Long-Term Quality of Life in Patients With Acute Promyelocytic Leukemia

NCT ID: NCT01910623

Last Updated: 2014-10-02

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Study Classification

OBSERVATIONAL

Study Start Date

2013-02-28

Study Completion Date

2014-07-31

Brief Summary

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This study will focus on acute promyelocytic leukemia patients who have been diagnosed more than 5 years ago and their present quality of life.

The possible late effects of cancer treatment can include several issues and, thus, there has been an increasing interest worldwide in studying the long-term impact of these in patients' life.

Detailed Description

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This study will focus on long-term survivors as defined by the America Cancer Society, that is surviving the initial diagnosis for more than 5 years. Previous research has investigated long-term Health Related Quality of Life (HRQOL) in patients with acute myeloid leukemia, however, this will be the first research conducted to investigate long-term HRQOL outcomes in patients with acute promyelocytic leukemia (APL).

The potential late effects of cancer treatment can include second malignancies or other chronic conditions affecting physical and emotional well-being. Therefore, there has been an increasing interest worldwide in evaluating the longer-term impact of cancer and its treatment. Currently large cohort of patients enjoys disease-free survival of 5 years or longer. However, a disease-free status is not synonymous with a life free of physical and psychological health related to the cancer and/or its treatment. Research shows that cancer related health concerns persist long after initial treatment and this has been shown in several cancer populations including prostate, testicular, breast cancer and lymphoma patients. Long-term cancer survivors can experience treatment-induced morbidity (e.g. cardiovascular damage due to chemotherapy or radiotherapy; infertility and second tumors), chronic disease and treatment-related symptoms, functional impairment, psychosocial problems, and practical problems.

Since the introduction of the vitamin A derivative all-trans retinoic acid (ATRA) as front-line therapy for APL, the outcome of this acute leukemia subtype has changed from the state of a most frequently fatal leukemia to the condition of a highly curable disease. The Italian cooperative group GIMEMA designed in 1993 the AIDA (Atra plus IDArubicin) trial for newly diagnosed APL. Results on over 800 patients showed a complete remission (CR) rate \> 90% and an overall survival of 76% and confirmed that the concomitant administration of ATRA and chemotherapy is more effective than the sequential administration. Following the identification of distinct prognostic categories among APL patients, the GIMEMA group designed a new trial (AIDA2000) in which the intensity of post-remission treatment was adapted to the relapse risk and 498 patients were enrolled since January 2000. The results recently published showed a CR rate \>90% with molecular remission rate after third consolidation of 98%. The new schedule allowed a Disease Free Survival (DFS) of 86% and showed that a risk-adapted strategy including ATRA for consolidation provides an outcome improvement in newly diagnosed patients. As reported by an international panel of experts, simultaneous ATRA and anthracycline chemotherapy schedules such as those used in the AIDA protocols represent the state of the art therapy for newly diagnosed APL.

Conditions

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Acute Promyelocytic Leukemia

Study Design

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Observational Model Type

CASE_CONTROL

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Patients being studied

APL patients previously enrolled in GIMEMA AIDA 0493 and AIDA 2000 studies.

Health Related Quality of Life (HRQOL) measures

Intervention Type OTHER

Interventions

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Health Related Quality of Life (HRQOL) measures

Intervention Type OTHER

Other Intervention Names

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SF-36 health survey. EORTC QOL-C30 questionnaire. FACIT-Fatigue questionnaire. Self-administered Comorbidity Questionnaire (SCQ). Multidimensional Scale of Perceived Social Support (MSPSS). MD Anderson Symptom Inventory (MDASI).

Eligibility Criteria

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Inclusion Criteria

* APL patients previously enrolled in the studies GIMEMA AIDA0493 and AIDA2000 surviving the initial diagnosis for more than 5 years and are in CR.
* Written informed consent provided.
* Adult patients at the time of registration onto this study.

Exclusion Criteria

* Concomitant major psychiatric disorders or cognitive dysfunctions that would interfere with a self-reported evaluation.
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Gruppo Italiano Malattie EMatologiche dell'Adulto

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Fabio Efficace, PhD

Role: PRINCIPAL_INVESTIGATOR

GIMEMA Foundation

Locations

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S.O.C. di Ematologia - Azienda Ospedaliera - SS. Antonio e Biagio e Cesare Arrigo

Alessandria, , Italy

Site Status

Azienda Ospedaliera - Nuovo Ospedale "Torrette"

Ancona, , Italy

Site Status

Az.Ospedaliera S.G.Moscati

Avellino, , Italy

Site Status

UO Ematologia con trapianto-Università degli Studi di Bari Aldo Moro

Bari, , Italy

Site Status

Divisione di Ematologia - Ospedali Riuniti

Bergamo, , Italy

Site Status

Istituto di Ematologia "Lorenzo e A. Seragnoli" - Università degli Studi di Bologna - Policlinico S. Orsola - Malpighi

Bologna, , Italy

Site Status

Azienda Sanitaria di Bolzano - Ospedale Centrale - Ematologia e Centro TMO

Bolzano, , Italy

Site Status

Spedali Civili - Brescia - Azienda Ospedaliera - U.O. Ematologia

Brescia, , Italy

Site Status

ASL N.8 - Ospedale "A. Businco" - Struttura Complessa di Ematologia e CTMO

Cagliari, , Italy

Site Status

Università di Catania - Cattedra di Ematologia - Ospedale "Ferrarotto"

Catania, , Italy

Site Status

Azienda Ospedaliera Pugliese Ciaccio - Presidio Ospedaliero A.Pugliese - Unità Operativa di Ematologia

Catanzaro, , Italy

Site Status

Policlinico di Careggi

Florence, , Italy

Site Status

Clinica Ematologica - DiMI - Università degli Studi di Genova

Genova, , Italy

Site Status

IRCCS_AOU San Martino-IST-Ematologia 1-Monoblocco 11°piano- lato ponente

Genova, , Italy

Site Status

Divisione di Ematologia Ospedale "Santa Maria Goretti"

Latina, , Italy

Site Status

Ospedale Niguarda " Ca Granda"

Milan, , Italy

Site Status

Centro Oncologico Modenese - Dipartimento di Oncoematologia

Modena, , Italy

Site Status

N. Osp. divisione di Ematologia "S.Gerardo dei Tintori!"

Monza, , Italy

Site Status

Azienda Ospedaliera di Rilievo Nazionale "A. Cardarelli"

Napoli, , Italy

Site Status

Azienda Ospedaliera Universitaria - Università degli Studi di Napoli "Federico II" - Facoltà di Medicina e Chirurgia

Napoli, , Italy

Site Status

Servizio Sanitario Nazionale - Azienda Ospedaliera di Rilievo Nazionale "A. Cardarelli" - Struttura Complessa di Ematologia - Div. TERE- 4° piano - Padiglione Palermo

Napoli, , Italy

Site Status

Sez. di Ematologia Clinica Ospedale San Francesco

Nuoro, , Italy

Site Status

Divisione di Ematologia con trapianto di midollo - A.U. Policlinico "Paolo Giaccone"

Palermo, , Italy

Site Status

Ospedali Riuniti "Villa Sofia-Cervello"

Palermo, , Italy

Site Status

Cattedra di Ematologia CTMO Università degli Studi di Parma

Parma, , Italy

Site Status

S.C. Ematologia - Fondazione IRCCS Policlinico S. Matteo

Pavia, , Italy

Site Status

Sezione di Ematologia ed Immunologia Clinica - Ospedale S.Maria della Misericordia

Perugia, , Italy

Site Status

U.O. Ematologia Clinica - Azienda USL di Pescara

Pescara, , Italy

Site Status

Calabria Dipartimento Emato-Oncologia A.O."Bianchi-Melacrino-Morelli"

Reggio Calabria, , Italy

Site Status

Unità Operativa Complessa di Ematologia - Arcispedale S. Maria Nuova

Reggio Emilia, , Italy

Site Status

U.O.C. Ematologia - Ospedale S.Eugenio

Roma, , Italy

Site Status

Università Cattolica del Sacro Cuore - Policlinico A. Gemelli

Roma, , Italy

Site Status

UOC Pronto Soccorso e Accettazione Ematologica - Dipartimento Biotecnologie Cellulari ed Ematologia - Università degli Studi di Roma "Sapienza"

Roma, , Italy

Site Status

Istituto di Ematologia - IRCCS Ospedale Casa Sollievo della Sofferenza

S. G. Rotondo, , Italy

Site Status

SCDO Ematologia 2 AOU S.Giovanni Battista

Torino, , Italy

Site Status

Clinica Ematologica - Policlinico Universitario

Udine, , Italy

Site Status

Università degli Studi di Verona - A. O. - Istituti Ospitalieri di Verona- Div. di Ematologia - Policlinico G.B. Rossi

Verona, , Italy

Site Status

ULSS N.6 Osp. S. Bortolo

Vicenza, , Italy

Site Status

Countries

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Italy

Other Identifiers

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QOL-APL0512

Identifier Type: -

Identifier Source: org_study_id

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