An International Clinical Program for the Diagnosis and Treatment of Children With Ependymoma

NCT ID: NCT02265770

Last Updated: 2024-04-26

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

PHASE2/PHASE3

Total Enrollment

536 participants

Study Classification

INTERVENTIONAL

Study Start Date

2015-06-02

Study Completion Date

2031-08-31

Brief Summary

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The overall aim of this project is to improve the outcome of patients diagnosed with ependymoma by improving and harmonising the staging and the standard of care of this patient population and to improve the investigators understanding of the underlying biology thereby informing future treatment.

The program will evaluate new strategies for diagnosis (centralized reviews of pathology and imaging) and new therapeutic strategies in order to develop treatment recommendations.

Patients will be stratified into different treatment subgroups according to their age, the tumour location and the outcome of the initial surgery. Each subgroup will be studied in a specific randomised study to evaluate the proposed therapeutic strategies.

Stratum 1:

The aim of the stratum 1 is to evaluate the clinical impact of 16-week chemotherapy regimen with VEC-CDDP following surgical resection and conformal radiotherapy in terms of progression free survival in patients who are \> 12 months and \< 22 years at diagnosis, with completely removed intra cranial Ependymoma.

Stratum 2:

This stratum is designed as a phase II trial for patients who are \> 12 months and \< 22 years at diagnosis, with residual disease to investigate the possible activity of HD-MTX by giving to all patients the benefit of VEC chemotherapy whilst randomising half of patients to receive additional HD-MTX.

Patients will receive conformal radiotherapy (cRT). For patients who remain with a residual inoperable disease after induction chemotherapy and cRT, an 8 Gy boost of radiotherapy to the residual tumour will be delivered immediately after the end of the cRT.

Stratum 3 This stratum is designed as a phase II trial to evaluate the benefit of postoperative dose intense chemotherapy administered alone or in combination with valproate in children \<12 months of age or those not eligible to receive radiotherapy .

Detailed Description

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The Ependymoma Program is a comprehensive program to improve the accuracy of the primary diagnosis of ependymoma and explore different therapeutic strategies in children, adolescents and young adults, accordingly. This program is opened to all patients diagnosed with ependymoma below the age of 22 years.

It will include a centralised review of pre and post-operative imaging to assess the completeness of the resection.

It will also include a central review of pathology to confirm the histological diagnosis. The biological markers 1q and 6q gain, Tenascin C status, NELL2 and LAMA2, RELA-fusion and molecular subgroup by methylation array will be prospectively assessed for prospective evaluation of disease subgroups. Further biological evaluations will be coordinated within the linked BIOMECA study.

After surgery and central review of imaging and pathology, patients will be offered the opportunity to undergo second look surgery, if possible. Patients will be enrolled in one of 3 different strata according to the outcome of the initial surgical resection (residual disease vs no residual disease), their age or eligibility / suitability to receive radiotherapy. These 3 different strata correspond to 3 therapeutic strategies according to the patient status.

1. Stratum 1 is designed as a randomised phase III study for patients who have had a complete resection, with no measurable residual disease (as confirmed by centrally reviewed MRI) and are \> 12 months and \< 22 years at diagnosis. Those patients will be randomised to receive conformal radiotherapy followed by either 16 weeks of chemotherapy with VEC-CDDP, or observation.
2. Stratum 2 is designed as a randomised phase II study for patients who have inoperable measurable residual disease and who are \> 12 months and \< 22 years at diagnosis. Those patients will be randomised to two different treatment schedules of chemotherapy either with VEC or VEC+ high dose methotrexate (VEC +HD-MTX). After completion of the frontline chemotherapy, patients will be assessed for response (MRI) and will receive second look surgery when feasible. For those patients who remain unresectable with residual disease despite frontline chemotherapy and for whom second line surgery is not feasible, there will be a study of the safety of a radiotherapy boost of 8 Gy that will be administered to the residual tumour immediately after the completion of the conformal radiotherapy. Patients without evidence of residual disease after the chemotherapy and/or a second look surgery are not eligible for radiotherapy boost. All patients who have not shown progression under chemotherapy will receive, as maintenance therapy, a 16 week course of VEC -CDDP following completion of radiotherapy.
3. Stratum 3 is designed as a randomised phase II chemotherapy study in children \<12 months of age or those not eligible to receive radiotherapy. These patients will be randomised to receive a dose dense chemotherapy alternating myelosuppressive and relatively non-myelosuppressive drugs at 2 weekly intervals, with or without, the addition of the histone deacetylase inhibitor, valproate.

Registry: Patients that do not fulfil the inclusion criteria of one of the interventional strata will be enrolled and followed up via an observational study which will be analysed descriptively.

Conditions

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Childhood Ependymoma

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Stratum 1 arm A

Conformal radiotherapy followed by 16 weeks of VEC + CDDP.

Group Type EXPERIMENTAL

16 weeks of VEC + CDDP

Intervention Type DRUG

Days 1-36-71-106: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; Days 1-3-36-38-71-73-106-108: Etoposide: 100 mg/m² infused over 60 minutes; Days 1-36-71-106: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; Days 22-57-92: Cisplatin: 80 mg/m² over 4 hours + Vincristine:1.5 mg/m² (maximal dose 2 mg) i.v.

Conformal radiotherapy

Intervention Type RADIATION

Conformal radiotherapy: 59.4Gy (children \<18 months or with risk factors: 54Gy). Daily fraction 1.8 Gy, 5 fractions / week.

Stratum 1 arm B

Conformal radiotherapy.

Group Type ACTIVE_COMPARATOR

Conformal radiotherapy

Intervention Type RADIATION

Conformal radiotherapy: 59.4Gy (children \<18 months or with risk factors: 54Gy). Daily fraction 1.8 Gy, 5 fractions / week.

Stratum 2 arm A

VEC + HD-MTX followed by conformal radiotherapy +/- boost

Group Type EXPERIMENTAL

VEC + HD-MTX

Intervention Type DRUG

Days 1-22-43: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; Days 1-3-22-24-43-45: Etoposide: 100 mg/m² infused over 60 minutes; Days 1-22-43: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; Days 15-36-57: Administer methotrexate at 8000 mg/m² as a 24 hour IV infusion on days 15-36-57. 10% of the dose should be given over the first hour and 90% over the remaining 23 hours. The infusion must finish at 24 hours even if it has not been completed.

conformal radiotherapy +/- boost

Intervention Type RADIATION

Conformal radiotherapy: 59.4Gy (children \<18 months or with risk factors: 54Gy). Daily fraction 1.8 Gy, 5 fractions / week.

In case of persistent residue : Boost of radiation 8 Gy in 2 equivalent fractions

Stratum 2 arm B

VEC followed by conformal radiotherapy +/- boost

Group Type ACTIVE_COMPARATOR

VEC

Intervention Type DRUG

D1: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; D1-D3: Etoposide: 100 mg/m² infused over 60 minutes; D1: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; D22: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; D22-D24: Etoposide: 100 mg/m² infused over 60 minutes; D22: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; D43: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; D43-D45: Etoposide: 100 mg/m² infused over 60 minutes; D43: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes

conformal radiotherapy +/- boost

Intervention Type RADIATION

Conformal radiotherapy: 59.4Gy (children \<18 months or with risk factors: 54Gy). Daily fraction 1.8 Gy, 5 fractions / week.

In case of persistent residue : Boost of radiation 8 Gy in 2 equivalent fractions

Stratum 3 arm A

Chemotherapy + Valproate.

Group Type EXPERIMENTAL

Chemotherapy + Valproate

Intervention Type DRUG

Days 1-57-113-169-225-281-337: Vincristine and Carboplatin; Days 15-71-127-183-239-295-351: Vincristine and Methotrexate; Days 29-85-141-197-253-309-365: Vincristine and Cyclophosphamide; Days 43-44-99-100-154-155-211-212-267-268-323-324-379-380: Cisplatin 2-day continuous infusion.

Valproate: initial dose 30 mg/kg/day for two weeks in 2 divided doses (BID 15 mg/kg). Increasing weekly up to 40 - 50 - 60 mg/kg/day in 2 divided doses.

Stratum 3 arm B

Chemotherapy

Group Type ACTIVE_COMPARATOR

Chemotherapy

Intervention Type DRUG

Days 1-57-113-169-225-281-337: Vincristine and Carboplatin; Days 15-71-127-183-239-295-351: Vincristine and Methotrexate; Days 29-85-141-197-253-309-365: Vincristine and Cyclophosphamide; Days 43-44-99-100-154-155-211-212-267-268-323-324-379-380: Cisplatin 2-day continuous infusion.

Interventions

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16 weeks of VEC + CDDP

Days 1-36-71-106: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; Days 1-3-36-38-71-73-106-108: Etoposide: 100 mg/m² infused over 60 minutes; Days 1-36-71-106: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; Days 22-57-92: Cisplatin: 80 mg/m² over 4 hours + Vincristine:1.5 mg/m² (maximal dose 2 mg) i.v.

Intervention Type DRUG

VEC + HD-MTX

Days 1-22-43: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; Days 1-3-22-24-43-45: Etoposide: 100 mg/m² infused over 60 minutes; Days 1-22-43: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; Days 15-36-57: Administer methotrexate at 8000 mg/m² as a 24 hour IV infusion on days 15-36-57. 10% of the dose should be given over the first hour and 90% over the remaining 23 hours. The infusion must finish at 24 hours even if it has not been completed.

Intervention Type DRUG

Chemotherapy + Valproate

Days 1-57-113-169-225-281-337: Vincristine and Carboplatin; Days 15-71-127-183-239-295-351: Vincristine and Methotrexate; Days 29-85-141-197-253-309-365: Vincristine and Cyclophosphamide; Days 43-44-99-100-154-155-211-212-267-268-323-324-379-380: Cisplatin 2-day continuous infusion.

Valproate: initial dose 30 mg/kg/day for two weeks in 2 divided doses (BID 15 mg/kg). Increasing weekly up to 40 - 50 - 60 mg/kg/day in 2 divided doses.

Intervention Type DRUG

Conformal radiotherapy

Conformal radiotherapy: 59.4Gy (children \<18 months or with risk factors: 54Gy). Daily fraction 1.8 Gy, 5 fractions / week.

Intervention Type RADIATION

VEC

D1: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; D1-D3: Etoposide: 100 mg/m² infused over 60 minutes; D1: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; D22: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; D22-D24: Etoposide: 100 mg/m² infused over 60 minutes; D22: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes; D43: Vincristine: 1.5 mg/m² (maximal dose 2 mg) i.v.; D43-D45: Etoposide: 100 mg/m² infused over 60 minutes; D43: Cyclophosphamide: 3000 mg/m² in 3 divided infusions (1000 mg/m²/infusion) infused over 60 minutes

Intervention Type DRUG

Chemotherapy

Days 1-57-113-169-225-281-337: Vincristine and Carboplatin; Days 15-71-127-183-239-295-351: Vincristine and Methotrexate; Days 29-85-141-197-253-309-365: Vincristine and Cyclophosphamide; Days 43-44-99-100-154-155-211-212-267-268-323-324-379-380: Cisplatin 2-day continuous infusion.

Intervention Type DRUG

conformal radiotherapy +/- boost

Conformal radiotherapy: 59.4Gy (children \<18 months or with risk factors: 54Gy). Daily fraction 1.8 Gy, 5 fractions / week.

In case of persistent residue : Boost of radiation 8 Gy in 2 equivalent fractions

Intervention Type RADIATION

Other Intervention Names

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Vincristine Etoposide Cyclophosphamide Cisplatin Vincristine Etoposide Cyclophosphamide Methotrexate Vincristine Carboplatin Methotrexate Cyclophosphamide Cisplatin Valproate Vincristine Etoposide Cyclophosphamide Vincristine Carboplatin Methotrexate Cyclophosphamide Cisplatin

Eligibility Criteria

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Inclusion Criteria

* Age \> 12 months and \< 22 years at time of study entry
* No metastasis on spinal MRI and on CSF cytology assessments
* No previous radiotherapy
* No previous chemotherapy (except steroids)
* No medical contraindication to radiotherapy and chemotherapy
* Adequate bone marrow, liver and renal functions


• No residual measurable ependymoma based on the central neuroradiological review (R0-1-2)


• Residual non reoperable measurable ependymoma based on the central neuroradiological review (R3-4)


* Children younger than 12 months at time of entry to study or any children ineligible to receive radiotherapy due to age at diagnosis, tumour location or clinician / parent decision and according to national criteria
* Adequate bone marrow, liver and renal functions
* No previous chemotherapy and radiotherapy

Exclusion Criteria

* Tumour entity other than primary intracranial ependymoma
* Primary diagnosis predating the opening of SIOP Ependymoma II
* Patients with WHO grade I ependymoma including ependymoma variants: myxopapillary ependymomas and subependymomas,patients with spinal cord location of the primary tumour
* Participation within a different trial for treatment of ependymoma
* Contraindication to one of the IMP used according to the SmPCs
* Concurrent treatment with any anti-tumour agents
* Inability to tolerate chemotherapy
* Unable to tolerate intravenous hydration
* Pre-existing mucositis, peptic ulcer, inflammatory bowel disease ascites, or pleural effusion.

Strata 1 and 2:

* Ineligible to receive radiotherapy
* Patient for whom imaging remains RX despite all effort to clarify the MRI conclusion

Stratum 3:

* Pre-existing severe hepatic and/or renal damage
* Family history of severe epilepsy
* Presence of previously undiagnosed mitochondrial disorder detected by screening as part of trial
* Elevated blood ammonium and lactate level ≥ 1.5 x upper limit of the normal
Maximum Eligible Age

22 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Centre Leon Berard

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Pierre LEBLOND, MD

Role: PRINCIPAL_INVESTIGATOR

IHOP

Locations

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Medical University of Graz-Department of Pediatrics and Adolescent Medicine

Graz, , Austria

Site Status RECRUITING

CHR de la CITADELLE

Liège, , Belgium

Site Status RECRUITING

University Hospital Brno

Brno, , Czechia

Site Status RECRUITING

Aarhus University Hospital

Aarhus, , Denmark

Site Status RECRUITING

CHRU STRASBOURG - Hôpital de Hautepierre

Strasbourg, Bas-Rhin, France

Site Status RECRUITING

AP-HM - Hôpital d'Enfants de La Timone

Marseille, Bouches-du-Rhône, France

Site Status RECRUITING

CHU Dijon - Hôpital des Enfants

Dijon, Côte d'Or, France

Site Status RECRUITING

CHRU BESANCON - Hôpital Jean Minjoz

Besançon, Doubs, France

Site Status RECRUITING

CHRU BREST - Hôpital Morvan

Brest, Finistère, France

Site Status RECRUITING

CHU de Bordeaux-Hôpital des enfants Pellegrin

Bordeaux, Gironde, France

Site Status RECRUITING

CHU de TOULOUSE - Hôpital des Enfants

Toulouse, Haute-Garonne, France

Site Status RECRUITING

CHRU MONTPELLIER - Hôpital Arnaud de Villeneuve

Montpellier, Herault, France

Site Status RECRUITING

CHU de RENNES - Hôpital Sud

Rennes, Ille-et-Vilaine, France

Site Status RECRUITING

CHRU Tours - Hôpital Clocheville

Tours, Indre-et-Loire, France

Site Status RECRUITING

CHU GRENOBLE - Hôpital Couple-Enfant

La Tronche, Isère, France

Site Status RECRUITING

Chu Angers

Angers, Maine-et-Loire, France

Site Status RECRUITING

CHU REIMS - American Memorial Hospital

Reims, Marne, France

Site Status RECRUITING

CHU NANCY - Brabois Hôpital d'Enfants

Vandœuvre-lès-Nancy, Meurthe-et-Moselle, France

Site Status RECRUITING

Centre OSCAR LAMBRET

Lille, Nord, France

Site Status RECRUITING

CHRU Saint-Etienne

Saint-Étienne-de-Montluc, Pays de la Loire Region, France

Site Status RECRUITING

CHU Clermont- Ferrand - Hôpital Estaing

Clermont-Ferrand, Puy-de-Dôme, France

Site Status RECRUITING

Centre LEON BERARD

Lyon, Rhône, France

Site Status RECRUITING

CHU Rouen - Hôpital Charles Nicolle

Rouen, Seine Maritime, France

Site Status RECRUITING

CHU AMIENS-PICARDIE - Hôpital Nord

Amiens, Somme, France

Site Status RECRUITING

CHU POITIERS - Hôpital de la Milétrie

Poitiers, Vienne, France

Site Status RECRUITING

CHU Limoges

Limoges, , France

Site Status RECRUITING

CHU Nice - Hôpital de l'Archet 2

Nice, , France

Site Status RECRUITING

CHU La Réunion

Saint-Denis, , France

Site Status RECRUITING

Fondation Institut Curie

Paris, Île-de-France Region, France

Site Status RECRUITING

Institut Gustave Roussy

Villejuif, Île-de-France Region, France

Site Status RECRUITING

University Medical Center Hamburg-Eppendorf

Hamburg, , Germany

Site Status RECRUITING

Our Lady's Children's Hospital

Dublin, , Ireland

Site Status RECRUITING

Fondazione IRCCS Istituto Nazionale dei Tumori

Milan, , Italy

Site Status RECRUITING

Princess Maxima Center for pediatric oncology

Utrecht, , Netherlands

Site Status RECRUITING

Department of Paediatric, Haukeland University Hospital

Bergen, , Norway

Site Status RECRUITING

University Medical Center Ljubljana

Ljubljana, , Slovenia

Site Status NOT_YET_RECRUITING

Hospitales Universitarios Virgen Macarena y Virgen del Rocío Avda

Seville, , Spain

Site Status RECRUITING

Skåne University Hospital

Lund, , Sweden

Site Status NOT_YET_RECRUITING

University Children's Hospital

Zurich, , Switzerland

Site Status RECRUITING

Queen's Medical Centre

Nottingham, , United Kingdom

Site Status RECRUITING

Countries

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Austria Belgium Czechia Denmark France Germany Ireland Italy Netherlands Norway Slovenia Spain Sweden Switzerland United Kingdom

Central Contacts

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Pierre LEBLOND, MD

Role: CONTACT

+33 4 69 16 66 14

Facility Contacts

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Martin Benesch, MD

Role: primary

+43 (0) 316/385-80427

Caroline Piette

Role: primary

+32 4 225 60 97

Jaroslav Sterba, MD

Role: primary

+420 532 234 600/755

Pernille Wendtland Edslev

Role: primary

+45 78451701

Natacha Entz-Werle, MD

Role: primary

+33 3 88 12 83 96

Nicolas André, MD, PhD

Role: primary

+33 4 91 38 68 19

Claire Briandet, MD

Role: primary

03 80 29 34 14 ext. +33

Véronique Laithier, MD

Role: primary

+33 3 81 66 81 66

Liana-Stefania Carausu, MD

Role: primary

+33 2 98 22 33 81

Céline Icher, MD

Role: primary

+33 5 57 82 04 34

Anne-Isabelle Bertozzi-Salamon, MD

Role: primary

+33 5 34 55 86 13

Nicolas Sirvent, MD

Role: primary

+33 4 67 33 65 19

Charline Normand, MD

Role: primary

+33 2 99 26 58 35

Pascale Blouin, MD

Role: primary

02 47 47 49 72 ext. +33

Anne Pagnier, MD

Role: primary

+33 4 76 76 54 69

Emilie De Carli, MD

Role: primary

+33 2 41 35 38 63

Claire Pluchart, MD

Role: primary

Pascal Chastagner, MD

Role: primary

+33 3 83 15 46 37

Hélène SUDOUR, MD

Role: primary

+33 3 20 29 59 56

Sandrine Thouvenin, MD

Role: primary

04 77 82 88 08 ext. +33

Catherine Paillard, MD

Role: primary

+33 4 73 75 00 09

Pierre LEBLOND, MD

Role: primary

+33 4 69 16 66 14

Pascale Schneider, MD

Role: primary

02 32 88 81 91 ext. +33

Antoine Gourmel, MD

Role: primary

+33 3 22 08 80 00

Frédéric Millot, MD

Role: primary

+33 5 49 44 30 78

Christophe Piguet, MD

Role: primary

+33 5 55 05 68 01

Gwénaëlle DUHIL DE BENAZE, MD

Role: primary

Yves REGUERRE, MD

Role: primary

François Doz, MD

Role: primary

+33 1 44 32 46 01

Léa Guérrini-Rousseau, MD

Role: primary

+33 1 42 11 42 11

Stefan Rutkowski, MD

Role: primary

Michael Capra, MD

Role: primary

+353 1 409 6659

Maura Massimino, MD

Role: primary

+39 0223902593

Jasper van der Lugt, MD

Role: primary

+31 6 1855 96 94

Ingrid Kristin Torsvik, MD, PhD

Role: primary

+47 5597 5199

Lidija Kitanovski, MD

Role: primary

+ 386 1 522 9215 / 522 9256

Ana Fernández-Teijeiro, MD

Role: primary

+34677903132

Helena Mörse, MD

Role: primary

+46 46 178281

Nicolas Gerber, MD

Role: primary

+41 44 266 31 17

Richard Grundy, MD

Role: primary

+44 115 8230620

References

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Leblond P, Massimino M, English M, Ritzmann TA, Gandola L, Calaminus G, Thomas S, Perol D, Gautier J, Grundy RG, Frappaz D. Toward Improved Diagnosis Accuracy and Treatment of Children, Adolescents, and Young Adults With Ependymoma: The International SIOP Ependymoma II Protocol. Front Neurol. 2022 Jun 2;13:887544. doi: 10.3389/fneur.2022.887544. eCollection 2022.

Reference Type DERIVED
PMID: 35720069 (View on PubMed)

Other Identifiers

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2013-002766-39

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

VHP358

Identifier Type: OTHER

Identifier Source: secondary_id

SIOP Ependymoma II (ET-13-002)

Identifier Type: -

Identifier Source: org_study_id

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