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Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome

NCT ID: NCT00808548

Last Updated: 2008-12-16

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

UNKNOWN

Total Enrollment

8 participants

Study Classification

OBSERVATIONAL

Study Start Date

2008-12-31

Study Completion Date

2009-12-31

Brief Summary

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Ask the 4 carers of children with Prader-willi syndrome to disclose their experiences and difficulties for searching better management and intervention

Detailed Description

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Conditions

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Prader-Willi Syndrome

Keywords

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stress carer's experiences Prader-willi syndrome personal experiences

Study Design

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Observational Model Type

CASE_ONLY

Study Time Perspective

RETROSPECTIVE

Study Groups

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Lifestyle counseling

counseling, emotional support

Intervention Type OTHER

emotional support

Intervention Type OTHER

emotional support during the interview

emotional support

Intervention Type OTHER

emotional supporting during the interview

Interventions

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counseling, emotional support

Intervention Type OTHER

emotional support

emotional support during the interview

Intervention Type OTHER

emotional support

emotional supporting during the interview

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* a person who care and live with children with Prader-Willi syndrome

Exclusion Criteria

* siblings or less-contact family
* teachers
Minimum Eligible Age

6 Years

Maximum Eligible Age

12 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Taichung Veterans General Hospital

OTHER

Sponsor Role lead

Responsible Party

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Taichung Veterans General Hospital

Locations

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Taichung Veterans General Hospital

Taichung, , Taiwan

Site Status

Countries

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Taiwan

Facility Contacts

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shu chien

Role: primary

Other Identifiers

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C08169

Identifier Type: -

Identifier Source: org_study_id