Willebrand International Non-interventional Global Surveillance

NCT ID: NCT01949220

Last Updated: 2018-08-08

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Total Enrollment

80 participants

Study Classification

OBSERVATIONAL

Study Start Date

2014-03-31

Study Completion Date

2017-12-31

Brief Summary

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Collect information about WILLFACT or WILFACTIN in their real life clinical use and identify the therapeutic practices in an international environment.

Detailed Description

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Non-interventional, prospective, non comparative, international, multicentre study.

Conditions

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Von Willebrand Disease

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Von Willebrand factor deficient patient

Inherited von Willebrand disease

No interventions assigned to this group

Eligibility Criteria

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Inclusion Criteria

* Patients with inherited von Willebrand disease
* Patients treated with WILLFACT or WILFACTIN
* Patient or parent/legal representative who has provided written signed and dated informed consent before any data collection.

Exclusion Criteria

* Patients who usually do not keep injection log up to date, when treated.
Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Laboratoire français de Fractionnement et de Biotechnologies

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Wolfgang MIESBACH, Dr

Role: STUDY_DIRECTOR

Medizinische Klinik III, Goethe Universitat, D-60590 Frankfurt/Main (Germany)

Flora PEYVANDI, Prof.

Role: STUDY_DIRECTOR

Faculty of Medicine, University of Milan, 20122 Milan (Italy)

Locations

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Hopital des enfants Reine Fabiola

Antwerp, , Belgium

Site Status

UZA hopital universitaire

Edegem, , Belgium

Site Status

University Hospital

Brno, , Czechia

Site Status

University Central Hospital

Helsinki, , Finland

Site Status

Charité Universitätsmedizin

Berlin, , Germany

Site Status

GZRR Gerinnungszentrum Rhein/ Ruhr

Duisburg, , Germany

Site Status

Universitatsklinikum

Essen, , Germany

Site Status

Goethe Universitat

Frankfurt, , Germany

Site Status

Medizinische Hochschule Hannover

Hanover, , Germany

Site Status

Werlhof-Institut für Hämostaseologie GmbH

Hanover, , Germany

Site Status

Universitätsklinikum Schleswig-Holstein

Kiel, , Germany

Site Status

Universitatsklinikum

Mainz, , Germany

Site Status

Klinikum der Universität

München, , Germany

Site Status

Hemophilia center "LAIKO" general hospital

Athens, , Greece

Site Status

Centro di Riferimento Regionale per Emofilia e Trombosi

Catania, , Italy

Site Status

AOUC- Azienda Ospedaliero-Universitaria Carregi

Florence, , Italy

Site Status

University of Milan

Milan, , Italy

Site Status

Oslo University Hospital

Oslo, , Norway

Site Status

Countries

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Belgium Czechia Finland Germany Greece Italy Norway

Other Identifiers

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WINGS

Identifier Type: -

Identifier Source: org_study_id

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