The APPROACH Study: A Study of Volanesorsen (Formerly IONIS-APOCIIIRx) in Patients With Familial Chylomicronemia Syndrome

NCT ID: NCT02211209

Last Updated: 2022-04-13

Study Results

Results available

Outcome measurements, participant flow, baseline characteristics, and adverse events have been published for this study.

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE3

Total Enrollment

67 participants

Study Classification

INTERVENTIONAL

Study Start Date

2014-12-31

Study Completion Date

2017-03-28

Brief Summary

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The purpose of this study is to evaluate the efficacy and safety of volanesorsen given for 52 weeks in participants with Familial Chylomicronemia Syndrome

Detailed Description

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Conditions

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Familial Chylomicronemia Syndrome

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

QUADRUPLE

Participants Caregivers Investigators Outcome Assessors

Study Groups

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Placebo

Volanesorsen-matching placebo administered subcutaneously once-weekly for 52 weeks.

Group Type PLACEBO_COMPARATOR

Placebo

Intervention Type DRUG

Volanesorsen

Volanesorsen 300 mg administered subcutaneously once-weekly for 52 weeks.

Group Type EXPERIMENTAL

Volanesorsen

Intervention Type DRUG

Interventions

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Volanesorsen

Intervention Type DRUG

Placebo

Intervention Type DRUG

Other Intervention Names

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ISIS 304801 ApoC-III Approach IONIS-APOCIIIRx

Eligibility Criteria

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Inclusion Criteria

* History of chylomicronemia
* A diagnosis of Familial Chylomicronemia Syndrome (Type 1 Hyperlipoproteinemia)
* Fasting triglycerides (TG) ≥ 750 mg/dL (8.4 mmol/L) at Screening

Exclusion Criteria

* Diabetes mellitus if newly diagnosed or if HbA1c ≥ 9.0%
* Other types of severe hypertriglyceridemia
* Active pancreatitis within 4 weeks of screening
* Acute Coronary Syndrome within 6 months of screening
* Major surgery within 3 months of screening
* Treatment with Glybera therapy within 2 years of screening
* Previous treatment with IONIS-APOCIIIRx
* Have any other conditions in the opinion of the investigator which could interfere with the participant participating in or completing the study
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Akcea Therapeutics

INDUSTRY

Sponsor Role collaborator

Ionis Pharmaceuticals, Inc.

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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IONIS Investigative Site

Encinitas, California, United States

Site Status

IONIS Investigative Site

San Francisco, California, United States

Site Status

IONIS Investigative Site

Kansas City, Kansas, United States

Site Status

IONIS Investigative Site

Boston, Massachusetts, United States

Site Status

IONIS Investigative Site

New York, New York, United States

Site Status

IONIS Investigative Site

Oklahoma City, Oklahoma, United States

Site Status

IONIS Investigative Site

Portland, Oregon, United States

Site Status

IONIS Investigative Site

Philadelphia, Pennsylvania, United States

Site Status

IONIS Investigative Site

Houston, Texas, United States

Site Status

IONIS Investigative Site

Norfolk, Virginia, United States

Site Status

IONIS Investigative Site

Seattle, Washington, United States

Site Status

IONIS Investigative Site

Campinas, , Brazil

Site Status

IONIS Investigative Site

São Paulo, , Brazil

Site Status

IONIS Investigative Site

São Paulo, , Brazil

Site Status

IONIS Investigative Site

Vancouver, British Columbia, Canada

Site Status

IONIS Investigative Site

Chicoutimi, Quebec, Canada

Site Status

IONIS Investigative Site

Sainte-Foy, Quebec, Canada

Site Status

IONIS Investigative Site

Marseille, , France

Site Status

IONIS Investigative Site

Nantes, , France

Site Status

IONIS Investigative Site

Paris, , France

Site Status

IONIS Investigative Site

Berlin, , Germany

Site Status

IONIS Investigative Site

Dresden, , Germany

Site Status

IONIS Investigative Site

Szikszó, , Hungary

Site Status

IONIS Investigative Site

Safed, , Israel

Site Status

IONIS Investigative Site

Milan, , Italy

Site Status

IONIS Investigative Site

Palermo, , Italy

Site Status

IONIS Investigative Site

Rome, , Italy

Site Status

IONIS Investigative Site

Amsterdam, , Netherlands

Site Status

IONIS Investigative Site

Rotterdam, , Netherlands

Site Status

IONIS Investigative Site

Cape Town, , South Africa

Site Status

IONIS Investigative Site

Zaragoza, Aragon, Spain

Site Status

IONIS Investigative Site

A Coruña, Galicia, Spain

Site Status

IONIS Investigative Site

Barcelona, , Spain

Site Status

IONIS Investigative Site

Madrid, , Spain

Site Status

IONIS Investigative Site

Málaga, , Spain

Site Status

IONIS Investigative Site

Seville, , Spain

Site Status

IONIS Investigative Site

Birmingham, , United Kingdom

Site Status

IONIS Investigative Site

Manchester, , United Kingdom

Site Status

IONIS Investigative Site

Manchester, , United Kingdom

Site Status

IONIS Investigative Site

Peterborough, , United Kingdom

Site Status

Countries

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United States Brazil Canada France Germany Hungary Israel Italy Netherlands South Africa Spain United Kingdom

References

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Witztum JL, Gaudet D, Freedman SD, Alexander VJ, Digenio A, Williams KR, Yang Q, Hughes SG, Geary RS, Arca M, Stroes ESG, Bergeron J, Soran H, Civeira F, Hemphill L, Tsimikas S, Blom DJ, O'Dea L, Bruckert E. Volanesorsen and Triglyceride Levels in Familial Chylomicronemia Syndrome. N Engl J Med. 2019 Aug 8;381(6):531-542. doi: 10.1056/NEJMoa1715944.

Reference Type RESULT
PMID: 31390500 (View on PubMed)

Prohaska TA, Alexander VJ, Karwatowska-Prokopczuk E, Tami J, Xia S, Witztum JL, Tsimikas S. APOC3 inhibition with volanesorsen reduces hepatic steatosis in patients with severe hypertriglyceridemia. J Clin Lipidol. 2023 May-Jun;17(3):406-411. doi: 10.1016/j.jacl.2023.04.007. Epub 2023 Apr 27.

Reference Type DERIVED
PMID: 37164837 (View on PubMed)

Hegele RA, Berberich AJ, Ban MR, Wang J, Digenio A, Alexander VJ, D'Erasmo L, Arca M, Jones A, Bruckert E, Stroes ES, Bergeron J, Civeira F, Witztum JL, Gaudet D. Clinical and biochemical features of different molecular etiologies of familial chylomicronemia. J Clin Lipidol. 2018 Jul-Aug;12(4):920-927.e4. doi: 10.1016/j.jacl.2018.03.093. Epub 2018 Apr 4.

Reference Type DERIVED
PMID: 29748148 (View on PubMed)

Digenio A, Dunbar RL, Alexander VJ, Hompesch M, Morrow L, Lee RG, Graham MJ, Hughes SG, Yu R, Singleton W, Baker BF, Bhanot S, Crooke RM. Antisense-Mediated Lowering of Plasma Apolipoprotein C-III by Volanesorsen Improves Dyslipidemia and Insulin Sensitivity in Type 2 Diabetes. Diabetes Care. 2016 Aug;39(8):1408-15. doi: 10.2337/dc16-0126. Epub 2016 Jun 6.

Reference Type DERIVED
PMID: 27271183 (View on PubMed)

Other Identifiers

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2014-002421-35

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

ISIS 304801-CS6

Identifier Type: -

Identifier Source: org_study_id

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