A First-in-Human Safety and Efficacy Study of ALN-CFB, a Small Interfering RNA (siRNA) Targeting Complement Factor B, in Adult Participants With Paroxysmal Nocturnal Hemoglobinuria With Persistent Anemia on a C5 Inhibitor

NCT ID: NCT07187401

Last Updated: 2025-11-06

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

PHASE1/PHASE2

Total Enrollment

24 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-11-28

Study Completion Date

2030-01-04

Brief Summary

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This study is researching an experimental drug called ALN-CFB. The study is focused on people with Paroxysmal Nocturnal Hemoglobinuria (PNH) who are currently taking a complement component C5 inhibitor ("C5-inhibitor") and continue to have anemia (low red blood cell count).

The aim of the study is to see how tolerable ALN-CFB is compared to placebo. A placebo looks like the study drug but does not contain any drug.

The study is looking at several other research questions, including:

* What side effects may happen from taking ALN-CFB
* How much ALN-CFB is in the blood at different times
* How much Complement Factor B (CFB) protein levels in the blood are affected by ALN-CFB

Detailed Description

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The protocol will be amended to describe Part B of the study after Part A data have been analyzed.

Conditions

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Paroxysmal Nocturnal Hemoglobinuria (PNH) Persistent Anemia

Keywords

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C5 inhibitor Complement Factor B (CFB) protein Red Blood Cells

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

SEQUENTIAL

Primary Study Purpose

TREATMENT

Blinding Strategy

QUADRUPLE

Participants Caregivers Investigators Outcome Assessors

Study Groups

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Single-Ascending Dose Escalation

Group Type EXPERIMENTAL

ALN-CFB

Intervention Type DRUG

Administered as defined in the protocol

Placebo

Group Type PLACEBO_COMPARATOR

Placebo

Intervention Type DRUG

Administered as defined in the protocol

Interventions

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ALN-CFB

Administered as defined in the protocol

Intervention Type DRUG

Placebo

Administered as defined in the protocol

Intervention Type DRUG

Eligibility Criteria

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Inclusion Criteria

1. Has been diagnosed with PNH confirmed by a history of high flow cytometry from prior testing
2. Treated with a stable dose of C5 inhibitor (eculizumab or approved eculizumab biosimilar, ravulizumab, or crovalimab) for at least 24 weeks prior to screening visit, as described in the protocol
3. Has hemoglobin ≤10.5 g/dL at screening visit 1, with evidence of anemia prior to this visit, as described in the protocol
4. Has peripheral blood reticulocyte count of ≥100 x 10\^9/L at screening visit 1

Exclusion Criteria

1. Has history of bone marrow transplantation or receipt of an organ transplant
2. Has history of meningococcal infection or similar recurrent infections by other encapsulated bacterial organisms
3. Has any active, ongoing infection or a recent infection requiring ongoing systemic treatment with antibiotics, antivirals, or antifungals within 2 weeks of screening or during the screening period
4. Has laboratory evidence of bone marrow failure, as described in the protocol
5. Have recent, unstable medical conditions, not related to PNH or PNH-related complications, as described in the protocol
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Regeneron Pharmaceuticals

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Principal Investigators

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Clinical Trial Management

Role: STUDY_DIRECTOR

Regeneron Pharmaceuticals

Locations

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Toronto General Hospital

Toronto, Ontario, Canada

Site Status RECRUITING

Seoul National University Hospital

Jongno-gu, Seoul, South Korea

Site Status RECRUITING

Countries

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Canada South Korea

Central Contacts

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Clinical Trials Administrator

Role: CONTACT

Phone: 844-734-6643

Email: [email protected]

Facility Contacts

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Christopher Patriquin

Role: primary

Other Identifiers

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2024-519806-11-00

Identifier Type: CTIS

Identifier Source: secondary_id

ALN-CFB-PNH-2468

Identifier Type: -

Identifier Source: org_study_id