Trial Outcomes & Findings for Safety Study of Eteplirsen to Treat Early Stage Duchenne Muscular Dystrophy (NCT NCT02420379)

NCT ID: NCT02420379

Last Updated: 2021-01-25

Results Overview

Adverse Event (AE) was any untoward medical occurrence in a participant that did not necessarily have a causal relationship with the study drug. Serious adverse event (SAE) was an AE resulting in any of the following outcomes: death; Life-threatening event; required or prolonged inpatient hospitalization; persistent or significant disability/incapacity; congenital anomaly. Treatment emergent adverse events were events that developed or worsened during the on-treatment period (defined as time from first dose of study drug and up to 28 days after last dose of study drug \[up to 100 weeks\]) that were absent before treatment or that worsened relative to pre-treatment state. AEs included both serious and non-serious adverse events.

Recruitment status

COMPLETED

Study phase

PHASE2

Target enrollment

33 participants

Primary outcome timeframe

Baseline up to 100 weeks

Results posted on

2021-01-25

Participant Flow

The study was conducted at 13 sites in the United States.

A total of 33 participants were enrolled in the study treatment.

Participant milestones

Participant milestones
Measure
Eteplirsen 30 mg/kg
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Overall Study
STARTED
26
7
Overall Study
COMPLETED
25
3
Overall Study
NOT COMPLETED
1
4

Reasons for withdrawal

Reasons for withdrawal
Measure
Eteplirsen 30 mg/kg
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Overall Study
Withdrawal by Subject
0
3
Overall Study
Unable to complete due to schooling
0
1
Overall Study
Transitioned to commercial drug
1
0

Baseline Characteristics

Safety Study of Eteplirsen to Treat Early Stage Duchenne Muscular Dystrophy

Baseline characteristics by cohort

Baseline characteristics by cohort
Measure
Eteplirsen 30 mg/kg
n=26 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 Participants
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Total
n=33 Participants
Total of all reporting groups
Age, Continuous
5.0 years
STANDARD_DEVIATION 0.82 • n=5 Participants
5.0 years
STANDARD_DEVIATION 1.00 • n=7 Participants
5.0 years
STANDARD_DEVIATION 0.85 • n=5 Participants
Sex: Female, Male
Female
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Sex: Female, Male
Male
26 Participants
n=5 Participants
7 Participants
n=7 Participants
33 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Hispanic or Latino
5 Participants
n=5 Participants
0 Participants
n=7 Participants
5 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Not Hispanic or Latino
21 Participants
n=5 Participants
7 Participants
n=7 Participants
28 Participants
n=5 Participants
Ethnicity (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
American Indian or Alaska Native
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
Asian
2 Participants
n=5 Participants
1 Participants
n=7 Participants
3 Participants
n=5 Participants
Race (NIH/OMB)
Native Hawaiian or Other Pacific Islander
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Race (NIH/OMB)
Black or African American
1 Participants
n=5 Participants
0 Participants
n=7 Participants
1 Participants
n=5 Participants
Race (NIH/OMB)
White
22 Participants
n=5 Participants
6 Participants
n=7 Participants
28 Participants
n=5 Participants
Race (NIH/OMB)
More than one race
1 Participants
n=5 Participants
0 Participants
n=7 Participants
1 Participants
n=5 Participants
Race (NIH/OMB)
Unknown or Not Reported
0 Participants
n=5 Participants
0 Participants
n=7 Participants
0 Participants
n=5 Participants
Region of Enrollment
United States
26 participants
n=5 Participants
7 participants
n=7 Participants
33 participants
n=5 Participants

PRIMARY outcome

Timeframe: Baseline up to 100 weeks

Population: Full set included all participants who were enrolled in the eteplirsen group and received at least 1 dose of eteplirsen as well as all participants who were enrolled in the untreated group and had at least 1 assessment post-enrollment assessment.

Adverse Event (AE) was any untoward medical occurrence in a participant that did not necessarily have a causal relationship with the study drug. Serious adverse event (SAE) was an AE resulting in any of the following outcomes: death; Life-threatening event; required or prolonged inpatient hospitalization; persistent or significant disability/incapacity; congenital anomaly. Treatment emergent adverse events were events that developed or worsened during the on-treatment period (defined as time from first dose of study drug and up to 28 days after last dose of study drug \[up to 100 weeks\]) that were absent before treatment or that worsened relative to pre-treatment state. AEs included both serious and non-serious adverse events.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=26 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 Participants
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Number of Participants With Treatment Emergent Adverse Events (TEAEs), Serious TEAEs, and TEAEs Leading to Discontinuation
Participants with TEAEs
26 Participants
5 Participants
Number of Participants With Treatment Emergent Adverse Events (TEAEs), Serious TEAEs, and TEAEs Leading to Discontinuation
Participants with Serious TEAEs
4 Participants
0 Participants
Number of Participants With Treatment Emergent Adverse Events (TEAEs), Serious TEAEs, and TEAEs Leading to Discontinuation
Participants with TEAEs leading to discontinuation
0 Participants
0 Participants

PRIMARY outcome

Timeframe: Baseline up to 100 weeks

Population: Full set included all participants who are enrolled in the eteplirsen group and receive at least 1 dose of eteplirsen as well as all participants who are enrolled in the untreated group who have at least 1 assessment post-enrollment assessment.

Laboratory parameters included hematology, serum chemistry (SC), urinalysis and coagulation. Number of participants with at least one potentially clinically significant abnormal findings were reported as TEAEs. The Investigator determined whether abnormal assessment results were clinically significant or not clinically significant. Clinical significance was defined as any variation in assessment results that had medical relevance resulting in an alteration in medical care.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=26 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 Participants
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Number of Participants With Potentially Clinically Significant Laboratory Abnormalities Reported as TEAEs
SC: Blood creatine phosphokinase increased
1 Participants
0 Participants
Number of Participants With Potentially Clinically Significant Laboratory Abnormalities Reported as TEAEs
Hematology: Anaemia
1 Participants
0 Participants
Number of Participants With Potentially Clinically Significant Laboratory Abnormalities Reported as TEAEs
Hematology: Iron deficiency Anaemia
1 Participants
0 Participants
Number of Participants With Potentially Clinically Significant Laboratory Abnormalities Reported as TEAEs
Urinalysis: chromaturia
3 Participants
0 Participants
Number of Participants With Potentially Clinically Significant Laboratory Abnormalities Reported as TEAEs
Urinalysis: pollakiuria
1 Participants
0 Participants
Number of Participants With Potentially Clinically Significant Laboratory Abnormalities Reported as TEAEs
Coagulation: Thrombocytopenia
0 Participants
0 Participants

PRIMARY outcome

Timeframe: Baseline up to 100 weeks

Population: Full set included all participants who were enrolled in the eteplirsen group and receive at least 1 dose of eteplirsen as well as all participants who are enrolled in the untreated group who have at least 1 assessment post-enrollment assessment.

Vital sign parameters included systolic blood pressure (SBP), diastolic blood pressure (DBP), heart rate (HR), and body temperature. Number of participants with at least one potentially clinically significant abnormal vital signs findings were reported as TEAEs. The Investigator determined whether abnormal assessment results were clinically significant or not clinically significant. Clinical significance was defined as any variation in assessment results that had medical relevance resulting in an alteration in medical care.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=26 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 Participants
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Number of Participants With Potentially Clinically Significant Abnormalities in Vital Signs Reported as TEAEs
Pyrexia
11 Participants
1 Participants
Number of Participants With Potentially Clinically Significant Abnormalities in Vital Signs Reported as TEAEs
Pulse pressure increased
1 Participants
0 Participants
Number of Participants With Potentially Clinically Significant Abnormalities in Vital Signs Reported as TEAEs
Tachycardia
1 Participants
0 Participants

PRIMARY outcome

Timeframe: Baseline up to 100 weeks

Population: Full set included all participants who are enrolled in the eteplirsen group and receive at least 1 dose of eteplirsen as well as all participants who are enrolled in the untreated group who have at least 1 assessment postenrollment assessment.

Physical examinations, full and brief, were performed by the Investigator, a physician Sub-Investigator, or a Nurse Practitioner (if licensed in the state or province to perform physical examinations). Full physical examinations included examination of general appearance; head, ears, eyes, nose, and throat; heart; lungs; chest; abdomen; skin; lymph nodes; and musculoskeletal and neurological systems. Number of participants with at least one abnormal physical examination findings were reported. Abnormality in physical examinations was based on Investigator's discretion.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=26 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 Participants
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Number of Participants With at Least One Abnormal Physical Examination Finding
23 Participants
4 Participants

PRIMARY outcome

Timeframe: Baseline up to 96 weeks

Population: Full set included all participants who are enrolled in the eteplirsen group and receive at least 1 dose of eteplirsen as well as all participants who are enrolled in the untreated group who have at 1 assessment post-enrollment assessment.

Twelve-lead ECGs and Holter ECGs were performed at a consistent time of day throughout the study. Electrocardiograms were performed only after the participant was in the supine position, resting, and quiet for a minimum of 15 minutes. The ECG was manually reviewed and interpreted by medically qualified personnel. Number of participants with at least one abnormalities in ECGs were reported as TEAEs.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=26 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 Participants
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Number of Participants With Abnormalities in Electrocardiograms (ECGs) Reported as TEAEs
1 Participants
0 Participants

PRIMARY outcome

Timeframe: Baseline up to 96 weeks

Population: Full set included all participants who are enrolled in the eteplirsen group and receive at least 1 dose of eteplirsen as well as all participants who are enrolled in the untreated group who have at least 1 assessment post-enrollment assessment.

Standard, 2-dimensional ECHOs were performed at a consistent time of day throughout the study. Cardiac function events included cardiomegaly, tachycardia, and dyspnoea. The ECHO was reviewed and interpreted by medically qualified personnel. Number of participants with at least one abnormalities in ECHO were reported as TEAEs.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=26 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 Participants
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Number of Participants With Abnormalities in Echocardiograms (ECHO) Reported as TEAEs
1 Participants
0 Participants

SECONDARY outcome

Timeframe: Baseline, Week 48 and 96

Population: Muscle Biopsy Set included all participants who received at least 1 dose of eteplirsen and who had data from both baseline (pre-treatment) and Week 48 or 96 (on-treatment) muscle biopsy samples. Data for this outcome was not planned to be collected and analyzed for control group (untreated) (non-exon 51 amenable participants). Here, number of participants analyzed signifies participants who were evaluable at specific time point.

Change from baseline in dystrophin protein levels (in muscle biopsy samples) were determined by Western blot at Week 48 and 96 was reported. For each time point, 2 blocks of tissues were analyzed by Western blot, each with 2 replicates of gels to determine the dystrophin level as compared to a healthy individual (Percent Normal). The block average value from 2 replicate gels was computed. The overall average was calculated as the mean of the block average values. The overall average values were used for all analyses. In case only 1 gel was available for a block, then that value was used as the block average value.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=25 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Change From Baseline in Dystrophin Protein Levels Quantified by Western Blot at Week 48 and 96
Change at Week 48
0.102 Percent Normal Dystrophin Protein Level
Standard Deviation 0.0896
Change From Baseline in Dystrophin Protein Levels Quantified by Western Blot at Week 48 and 96
Change at Week 96
0.321 Percent Normal Dystrophin Protein Level
Standard Deviation 0.4863

SECONDARY outcome

Timeframe: Baseline, Week 48 and 96

Population: Muscle Biopsy Set included all participants who received at least 1 dose of eteplirsen and who had data from both baseline (pre-treatment) and Week 48 or 96 (on-treatment) muscle biopsy samples. Data for this outcome was not planned to be collected and analyzed for control group (untreated) (non-exon 51 amenable participants). Here, number of participants analyzed signifies participants who were evaluable at specific time point.

Change from baseline in dystrophin intensity levels (in muscle biopsy samples) was determined by Immunohistochemistry at Week 48 and 96 was reported.

Outcome measures

Outcome measures
Measure
Eteplirsen 30 mg/kg
n=25 Participants
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Change From Baseline in Dystrophin Intensity Levels Determined by Immunohistochemistry (IHC) at Week 48 and 96
Change at Week 48
0.004 Percent dystrophin positive fibers
Standard Deviation 0.0096
Change From Baseline in Dystrophin Intensity Levels Determined by Immunohistochemistry (IHC) at Week 48 and 96
Change at Week 96
0.015 Percent dystrophin positive fibers
Standard Deviation 0.0175

Adverse Events

Eteplirsen 30 mg/kg

Serious events: 4 serious events
Other events: 26 other events
Deaths: 0 deaths

Control Group (Untreated) (Non-exon 51 Amenable Participants)

Serious events: 0 serious events
Other events: 5 other events
Deaths: 0 deaths

Serious adverse events

Serious adverse events
Measure
Eteplirsen 30 mg/kg
n=26 participants at risk
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 participants at risk
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Injury, poisoning and procedural complications
Foreign body
3.8%
1/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Coxsackie viral infection
3.8%
1/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Influenza
3.8%
1/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Rhinovirus infection
3.8%
1/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Rhabdomyolysis
3.8%
1/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks

Other adverse events

Other adverse events
Measure
Eteplirsen 30 mg/kg
n=26 participants at risk
Participants with Duchenne muscular dystrophy (DMD) amenable to exon 51 skipping received eteplirsen 30 milligram per kilogram (mg/kg) intravenous (IV) infusions, once weekly, for 96 weeks.
Control Group (Untreated) (Non-exon 51 Amenable Participants)
n=7 participants at risk
Participants with DMD not amenable to exon 51 skipping were observed for 96 weeks.
Infections and infestations
Nasopharyngitis
61.5%
16/26 • Baseline up to 100 weeks
28.6%
2/7 • Baseline up to 100 weeks
Infections and infestations
Upper respiratory tract infection
42.3%
11/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Infections and infestations
Ear infection
30.8%
8/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Infections and infestations
Influenza
19.2%
5/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Otitis media
7.7%
2/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Infections and infestations
Pharyngitis streptococcal
11.5%
3/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Rhinitis
11.5%
3/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Conjunctivitis
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Gastroenteritis viral
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Staphylococcal infection
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Infections and infestations
Impetigo
0.00%
0/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Respiratory, thoracic and mediastinal disorders
Cough
88.5%
23/26 • Baseline up to 100 weeks
42.9%
3/7 • Baseline up to 100 weeks
Respiratory, thoracic and mediastinal disorders
Rhinorrhoea
50.0%
13/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Respiratory, thoracic and mediastinal disorders
Nasal congestion
38.5%
10/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Respiratory, thoracic and mediastinal disorders
Epistaxis
19.2%
5/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Respiratory, thoracic and mediastinal disorders
Oropharyngeal pain
15.4%
4/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Respiratory, thoracic and mediastinal disorders
Productive cough
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Respiratory, thoracic and mediastinal disorders
Upper respiratory tract congestion
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Gastrointestinal disorders
Vomiting
42.3%
11/26 • Baseline up to 100 weeks
28.6%
2/7 • Baseline up to 100 weeks
Gastrointestinal disorders
Diarrhoea
26.9%
7/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Gastrointestinal disorders
Abdominal pain
19.2%
5/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Gastrointestinal disorders
Abdominal pain upper
19.2%
5/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Gastrointestinal disorders
Constipation
11.5%
3/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Gastrointestinal disorders
Nausea
7.7%
2/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Gastrointestinal disorders
Dental caries
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Fall
34.6%
9/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Contusion
19.2%
5/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Procedural pain
15.4%
4/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Skin abrasion
15.4%
4/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Scratch
11.5%
3/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Head injury
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Sunburn
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Injury, poisoning and procedural complications
Ligament sprain
0.00%
0/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Pain in extremity
30.8%
8/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Arthralgia
23.1%
6/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Back pain
15.4%
4/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Muscle spasms
15.4%
4/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Muscular weakness
15.4%
4/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Musculoskeletal pain
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Musculoskeletal and connective tissue disorders
Scoliosis
0.00%
0/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Skin and subcutaneous tissue disorders
Rash
50.0%
13/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Skin and subcutaneous tissue disorders
Dermatitis contact
11.5%
3/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Skin and subcutaneous tissue disorders
Keloid scar
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Skin and subcutaneous tissue disorders
Rash pruritic
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
General disorders
Pyrexia
42.3%
11/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
General disorders
Catheter site pain
11.5%
3/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
General disorders
Catheter site bruise
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Nervous system disorders
Headache
38.5%
10/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Nervous system disorders
Migraine
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Ear and labyrinth disorders
Ear pain
26.9%
7/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Investigations
Cardiac murmur
15.4%
4/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Psychiatric disorders
Aggression
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Immune system disorders
Hypersensitivity
0.00%
0/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Renal and urinary disorders
Chromaturia
11.5%
3/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Metabolism and nutrition disorders
Decreased appetite
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Neoplasms benign, malignant and unspecified (incl cysts and polyps)
Skin papilloma
7.7%
2/26 • Baseline up to 100 weeks
0.00%
0/7 • Baseline up to 100 weeks
Surgical and medical procedures
Adenoidectomy
0.00%
0/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Surgical and medical procedures
Myringotomy
0.00%
0/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks
Surgical and medical procedures
Orchidopexy
0.00%
0/26 • Baseline up to 100 weeks
14.3%
1/7 • Baseline up to 100 weeks

Additional Information

Medical Director

Sarepta Therapeutics, Inc.

Phone: +1-888-727-3782

Results disclosure agreements

  • Principal investigator is a sponsor employee The most restrictive relevant agreement provides that the PI can only publish the study results with the approval of Sponsor.
  • Publication restrictions are in place

Restriction type: OTHER