Patient Directed Intervention to Improve the Quality of Life for Patients With Soft Tissue Sarcoma

NCT ID: NCT02204111

Last Updated: 2018-11-08

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

77 participants

Study Classification

OBSERVATIONAL

Study Start Date

2014-09-30

Study Completion Date

2017-09-30

Brief Summary

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The primary objective of the study is to compare quality of life (QoL) between patients suffering from soft tissue sarcoma, receiving a multidimensional intervention with those receiving standard treatment.

Detailed Description

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Conditions

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Soft Tissue Sarcoma

Study Design

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Observational Model Type

CASE_CONTROL

Study Time Perspective

PROSPECTIVE

Study Groups

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Control Cluster

Care as usual

No interventions assigned to this group

Treatment Cluster

Care as usual and patient directed, multidimensional treatment proposals

Intervention

Intervention Type OTHER

Individualized treatment proposals (e.g. pain therapy, physiotherapy, psychological contact) from expert consensus, based on Patient Reported Outcomes

Interventions

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Intervention

Individualized treatment proposals (e.g. pain therapy, physiotherapy, psychological contact) from expert consensus, based on Patient Reported Outcomes

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Diagnosis of advanced or metastatic soft tissue sarcoma
* Treatment with trabectedin in an in-label prescription
* Age at least 18 years (inclusive) at the first visit
* Patients with a life expectancy of at least 6 months
* The informed consent form must be signed before any study specific tests or procedures are done
* Confirmation of the subject's health insurance coverage prior to the first visit
* Ability to understand and follow study-related instructions

Exclusion Criteria

* ECOG PS \>2
* Estimated life expectancy of less than 6 months
* Patients with STS not receiving trabectedin
* Contraindications according to the local SmPC of Yondelis®
* Subject is in custody by order of an authority or a court of law
* Exclusion periods from other studies or simultaneous participation in other clinical studies
* Previous assignment to treatment during this study
* Close affiliation with the investigator (e.g. a close relative) or persons working at the study site
* Subject is an employee of GWT-TUD GmbH or Pharma Mar S.A.
* Criteria which in the opinion of the investigator preclude participation for scientific reasons, for reasons of compliance, or for reasons of the subject's safety
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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PharmaMar

INDUSTRY

Sponsor Role collaborator

GWT-TUD GmbH

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Markus Schuler, Dr. med.

Role: PRINCIPAL_INVESTIGATOR

University Hospital Carl Gustav Carus, Dresden

Locations

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University Hospital Carl Gustav Carus, MK I

Dresden, Saxony, Germany

Site Status

Charité

Berlin, , Germany

Site Status

University Hospital Koeln

Cologne, , Germany

Site Status

Hannover Medical School

Hanover, , Germany

Site Status

University Medical Centre Mannheim

Mannheim, , Germany

Site Status

University Hospital Muenster

Münster, , Germany

Site Status

University Hospital Tuebingen

Tübingen, , Germany

Site Status

Countries

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Germany

References

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Hentschel L, Richter S, Kopp HG, Kasper B, Kunitz A, Grunwald V, Kessler T, Chemnitz JM, Pelzer U, Schuler U, Freitag J, Schilling A, Hornemann B, Arndt K, Bornhauser M, Schuler MK. Quality of life and added value of a tailored palliative care intervention in patients with soft tissue sarcoma undergoing treatment with trabectedin: a multicentre, cluster-randomised trial within the German Interdisciplinary Sarcoma Group (GISG). BMJ Open. 2020 Aug 27;10(8):e035546. doi: 10.1136/bmjopen-2019-035546.

Reference Type DERIVED
PMID: 32859662 (View on PubMed)

Schuler M, Richter S, Ehninger G, Bornhauser M, Hentschel L. A cluster-randomised, controlled proof-of-concept study to explore the feasibility and effect of a patient-directed intervention on quality of life in patients with advanced soft tissue sarcoma. BMJ Open. 2017 Jun 30;7(6):e014614. doi: 10.1136/bmjopen-2016-014614.

Reference Type DERIVED
PMID: 28667207 (View on PubMed)

Other Identifiers

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YonLife-2014

Identifier Type: -

Identifier Source: org_study_id

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