Sleep Study in Adult Patients With Major Sickle Cell Disease With Paroxysmal Nocturnal Events

NCT ID: NCT02539771

Last Updated: 2023-05-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

114 participants

Study Classification

INTERVENTIONAL

Study Start Date

2014-09-17

Study Completion Date

2019-04-10

Brief Summary

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Hypothesis is that the occurrence of nocturnal Vaso-Occlusive Crisis (VOC) and priapism in adults might be related to episodes of nocturnal desaturation secondary to a sleep apnea syndrome. Investigator hypothesize that chronic biological consequences of Obstructive Sleep Apnea (hypercoagulability, endothelial dysfunction ...) favour VOC and acute manifestations (nocturnal desaturation) favour nocturnal VOC.

The confirmation of this hypothesis will lead investigator to propose a systematic screening of obstructive sleep apnea (OSA) in patients with nocturnal VOC. Moreover, systematic treatment of OSA in sickle cell patients could help significantly reduce the number and severity of nocturnal VOC.

Detailed Description

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Conditions

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Sickle Cell Disease

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

PREVENTION

Blinding Strategy

NONE

Study Groups

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Nocturnal VOC

Group Type OTHER

Polysomnography and blood sample

Intervention Type OTHER

Blood collection is a specific intervention of protocol for the 3 arms. Polysomnography is a specific intervention for the arms " Diurnal VOC " and " Slightly symptomatic "

Diurnal VOC

Group Type OTHER

Polysomnography and blood sample

Intervention Type OTHER

Blood collection is a specific intervention of protocol for the 3 arms. Polysomnography is a specific intervention for the arms " Diurnal VOC " and " Slightly symptomatic "

Slightly symptomatic

Group Type OTHER

Polysomnography and blood sample

Intervention Type OTHER

Blood collection is a specific intervention of protocol for the 3 arms. Polysomnography is a specific intervention for the arms " Diurnal VOC " and " Slightly symptomatic "

Interventions

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Polysomnography and blood sample

Blood collection is a specific intervention of protocol for the 3 arms. Polysomnography is a specific intervention for the arms " Diurnal VOC " and " Slightly symptomatic "

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

Night VOC Group:

* night VOC ≥ 2 in the previous year
* written informed consent

Daytime VOC Group:

* VOC no nocturnal
* diurnal VOC ≥ 2 in the previous year
* written informed consent

Slightly symptomatic group:

* no hospitalization for VOC
* written informed consent

Exclusion Criteria

* Taking opioids
* Taking medication that alters sleep (antidepressants, benzodiazepines ...)
* Known history of sleep apnea syndrome
* Known history of serious psychiatric disorder
* Recent vaso-occlusive crisis (within 3 weeks)
* Changes in background treatment (Hydrea or exchange transfusions) in the past 12 months
* Inactive affiliation to social security
* Under legal protection
* A female who is pregnant or breastfeeding
* Prisoners
* Emergency situation
* Refusing to participate in the study
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Assistance Publique - Hôpitaux de Paris

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Anoosha Habibi, MD

Role: PRINCIPAL_INVESTIGATOR

Assistance Publique - Hôpitaux de Paris

Locations

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Henri Mondor Hospital

Créteil, , France

Site Status

Countries

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France

Other Identifiers

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P111121

Identifier Type: -

Identifier Source: org_study_id

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