Safety, Tolerability and Efficacy of Evolocumab (AMG 145) in Children With Inherited Elevated Low-density Lipoprotein Cholesterol (Familial Hypercholesterolemia)

NCT ID: NCT02624869

Last Updated: 2024-05-29

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

163 participants

Study Classification

INTERVENTIONAL

Study Start Date

2016-09-10

Study Completion Date

2021-06-01

Brief Summary

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The main purpose of this study is to describe the safety and tolerability of 80 weeks of subcutaneous (SC) evolocumab when added to standard of care in children 10 to 17 years of age with familial hypercholesterolemia.

Detailed Description

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Conditions

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Familial Hypercholesterolemia

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Evolocumab

Participants receive 420 mg evolocumab administered by subcutaneous injection every 4 weeks (QM) for up to 80 weeks.

Group Type EXPERIMENTAL

Evolocumab

Intervention Type BIOLOGICAL

Administered by subcutaneous injection

Interventions

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Evolocumab

Administered by subcutaneous injection

Intervention Type BIOLOGICAL

Other Intervention Names

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Repatha® AMG 145

Eligibility Criteria

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Inclusion Criteria

Heterozygous Familial Hypercholesterolemia (HeFH):

-Completed Study 20120123 (NCT02392559) while still on assigned investigational product and did not experience a treatment-related serious adverse event

Homozygous Familial Hypercholesterolemia (HoFH):

* Male or female, ≥ 10 to ≤ 17 years of age at time of enrollment
* Diagnosis of HoFH
* On a low-fat diet and receiving background lipid-lowering therapy
* Lipid-lowering therapy unchanged for ≥ 4 weeks prior to LDL-C screening; fibrates must be stable for at least 6 weeks prior to screening.
* Fasting LDL-C at screening ≥ 130 mg/dL (3.4 mmol/L)
* Fasting triglycerides ≤ 400 mg/dL (4.5 mmol/L)

Exclusion Criteria

-Currently receiving treatment in another investigational device or drug study, or less than 30 days since ending treatment on another investigational device or drug study(s); except Study 20120123

HoFH:

* Moderate to severe renal dysfunction
* Active liver disease or hepatic dysfunction,
* Creatine kinase \> 3 times the upper limit of normal (ULN) at screening
Minimum Eligible Age

10 Years

Maximum Eligible Age

17 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Amgen

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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MD

Role: STUDY_DIRECTOR

Amgen

Locations

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Research Site

The Bronx, New York, United States

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Cincinnati, Ohio, United States

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Nashville, Tennessee, United States

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Camperdown, New South Wales, Australia

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Feldkirch, , Austria

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Salzburg, , Austria

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Vienna, , Austria

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Ghent, , Belgium

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La Louvière, , Belgium

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Leuven, , Belgium

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Fortaleza, Ceará, Brazil

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Brasília, Federal District, Brazil

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São Paulo, , Brazil

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São Paulo, , Brazil

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Chicoutimi, Quebec, Canada

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Chicoutimi, Quebec, Canada

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Québec, Quebec, Canada

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Barranquilla, Atlántico, Colombia

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Bucaramanga, Santander Department, Colombia

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Svitavy, , Czechia

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Athens, , Greece

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Thessaloniki, , Greece

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Budapest, , Hungary

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Palermo, , Italy

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Pisa, , Italy

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Roma, , Italy

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Roma, , Italy

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Torino, , Italy

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Kota Bharu, Kelantan, Malaysia

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Amsterdam, , Netherlands

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Bergen, , Norway

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Oslo, , Norway

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Gdansk, , Poland

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Guimarães, , Portugal

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Saint Petersburg, , Russia

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Ljubljana, , Slovenia

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Parktown, Gauteng, South Africa

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Parow, Western Cape, South Africa

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Córdoba, Andalusia, Spain

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A Coruña, Galicia, Spain

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Lugo, Galicia, Spain

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Geneva, , Switzerland

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Reinach, , Switzerland

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Ankara, , Turkey (Türkiye)

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Izmir, , Turkey (Türkiye)

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Birmingham, , United Kingdom

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Countries

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United States Australia Austria Belgium Brazil Canada Colombia Czechia Greece Hungary Italy Malaysia Netherlands Norway Poland Portugal Russia Slovenia South Africa Spain Switzerland Turkey (Türkiye) United Kingdom

References

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Santos RD, Ruzza A, Hovingh GK, Stefanutti C, Mach F, Descamps OS, Bergeron J, Wang B, Bartuli A, Buonuomo PS, Greber-Platzer S, Luirink I, Bhatia AK, Raal FJ, Kastelein JJP, Wiegman A, Gaudet D. Paediatric patients with heterozygous familial hypercholesterolaemia treated with evolocumab for 80 weeks (HAUSER-OLE): a single-arm, multicentre, open-label extension of HAUSER-RCT. Lancet Diabetes Endocrinol. 2022 Oct;10(10):732-740. doi: 10.1016/S2213-8587(22)00221-2. Epub 2022 Sep 5.

Reference Type BACKGROUND
PMID: 36075246 (View on PubMed)

Raal FJ, Hegele RA, Ruzza A, Lopez JAG, Bhatia AK, Wu J, Wang H, Gaudet D, Wiegman A, Wang J, Santos RD. Evolocumab Treatment in Pediatric Patients With Homozygous Familial Hypercholesterolemia: Pooled Data From Three Open-Label Studies. Arterioscler Thromb Vasc Biol. 2024 May;44(5):1156-1164. doi: 10.1161/ATVBAHA.123.320268. Epub 2024 Mar 28.

Reference Type BACKGROUND
PMID: 38545781 (View on PubMed)

Santos RD, Ruzza A, Wang B, Maruff P, Schembri A, Bhatia AK, Mach F, Bergeron J, Gaudet I, St Pierre J, Kastelein JJP, Hovingh GK, Wiegman A, Gaudet D, Raal FJ. Evolocumab in paediatric heterozygous familial hypercholesterolaemia: cognitive function during 80 weeks of open-label extension treatment. Eur J Prev Cardiol. 2024 Feb 15;31(3):302-310. doi: 10.1093/eurjpc/zwad332.

Reference Type BACKGROUND
PMID: 37855448 (View on PubMed)

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Related Links

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http://www.amgentrials.com

AmgenTrials clinical trials website

Other Identifiers

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2015-002276-25

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

20120124

Identifier Type: -

Identifier Source: org_study_id

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