Investigating the Effectiveness of the Biopsychosocial Model-Based Exercise Approach in Children and Adults Diagnosed With Scleroderma

NCT ID: NCT07292961

Last Updated: 2025-12-18

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

NA

Total Enrollment

48 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-12-04

Study Completion Date

2027-12-04

Brief Summary

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This study aims to investigate the effectiveness of BETY, an exercise approach based on the biopsychosocial model, in children and adults diagnosed with scleroderma.

Detailed Description

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EULAR recommendations on non-pharmacological treatment of scleroderma emphasize physical activity and patient education, disease-specific, evidence-based management strategies tailored to the individual, and self-management. Physical exercise is the most widely studied disease management strategy in scleroderma.

There is a reported need for biopsychosocial treatment approaches in disease management for cases and individuals diagnosed with scleroderma; therefore, the use of biopsychosocial approaches in the field of exercise is also recommended.

The Cognitive Exercise Therapy Approach (BETY), an innovative exercise approach developed for adults diagnosed with rheumatic diseases, also aims to promote behavioral change through exercises that provide pain management and functional gains in pediatric rheumatology, and to prevent social isolation through group support. As in adults, there is a need for exercise approaches, such as BETY, that align with the biopsychosocial model in pediatric cases.

BETY, previously implemented via telerehabilitation in individuals diagnosed with systemic sclerosis, has been shown to have beneficial effects on functionality, muscle strength, vascular structures, inflammatory markers, and biopsychosocial status.

In this context, there is a clear need for interventions that support both children and adults diagnosed with scleroderma physically and psychosocially. This study aims to investigate the effectiveness of BETY, an exercise approach based on the biopsychosocial model, in children and adults diagnosed with scleroderma.

Conditions

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Scleroderma, Localized Scleroderma Systemic Scleroderma Scleroderma (Limited and Diffuse) Systemic Sclerosis (SSc) Systemic Sclerosis - 2013 ACR/EULAR Classification Criteria Juvenile Systemic Sclerosis

Keywords

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biopsychosocial model exercise scleroderma juvenile scleroderma

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

SINGLE

Outcome Assessors

Study Groups

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BETY session group

Children and adults with scleroderma are participating in BETY sessions two times a week for 3 months.

Group Type EXPERIMENTAL

Cognitive Exercise Therapy Approach

Intervention Type OTHER

The biopsychosocial model-based exercise approach (BETY) will be applied for 24 one-hour sessions, two days a week, for 3 months.

Control Group

Children and adults with scleroderma are followed up with a home exercise program.

Group Type ACTIVE_COMPARATOR

Control group

Intervention Type OTHER

The control group will be followed up with a home exercise program, and notes will be taken.

Interventions

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Cognitive Exercise Therapy Approach

The biopsychosocial model-based exercise approach (BETY) will be applied for 24 one-hour sessions, two days a week, for 3 months.

Intervention Type OTHER

Control group

The control group will be followed up with a home exercise program, and notes will be taken.

Intervention Type OTHER

Other Intervention Names

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Bilişsel Egzersiz Terapi Yaklaşımı (BETY)

Eligibility Criteria

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Inclusion Criteria

* Cases diagnosed with scleroderma,
* Cases aged 7-18 years will be included.


* Individuals diagnosed with scleroderma,
* Individuals over the age of 18 will be included.

Exclusion Criteria

* Advanced heart/lung/liver/kidney disease, neurological disease, and malignancies
* Cases that are not willing to participate in the study will be excluded.
* History of developmental delay
* Having participated in a regular exercise program for the past 3 months
* Individuals who are not willing to participate in the study

\*For adults diagnosed with scleroderma\*


* Advanced heart/lung/liver/kidney disease, neurological disease, and malignancies
* Individuals who are not willing to participate in the study will be excluded.
* Having participated in a regular exercise program for the past 3 months
* Individuals who are not willing to participate in the study
Minimum Eligible Age

7 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Hacettepe University

OTHER

Sponsor Role lead

Responsible Party

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Orkun Tüfekçi

Principal Investigator, PT, PhD(c)

Responsibility Role PRINCIPAL_INVESTIGATOR

Locations

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Hacettepe University

Ankara, Altındağ, Turkey (Türkiye)

Site Status RECRUITING

Countries

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Turkey (Türkiye)

Central Contacts

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Orkun Tüfekçi, PT, PhD (c)

Role: CONTACT

Phone: +903123052525

Email: [email protected]

Facility Contacts

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Orkun Tüfekçi, PT, PhD(c)

Role: primary

Other Identifiers

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FTREK25/154

Identifier Type: -

Identifier Source: org_study_id