LifeCourse: A Supportive Care Approach for Patients Late in Life

NCT ID: NCT01746446

Last Updated: 2022-06-08

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

COMPLETED

Clinical Phase

NA

Total Enrollment

903 participants

Study Classification

INTERVENTIONAL

Study Start Date

2012-10-31

Study Completion Date

2017-03-31

Brief Summary

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The purpose of the study is to test a new model of care for patients with an ongoing or significant medical condition.

Detailed Description

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LifeCourse is a late life care approach that promotes whole person care through a structured approach built upon an expanded set of palliative care domains and chronic illness care practices. It includes a trained lay healthcare worker as the primary contact who follows the patient across care settings and over time. The care guide asks patients and caregivers to articulate individualized goals and take part in decision making, and uses a family-oriented approach to understand needs, leverage strengths, and empower families to effectively support the individual living with serious illness.

Conditions

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Ongoing or Significant Medical Condition

Study Design

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Allocation Method

NON_RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

SUPPORTIVE_CARE

Blinding Strategy

NONE

Study Groups

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Care team

Patients are offered the support and services of the care team.

Group Type EXPERIMENTAL

Care team

Intervention Type OTHER

Provides additional support to patients, family, and friends.

Usual Care

Patients receive usual care.

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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Care team

Provides additional support to patients, family, and friends.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Patient has an Allina Health primary or specialty provider
* Patient's medical chart indicates an on-going or significant medical condition
* LifeCourse will invite vulnerable patients to enroll, including:
* Critically ill patients
* Cognitively impaired patients
* Elderly patients, some of whom may have cognitive impairment and/or be institutionalized

Exclusion Criteria

* Patient resides in a zip code which does not lie partially within a 45 mile radius from the Allina Health Commons in Minneapolis, Minnesota.
* Patient has not visited an Allina facility, affiliate, or community partner within the last year.
* Patient is eligible for hospice.
* Patient is actively dying.
* Patient is abusive or is discharged against medical advice (AMA).
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Robina Foundation

UNKNOWN

Sponsor Role collaborator

Allina Health System

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Eric W Anderson, MD

Role: PRINCIPAL_INVESTIGATOR

Allina Health

Locations

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Augustana Health Care Center

Minneapolis, Minnesota, United States

Site Status

Abbott Northwestern Hospital

Minneapolis, Minnesota, United States

Site Status

Walker Methodist Health Center

Minneapolis, Minnesota, United States

Site Status

Countries

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United States

References

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Schellinger S, Cain CL, Shibrowski K, Elumba D, Rosenberg E. Building New Teams for Late Life Care: Lessons From LifeCourse. Am J Hosp Palliat Care. 2016 Jul;33(6):561-7. doi: 10.1177/1049909115574692. Epub 2015 Mar 5.

Reference Type BACKGROUND
PMID: 25747670 (View on PubMed)

Fernstrom KM, Shippee ND, Jones AL, Britt HR. Development and validation of a new patient experience tool in patients with serious illness. BMC Palliat Care. 2016 Dec 30;15(1):99. doi: 10.1186/s12904-016-0172-x.

Reference Type BACKGROUND
PMID: 28038669 (View on PubMed)

Anderson EW, Frazer MS, Schellinger SE. Expanding the Palliative Care Domains to Meet the Needs of a Community-Based Supportive Care Model. Am J Hosp Palliat Care. 2018 Feb;35(2):258-265. doi: 10.1177/1049909117705061. Epub 2017 Apr 20.

Reference Type BACKGROUND
PMID: 28423918 (View on PubMed)

Anderson EW, White KM. "It Has Changed My Life": An Exploration of Caregiver Experiences in Serious Illness. Am J Hosp Palliat Care. 2018 Feb;35(2):266-274. doi: 10.1177/1049909117701895. Epub 2017 Apr 16.

Reference Type BACKGROUND
PMID: 28413927 (View on PubMed)

Schellinger SE, Anderson EW, Frazer MS, Cain CL. Patient Self-Defined Goals: Essentials of Person-Centered Care for Serious Illness. Am J Hosp Palliat Care. 2018 Jan;35(1):159-165. doi: 10.1177/1049909117699600. Epub 2017 Mar 23.

Reference Type BACKGROUND
PMID: 28330379 (View on PubMed)

Shippee ND, Shippee TP, Mobley PD, Fernstrom KM, Britt HR. Effect of a Whole-Person Model of Care on Patient Experience in Patients With Complex Chronic Illness in Late Life. Am J Hosp Palliat Care. 2018 Jan;35(1):104-109. doi: 10.1177/1049909117690710. Epub 2017 Jan 29.

Reference Type BACKGROUND
PMID: 28133973 (View on PubMed)

Cain CL, Taborda-Whitt C, Frazer M, Schellinger S, White KM, Kaasovic J, Nelson B, Chant A. A mixed methods study of emotional exhaustion: Energizing and depleting work within an innovative healthcare team. J Interprof Care. 2017 Nov;31(6):714-724. doi: 10.1080/13561820.2017.1356809. Epub 2017 Sep 18.

Reference Type BACKGROUND
PMID: 28922038 (View on PubMed)

Anderson EW, White KM. "This Is What Family Does": The Family Experience of Caring for Serious Illness. Am J Hosp Palliat Care. 2018 Feb;35(2):348-354. doi: 10.1177/1049909117709251. Epub 2017 Jun 30.

Reference Type BACKGROUND
PMID: 28662594 (View on PubMed)

Britt HR, JaKa MM, Fernstrom KM, Bingham PE, Betzner AE, Taghon JR, Shippee ND, Shippee TP, Schellinger SE, Anderson EW. Quasi-Experimental Evaluation of LifeCourse on Utilization and Patient and Caregiver Quality of Life and Experience. Am J Hosp Palliat Care. 2019 May;36(5):408-416. doi: 10.1177/1049909118817740. Epub 2018 Dec 13.

Reference Type DERIVED
PMID: 30541333 (View on PubMed)

Provided Documents

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Document Type: Study Protocol and Statistical Analysis Plan

View Document

Document Type: Informed Consent Form

View Document

Other Identifiers

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38632

Identifier Type: -

Identifier Source: org_study_id

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