A Study Of TeleGenetics Versus Usual Care To Increase Access To Cancer Genetic Services

NCT ID: NCT02517554

Last Updated: 2024-01-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

120 participants

Study Classification

OBSERVATIONAL

Study Start Date

2015-08-31

Study Completion Date

2019-11-30

Brief Summary

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The goal of this research is to evaluate the relative advantage of remote counseling over usual care in community health practices without access to genetic services. We will evaluate ability of remote telemedicine, referred to going forward as TeleGenetic services (phone or videoconferencing), to increase uptake of genetic testing and identification of genetic carriers compared to usual care. Secondly, we will evaluate the advantages of videoconferencing over telephone for delivery of remote genetic services and the short-term and longitudinal outcomes of TeleGenetic services in socio-demographically diverse patients in community practices.

Detailed Description

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Conditions

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Breast Cancer Ovarian Cancer Colorectal Cancer

Study Design

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Observational Model Type

OTHER

Study Time Perspective

OTHER

Study Groups

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Remote cancer genetic services by videoconference

Penn genetic counselors provides counseling and test results disclosure by videoconferene to patient at community site

Intervention Type BEHAVIORAL

Baseline and follow up survey

Remote cancer genetic services by telephone

Penn genetic counselor provides counseling and test results disclosure by telephone to patient at community site

Intervention Type BEHAVIORAL

Baseline and follow up surveys

Usual Care

Patient receives written information on how to find genetic services in their area

Intervention Type BEHAVIORAL

Baseline and follow up surveys

Interventions

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Penn genetic counselors provides counseling and test results disclosure by videoconferene to patient at community site

Baseline and follow up survey

Intervention Type BEHAVIORAL

Penn genetic counselor provides counseling and test results disclosure by telephone to patient at community site

Baseline and follow up surveys

Intervention Type BEHAVIORAL

Patient receives written information on how to find genetic services in their area

Baseline and follow up surveys

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

1. Eligible participants will include adult men and women (aged 18 and older) who can understand and communicate in English
2. meet National Comprehensive Cancer Network® criteria for cancer genetic testing for breast, ovarian or colorectal cancers
3. have insurance coverage for genetic testing.

Exclusion Criteria

1. Under 18 years old - professional guidelines do not recommend genetic testing for cancer risk in minors.
2. Does not speak English.
3. Does not have insurance.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

Yes

Sponsors

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Abramson Cancer Center at Penn Medicine

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Angela Bradbury, MD

Role: PRINCIPAL_INVESTIGATOR

Abramson Cancer Center at Penn Medicine

Locations

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Union Hospital

Elkton, Maryland, United States

Site Status

Cape Regional Medical Center

Cape May Court House, New Jersey, United States

Site Status

Kennedy Health

Sewell, New Jersey, United States

Site Status

Shore Cancer Center

Somers Point, New Jersey, United States

Site Status

Gettysburg Cancer Center

Gettysburg, Pennsylvania, United States

Site Status

Drexel Cancer Care at Hahnemann

Philadelphia, Pennsylvania, United States

Site Status

Abramson Cancer Center of the University of Pennsylvania

Philadelphia, Pennsylvania, United States

Site Status

Countries

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United States

Other Identifiers

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UPCC 09115

Identifier Type: -

Identifier Source: org_study_id

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