Study Results
The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.
Basic Information
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RECRUITING
730 participants
OBSERVATIONAL
2003-07-31
2028-06-30
Brief Summary
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Detailed Description
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Conditions
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Study Design
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COHORT
OTHER
Study Groups
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Primary Hyperoxaluria patients
Registry will include data on patients with confirmed diagnosis of Primary Hyperoxaluria.
No interventions assigned to this group
Dent Disease Patients
Registry will include data on patients with confirmed diagnosis of Dent Disease.
No interventions assigned to this group
Cystinuria Patients
Registry will include data on patients with confirmed diagnosis of Cystinuria.
No interventions assigned to this group
APRT deficiency Patients
Registry will include data on patients with confirmed diagnosis of APRT deficiency.
No interventions assigned to this group
Eligibility Criteria
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Inclusion Criteria
* Individuals have a family history of a sibling with Primary Hyperoxaluria,Dent Disease, Cystinuria or APRT Deficiency.
Exclusion Criteria
0 Years
100 Years
ALL
No
Sponsors
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National Institutes of Health (NIH)
NIH
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
NIH
Oxalosis and Hyperoxaluria Foundation (OHF)
OTHER
Mayo Clinic
OTHER
Responsible Party
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John Lieske
M.D.
Principal Investigators
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Dawn S. Milliner, M.D.
Role: PRINCIPAL_INVESTIGATOR
Primary Hyperoxaluria Registry - Mayo Clinic, Rochester, MN
David Goldfarb, MD
Role: STUDY_DIRECTOR
Cystinuria Registry, New York University, NY
John C Lieske, MD
Role: STUDY_DIRECTOR
Dent Disease Registry, Mayo Clinic, Rochester, MN
Vidar Edvardsson, MD
Role: STUDY_DIRECTOR
APRT Registry, Landspitali University Hospital, Iceland
Locations
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Dent Disease Registry -Mayo Clinic
Rochester, Minnesota, United States
Primary Hyperoxaluria Registry - Mayo Clinic
Rochester, Minnesota, United States
Cystinuria Registry - New York University
New York, New York, United States
APRT Registry - Landspitali Universtiy Hospital
Reykjavik, , Iceland
Countries
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Central Contacts
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Facility Contacts
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Other Identifiers
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11-001702
Identifier Type: -
Identifier Source: org_study_id
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