A Study of Questionnaires in Adolescents and Young Adults With Cancer

NCT ID: NCT07212166

Last Updated: 2025-11-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

120 participants

Study Classification

OBSERVATIONAL

Study Start Date

2025-09-30

Study Completion Date

2026-09-30

Brief Summary

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The purpose of this study is to evaluate a questionnaire called PRO-AYA: Patient-Reported Outcomes for Adolescents and Young Adults.

Detailed Description

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Conditions

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Adolescents and Young Adults With Cancer

Study Design

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Observational Model Type

COHORT

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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AYAs with cancer who are at least three months post treatment with no additional treatment planned

Complete via REDCap (at enrollment): PRO-AYA (PRO-AYA - Patient-Reported Outcomes for Adolescents and Young Adults), Patient-Reported ECOG PS, EORTC QLQ-C30, Demographic/Clinical Characteristics, Complete via REDCap (7-10 days later):

PRO-AYA, Patient-Reported, ECOG PS

Patient-Reported Outcome Surveys

Intervention Type OTHER

PRO-AYA , Patient-Reported ECOG PS, EORTC QLQ-C30, Demographic/Clinical Characteristics

AYAs(Adolescents and Young Adults) who are fluent or prefer their healthcare be delivered in Spanish

Round 1 Cognitive Interviews Complete via REDCap: Spanish PRO-AYA, Demographic/Clinical Characteristic, Item modification based on patient feedback, Cohort 2b (n = 10) (AYAs who prefer healthcare delivery in Spanish) Round 2 Cognitive interviews, Complete via REDCap: Revised Spanish PRO-AYA, Demographic/Clinical Characteristics

Spanish version of PRO-AYA and the cognitive interview

Intervention Type OTHER

Revised Spanish PRO-AYA, Demographic/Clinical Characteristics

Interventions

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Patient-Reported Outcome Surveys

PRO-AYA , Patient-Reported ECOG PS, EORTC QLQ-C30, Demographic/Clinical Characteristics

Intervention Type OTHER

Spanish version of PRO-AYA and the cognitive interview

Revised Spanish PRO-AYA, Demographic/Clinical Characteristics

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* English- or Spanish proficient

o As assessed by two items: How well do you speak English? What is your preferred language for healthcare?
* Diagnosed with the first instance of a cancer or the relapse of a prior cancer between the ages of 15 - 39
* Able to complete questionnaires by themselves or with assistance
* ECOG Performance Status (0-4)
* 3 months from last treatment without plan to initiate any form of cancer-directed treatment in the next 3 months
Minimum Eligible Age

15 Years

Maximum Eligible Age

39 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Memorial Sloan Kettering Cancer Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Viswatej Avutu, MD

Role: PRINCIPAL_INVESTIGATOR

Memorial Sloan Kettering Cancer Center

Locations

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Memorial Sloan Kettering Basking Ridge (Consent Only)

Basking Ridge, New Jersey, United States

Site Status RECRUITING

Memorial Sloan Kettering Monmouth (Consent Only)

Middletown, New Jersey, United States

Site Status RECRUITING

Memorial Sloan Kettering Bergen (Consent Only)

Montvale, New Jersey, United States

Site Status RECRUITING

Memorial Sloan Kettering Commack (Consent Only)

Commack, New York, United States

Site Status RECRUITING

Memorial Sloan Kettering Westchester (Consent Only)

Harrison, New York, United States

Site Status RECRUITING

Memorial Sloan Kettering Cancer Center

New York, New York, United States

Site Status RECRUITING

Memorial Sloan Kettering Nassau (Consent Only)

Uniondale, New York, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Viswatej Avutu, MD

Role: CONTACT

347-798-9227

Thomas Atkinson, PhD

Role: CONTACT

646-888-0089

Facility Contacts

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Viswatej Avutu

Role: primary

347-798-9227

Viswatej Avutu, MD

Role: primary

347-798-9227

Viswatej Avutu, MD

Role: primary

347-798-9227

Viswatej Avutu, MD

Role: primary

347-798-9227

Viswatej Avutu, MD

Role: primary

347-798-9227

Viswatej Avutu, MD

Role: primary

347-798-9227

Viswatej Avutu, MD

Role: primary

347-798-9227

Related Links

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http://www.mskcc.org/mskcc/html/44.cfm

Memorial Sloan Kettering Cancer Center

Other Identifiers

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25-213

Identifier Type: -

Identifier Source: org_study_id

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