospital

Charlotte, North Carolina, United States

Site Status RECRUITING

Duke University

Durham, North Carolina, United States

Site Status RECRUITING

Cleveland Clinic Children's

Cleveland, Ohio, United States

Site Status RECRUITING

Nationwide Children's Hospital

Columbus, Ohio, United States

Site Status ACTIVE_NOT_RECRUITING

Randall Children's Hospital

Portland, Oregon, United States

Site Status RECRUITING

Penn State Milton S. Hershey Medical Center and Children's Hospital

Hershey, Pennsylvania, United States

Site Status RECRUITING

Hasbro Children's Hospital

Providence, Rhode Island, United States

Site Status RECRUITING

Medical University of South Carolina

Charleston, South Carolina, United States

Site Status RECRUITING

Monroe Carrell Jr. Children's Hospital at Vanderbilt

Nashville, Tennessee, United States

Site Status RECRUITING

Dell Children's Blood and Cancer Center

Austin, Texas, United States

Site Status RECRUITING

Children's Medical Center

Dallas, Texas, United States

Site Status RECRUITING

Texas Children's Cancer and Hematology Centers

Houston, Texas, United States

Site Status ACTIVE_NOT_RECRUITING

Primary Children's Hospital

Salt Lake City, Utah, United States

Site Status RECRUITING

Children's Hospital of The King's Daughters

Norfolk, Virginia, United States

Site Status RECRUITING

Virginia Commonwealth University

Richmond, Virginia, United States

Site Status RECRUITING

Medical College of Wisconsin

Milwaukee, Wisconsin, United States

Site Status RECRUITING

Alberta Children's Hospital

Calgary, Alberta, Canada

Site Status RECRUITING

CancerCare Manitoba

Winnipeg, Manitoba, Canada

Site Status RECRUITING

Janesway Children's Health and Rehabilitation Centre

St. John's, Newfoundland and Labrador, Canada

Site Status RECRUITING

UHC Sainte-Justine

Montreal, Quebec, Canada

Site Status RECRUITING

Montreal Children's Hospital

Montreal, Quebec, Canada

Site Status RECRUITING

CHUQ

Québec, Quebec, Canada

Site Status RECRUITING

CIUSSS de l'Estrie-CHUS

Sherbrooke, Quebec, Canada

Site Status RECRUITING

Countries

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United States Canada

Central Contacts

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BCC Enroll

Role: CONTACT

7175310003

Facility Contacts

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Bridget Tate

Role: primary

Susan Hall

Role: primary

Group Contact

Role: primary

Megan Saenz

Role: primary

Marlie Mounts

Role: primary

Adam Barselau

Role: primary

Ashley Bayne

Role: primary

Marie Frankos

Role: primary

Kevin Samnarine

Role: primary

Jennifer Manns, RN

Role: primary

Kimberly Gray

Role: primary

Andrea Siu, MPH

Role: primary

Jennifer Ward

Role: primary

Christopher Stamy

Role: primary

Brittany Fuller

Role: primary

Jennifer Miller

Role: primary

Mary Beth Readwin

Role: primary

Pauline Mitby

Role: primary

Nicole Harvey

Role: primary

Gina Martin

Role: primary

Kellie Daniel

Role: primary

Anna Yaffe

Role: primary

Jontyce Green

Role: primary

Morgan Low

Role: primary

Stacey Thompson

Role: primary

Aaron White

Role: primary

Penn State Clinical Trials

Role: primary

Christopher Bouressa

Role: primary

Shanta Salzar

Role: primary

Aida Constantinescu

Role: primary

Rhea Robinson

Role: primary

Rachel Nam

Role: primary

Group Contact

Role: primary

Sabrina Wigginton

Role: primary

Mary Madu

Role: primary

Ashley Hain

Role: primary

Sherry Qian

Role: primary

Krista Mueller

Role: primary

Bev Mitchell

Role: primary

Karyne Daigle

Role: primary

Dominique Lafreniere

Role: primary

Valérie-Ève Julien

Role: primary

Cassandra Leblanc Desrochers

Role: primary

References

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Duke ES, Bradford D, Sinha AK, Mishra-Kalyani PS, Lerro CC, Rivera D, Wearne E, Miller CP, Leighton J, Sabit H, Zhao H, Lane A, Scepura B, Pazdur R, Singh H, Kluetz PG, Donoghue M, Drezner N. US Food and Drug Administration Approval Summary: Eflornithine for High-Risk Neuroblastoma After Prior Multiagent, Multimodality Therapy. J Clin Oncol. 2024 Sep 1;42(25):3047-3057. doi: 10.1200/JCO.24.00546. Epub 2024 Jun 25.

Reference Type DERIVED
PMID: 38917371 (View on PubMed)

Related Links

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http://beatcc.org

Beat Childhood Cancer Consortium Website

Other Identifiers

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NMTRC014

Identifier Type: -

Identifier Source: org_study_id

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