Implementation and Evaluation of a Family-based Intervention Program for Children of Mentally Ill Parents

NCT ID: NCT02308462

Last Updated: 2020-07-20

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

400 participants

Study Classification

INTERVENTIONAL

Study Start Date

2014-11-30

Study Completion Date

2019-06-30

Brief Summary

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In order to identify psychological stress in children and adolescents of mentally ill parents as early as possible, a special intervention program (CHIMPs = Children of mentally ill parents) was developed. The study at hand will implement this intervention program at five sites in Germany and will further evaluate its effectiveness. The CHIMPs intervention is assumed to reduce children's psychopathology and enhance their health related quality of life.

Detailed Description

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The main purpose of this study is to implement the manualized family intervention CHIMPs (Children of mentally ill parents) for children and adolescents of psychiatrically ill parents aged between 3 and 19 years at the seven participating centres in regular care. The intervention aims at reducing children's psychopathology and enhancing their quality of life in a sustainable way and, moreover, aims at introducing especially remarkable children and adolescents to an early intervention.

The study represents a prospective, randomized and controlled multicenter study (RCT), contrasting one intervention group and one control group (TAU = Treatment as usual) by measurements at baseline and after six, 12 and 18 months. Within the data collection, the perspective of the psychiatrically ill parent, the partner, each child and the therapist will be considered. Children between 3 and 9 years of age will be evaluated only by the parents and the therapist, from 10 years on, an additional self-report form will be filled out by the child. The measurement will be ruled out indirectly (for the pre-post-measurement) as well as directly (at the end of treatment).

For each endpoint, one comprehensive mixed model will be fitted to the data containing the baseline value and further relevant patient characteristics as covariates, the random group as factor and cluster (center, therapy group, family) as random effect. Missing values will be treated by direct imputation to allow an intention-to-treat analysis.

Conditions

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Schizophrenia and Disorders With Psychotic Features Mood Disorders Neurotic Disorders Personality Disorders Substance-Related Disorders

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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CHIMPs intervention

Family-Intervention

Group Type EXPERIMENTAL

CHIMPS intervention

Intervention Type BEHAVIORAL

CHIMPs intervention (Family-Intervention composed of 8 Topic-related sessions over a period of 6 month, based on the evaluated manual: a preliminary talk with the family, two sessions with the parents, one session with each child, three sessions with the family).

The sessions are semi-structured and cover the topics illness and coping, education, family relationships and trusting attachement figures, social network and support of the Family. A detailed description of the procedure is found in the Manual (Wiegand-Grefe, Halverscheid \& Plass, 2011).

Control

The long-term effectiveness of the CHIMPs intervention under conditions of practice will be examined in comparison to a control condition receiving the usual after care (Treatment as usual = TAU); this testing of effectiveness will be performed in due consideration of the health economic aspects.

The treatment as usual implies that families of the control Group receive the Treatment that is customary in regular care. Thus, these families normally don't receive any post-treatment. If, however, a member of a control group family appears to have an urgent need for treatment (every Family receives a comprehensive diagnostic investigation at the beginning of the study), the respective family will be placed in the ambulatory care system.

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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CHIMPS intervention

CHIMPs intervention (Family-Intervention composed of 8 Topic-related sessions over a period of 6 month, based on the evaluated manual: a preliminary talk with the family, two sessions with the parents, one session with each child, three sessions with the family).

The sessions are semi-structured and cover the topics illness and coping, education, family relationships and trusting attachement figures, social network and support of the Family. A detailed description of the procedure is found in the Manual (Wiegand-Grefe, Halverscheid \& Plass, 2011).

Intervention Type BEHAVIORAL

Eligibility Criteria

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Inclusion Criteria

* Family with at least one psychiatrically ill parent and at least one child between the age of 3 and 19 years
* Consent to participate in the study
* Sufficient knowledge of the German language of parents and children

Exclusion Criteria

* Severe psychiatric disorders and impairments with acute symptoms such as suicidal tendencies, massive self-injurious behaviour, acute psychotic symptoms etc., making a stationary treatment inevitable and making a ambulatory intervention appear contraindicated (These patients are placed in stationary treatment)
* Children with severe symptoms in the control group will be placed at a participating psychotherapist. Nevertheless, they stay in the control group (as TAU).
Minimum Eligible Age

3 Years

Maximum Eligible Age

19 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Universitätsklinikum Hamburg-Eppendorf

OTHER

Sponsor Role collaborator

University of Ulm

OTHER

Sponsor Role collaborator

Universitätsklinikum Leipzig

OTHER

Sponsor Role collaborator

LWL-Klinikum Gütersloh

UNKNOWN

Sponsor Role collaborator

Vitos Klinik Rheinhöhe

UNKNOWN

Sponsor Role collaborator

Charite University, Berlin, Germany

OTHER

Sponsor Role collaborator

Cantonal Hospital Winterthur, Switzerland

UNKNOWN

Sponsor Role collaborator

Silke Wiegand-Grefe, Prof. Dr.

OTHER

Sponsor Role lead

Responsible Party

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Silke Wiegand-Grefe, Prof. Dr.

Professor of clinical psychology

Responsibility Role SPONSOR_INVESTIGATOR

Principal Investigators

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Silke Wiegand-Grefe, Prof.

Role: PRINCIPAL_INVESTIGATOR

Universitätsklinikum Hamburg-Eppendorf

Locations

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Charité Campus Virchow Klinikum, Klinik für Psychiatrie, Psychosomatik und Psychotherapie des Kindes- und Jugendalters

Berlin, , Germany

Site Status

Vitos psychiatrische Ambulanz Eltville

Eltville, , Germany

Site Status

Bezirkskrankenhaus Günzburg, Klinik für Psychiatrie, Psychotherapie und Psychosomatik

Günzburg, , Germany

Site Status

LWL-Klinikum Gütersloh, Klinik für Allgemeine Psychiatrie und Psychotherapie

Gütersloh, , Germany

Site Status

Schön Klinik Hamburg Eilbek, Abteilung für Psychiatrie und Psychotherapie

Hamburg, , Germany

Site Status

University Medical Center Hamburg-Eppendorf, Clinic and Polyclinic for psychiatry and psychotherapy

Hamburg, , Germany

Site Status

Asklepios Klinikum Harburg

Harburg, , Germany

Site Status

Vitos psychiatrische Ambulanzen Idstein

Idstein, , Germany

Site Status

Universitätsklinikum Leipzig, Klinik für Psychiatrie, Psychotherapie und Psychosomatik des Kindes- und Jugendalters

Leipzig, , Germany

Site Status

Universitätsklinkum Leipzig, Klinik und Poliklinik für Psychiatrie und Psychotherapie

Leipzig, , Germany

Site Status

LWL-Klinik Paderborn, Allgemeine Psychiatrie und Psychotherapie

Paderborn, , Germany

Site Status

Klinik für Psychiatrie und Psychotherapie des Sächsischen Krankenhauses Altscherbitz

Schkeuditz, , Germany

Site Status

Vitos psychiatrische Tageskliniken Wiesbaden

Wiesbaden, , Germany

Site Status

Centre of Social Pediatrics, Dept. of Pediatrics and Adolescent Medicine

Winterthur, , Switzerland

Site Status

Countries

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Germany Switzerland

References

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Krohn L, Deneke C, Wiegand-Grefe S. [Children of depressive parents and psychiatrically inconspicuous parents in the child and adolescent psychiatry--a comparison study]. Prax Kinderpsychol Kinderpsychiatr. 2008;57(7):536-54. doi: 10.13109/prkk.2008.57.7.536. German.

Reference Type BACKGROUND
PMID: 18924530 (View on PubMed)

Pollak E, Bullinger M, Jeske J, Wiegand-Grefe S. [How do mentally ill parents evaluate their children's quality of life? Associations with the parent's illness and family functioning]. Prax Kinderpsychol Kinderpsychiatr. 2008;57(4):301-14. doi: 10.13109/prkk.2008.57.4.301. German.

Reference Type BACKGROUND
PMID: 18575057 (View on PubMed)

Pollak E, Wiegand-Grefe S, Hoger D. The Bielefeld attachment questionnaires: overview and empirical results of an alternative approach to assess attachment. Psychother Res. 2008 Mar;18(2):179-90. doi: 10.1080/10503300701376365.

Reference Type BACKGROUND
PMID: 18815965 (View on PubMed)

Wiegand-Grefe S, Geers P, Petermann F, Plass A. [Children of mentally ill parents: the impact of parental psychiatric diagnosis, comorbidity, severity and chronicity on the well-being of children]. Fortschr Neurol Psychiatr. 2011 Jan;79(1):32-40. doi: 10.1055/s-0029-1245623. Epub 2010 Nov 18. German.

Reference Type BACKGROUND
PMID: 21089005 (View on PubMed)

Jeske J, Bullinger M, Wiegand-Grefe S. Do attachement Patterns of parents with a mental illness have an Impact upon how they view the Quality of life of their children? Vulnerable Children and Youth Studies 6(1): 39-50, 2011.

Reference Type BACKGROUND

Wiegand-Grefe S, Werkmeister S, Bullinger M, Plass A, Petermann F. [Health-related quality of life and social support of children with mentally ill parents: Effects of a manualized family intervention]. Kindheit und Entwicklung 21 (1): 64-73, 2012.

Reference Type BACKGROUND

Jeske J, Bullinger M, Plass A, Petermann F, Wiegand-Grefe S. [Risk factor coping with a disease: Associations between coping an health related quality of life of children with a mentally ill parent]. Zeitschrift für Psychiatrie, Psychologie und Psychotherapie 57 (3): 207-213, 2009.

Reference Type BACKGROUND

Jeske J, Bullinger M, Wiegand-Grefe S. [Families with mentally ill parents - Connections between Family functioning and health-related life quality of children]. Familiendynamik 35 (4): 338-347, 2010.

Reference Type BACKGROUND

Wiegand-Grefe S, Halverscheid S, Geers P, Petermann F, Plass A. [Children of mentally ill parents: The relationship between coping with a parental mental illness and children's mental health]. Zeitschrift für Klinische Psychologie und Psychotherapie 39 (1): 13-23, 2010.

Reference Type BACKGROUND

Wiegand-Grefe S, Jeske J, Bullinger M, Plass A, Petermann F. [Quality of life of children with psychiatrically ill parents: Relationship between characteristics of parental disorder and health-related quality of life of the children estimated by the parents]. Zeitschrift für Psychiatrie, Psychologie und Psychotherapie 58 (4): 315-322, 2010.

Reference Type BACKGROUND

Wiegand-Grefe S, Cronemeyer B, Plass A, Schulte-Markwort M, Petermann F. [Comparison of mental abnormalities in children of mentally ill parents from different points of view: Effects of a manualized family intervention]. Kindheit und Entwicklung 22 (1): 31-40, 2013.

Reference Type BACKGROUND

Wiegand-Grefe S, Cronemeyer B, Halverscheid S, Redlich A, Petermann F. [Coping strategies of psychiatrically ill parents and psychological abnormalities of their children through the focus of a manualized family intervention]. Zeitschrift für Psychiatrie, Psychologie und Psychotherapie 61 (1): 51-58, 2013.

Reference Type BACKGROUND

Waldmann T, Schaible J, Stiawa M, Becker T, Wegscheider K, Adema B, Wiegand-Grefe S, Kilian R. The cost-utility of an intervention for children and adolescents with a parent having a mental illness in the framework of the German health and social care system: a health economic evaluation of a randomized controlled trial. Child Adolesc Psychiatry Ment Health. 2023 Dec 21;17(1):141. doi: 10.1186/s13034-023-00693-w.

Reference Type DERIVED
PMID: 38129868 (View on PubMed)

Wiegand-Grefe S, Filter B, Busmann M, Kilian R, Kronmuller KT, Lambert M, Norra C, von Klitzing K, Albermann K, Winter SM, Daubmann A, Wegscheider K, Plass-Christl A. Evaluation of a Family-Based Intervention Program for Children of Mentally Ill Parents: Study Protocol for a Randomized Controlled Multicenter Trial. Front Psychiatry. 2021 Jan 20;11:561790. doi: 10.3389/fpsyt.2020.561790. eCollection 2020.

Reference Type DERIVED
PMID: 33551858 (View on PubMed)

Other Identifiers

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U1111-1162-2635

Identifier Type: OTHER

Identifier Source: secondary_id

DRKS00006806

Identifier Type: REGISTRY

Identifier Source: secondary_id

O1GY1337

Identifier Type: -

Identifier Source: org_study_id

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