Safety & Efficacy Study of ORGN001 (Formerly ALXN1101) in Pediatric Patients With MoCD Type A Currently Treated With rcPMP

NCT ID: NCT02047461

Last Updated: 2023-10-17

Study Results

Results available

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Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

PHASE2

Total Enrollment

8 participants

Study Classification

INTERVENTIONAL

Study Start Date

2014-04-30

Study Completion Date

2022-10-31

Brief Summary

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This study will include a screening period, a 6-month treatment period, followed by long-term extension period expected to last approximately 72 months.

Detailed Description

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Patients will receive daily IV infusions of ORGN001 (formerly ALXN1101) starting on Day 1. After a prescribed period, dosing will increase monthly based on defined patient safety measures. After Month 6, patients will continue daily dosing at their last tolerated dose.

Conditions

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Molybdenum Cofactor Deficiency, Type A

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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ORGN001 (formerly ALXN1101)

daily IV infusions

Group Type EXPERIMENTAL

ORGN001 (formerly ALXN1101)

Intervention Type DRUG

IV infusion

Interventions

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ORGN001 (formerly ALXN1101)

IV infusion

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

* Male or female patients with a genetically confirmed diagnosis of MoCD Type A (MOCS1 mutation)
* Currently treated with rcPMP infusions

Exclusion Criteria

\- Current or planned treatment with another investigational drug or device, with the exception rcPMP treatment through Day -1.
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Origin Biosciences

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Children's Hospital of Wisconsin

Milwaukee, Wisconsin, United States

Site Status

Monash Medical Centre

Melbourne, , Australia

Site Status

Beatrix Children's Hospital

Groningen, , Netherlands

Site Status

Unité des maladies métaboliques

Tunis, , Tunisia

Site Status

Royal Hospital for Sick Children

Glasgow, , United Kingdom

Site Status

Manchester University Hospitals NHS Foundation Trust

Manchester, , United Kingdom

Site Status

Countries

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United States Australia Netherlands Tunisia United Kingdom

Provided Documents

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Document Type: Study Protocol

View Document

Document Type: Statistical Analysis Plan

View Document

Related Links

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Other Identifiers

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2013-002701-56

Identifier Type: EUDRACT_NUMBER

Identifier Source: secondary_id

ALXN1101-MCD-201

Identifier Type: -

Identifier Source: org_study_id

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