Study of How People Make Decisions About Prostate Cancer Risk

NCT ID: NCT07197723

Last Updated: 2025-11-12

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

150 participants

Study Classification

OBSERVATIONAL

Study Start Date

2025-09-25

Study Completion Date

2027-09-30

Brief Summary

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The purpose of this study is to learn how people with BRCA1/2 mutations respond to genetic risk modifier testing. The researchers will learn more about how people make choices about their health care, including about methods to screen for prostate cancer. Researchers are also doing this study to learn about how the genetic risk modifier test affects people's thoughts and feelings.

Detailed Description

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Conditions

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High Risk Prostate Cancer

Keywords

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Polygenic Risk Modifiers BRCA1/2 Mutation Carriers Assessments

Study Design

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Observational Model Type

COHORT

Study Time Perspective

PROSPECTIVE

Study Groups

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Men with BRCA1/2 mutations who are at risk for prostate cancer

Will be offered genetic risk modifier testing (note that this testing is of clinical grade but is not yet standard of care and is therefore only available through the context of this research study), and will complete baseline and then 1-week, 6-month, and 12-month post-receipt of modifier results follow-up quantitative assessments of their psychological and behavioral outcomes.

cheek (buccal) swab

Intervention Type GENETIC

swab sample in person or at home with a mailed test kit and will fill out a survey

Assessments

Intervention Type OTHER

about 1 week, 6 months, and 12 months after getting the updated cancer risk assessment to complete additional surveys.

optional collection of blood

Intervention Type OTHER

for research testing

Interventions

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cheek (buccal) swab

swab sample in person or at home with a mailed test kit and will fill out a survey

Intervention Type GENETIC

Assessments

about 1 week, 6 months, and 12 months after getting the updated cancer risk assessment to complete additional surveys.

Intervention Type OTHER

optional collection of blood

for research testing

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Documentation of Disease

o Patients must not have prostate cancer
* Age between 45 - 70;
* Assigned male sex at birth
* Completed full sequence or targeted genetic testing with a result confirmed in a clinically approved laboratory showing a BRCA1/2 likely pathogenic or pathogenic variant identified
* English-fluent; the surveys were designed and validated in English and are not currently available in other languages. Translation of questionnaires into other languages would require reestablishing the reliability and validity of these measures. Therefore, participants must be able to communicate in English to complete the surveys.

Exclusion Criteria

* Major psychiatric illness or cognitive impairment that in the judgment of the study investigators or study staff would preclude study participation.
* Any patients who are unable to comply with the study procedures as determined by the study investigators or study staff.
* Under active treatment for a malignancy. (Patients are eligible if they have a prior history of malignancy other than prostate cancer, as long as they are not currently undergoing active treatment for the malignancy)
* Enrolled in NCI study 19-C-0040 (Natural History of Men at High-Risk for Prostate Cancer) based on self-report
Minimum Eligible Age

45 Years

Maximum Eligible Age

70 Years

Eligible Sex

MALE

Accepts Healthy Volunteers

No

Sponsors

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CureBRCA Foundation

UNKNOWN

Sponsor Role collaborator

Memorial Sloan Kettering Cancer Center

OTHER

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Jada Hamilton, PhD, MPH

Role: PRINCIPAL_INVESTIGATOR

Memorial Sloan Kettering Cancer Center

Locations

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Memorial Sloan Kettering Cancer Center

New York, New York, United States

Site Status RECRUITING

Countries

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United States

Central Contacts

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Jada Hamiliton, PhD, MPH

Role: CONTACT

Phone: 646-888-0049

Email: [email protected]

Kenneth Offit, MD

Role: CONTACT

Phone: 646-888-4050

Facility Contacts

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Jada Hamilton, PhD, MPH

Role: primary

Kenneth Offit, MD

Role: backup

Related Links

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http://www.mskcc.org/mskcc/html/44.cfm

Memorial Sloan Kettering Cancer Center

Other Identifiers

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25-235

Identifier Type: -

Identifier Source: org_study_id