A Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of Niemann-Pick Type C Disease, GM1 Gangliosidosis or GM2 Gangliosidosis

NCT ID: NCT07054515

Last Updated: 2025-11-10

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

PHASE3

Total Enrollment

147 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-06-30

Study Completion Date

2027-11-04

Brief Summary

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An 18-month double-blind, randomized, placebo-controlled, multicenter, Phase 3 study to evaluate the safety and efficacy of oral nizubaglustat (AZ-3102) in late-infantile and juvenile forms of Niemann-Pick type C disease and in late-infantile and juvenile-onset forms of GM1 gangliosidosis or GM2 gangliosidosis

Detailed Description

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This is a Phase 3 randomized, double-blinded, placebo-controlled study that will evaluate the safety and efficacy of oral nizubaglustat (AZ-3102) in multiple disease areas using a Master Protocol Research Program. Participants are randomized to different subprotocols based on disease type: Niemann-Pick type C (NPC), GM1 gangliosidosis or GM2 gangliosidosis.

Treatment specific procedures will be described in the disease-specific subprotocol. Individual subprotocols may have additional eligibility requirements, safety and efficacy procedures, or endpoints, which will be described in the corresponding subprotocols.

For information specific to each individual subprotocol included in this trial, please refer to the corresponding, separate, clinicaltrials.gov records: Niemann-Pick type C disease NCT07082725 and GM1 gangliosidosis or GM2 gangliosidosis NCT07082543.

Conditions

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Niemann-Pick Type C Disease GM1 Gangliosidosis GM2 Gangliosidosis

Keywords

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Nizubaglustat

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

QUADRUPLE

Participants Caregivers Investigators Outcome Assessors
Participants, investigators, other study personnel at the site, and the Sponsor will be blinded

Study Groups

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Subprotocol NCT07082725: Intervention Group NPC

Participants will be randomized to receive either nizubaglustat or placebo at a 2:1 ratio (nizubaglustat:placebo)

Group Type EXPERIMENTAL

AZ-3102

Intervention Type DRUG

Oral dispersible tablets

Placebo

Intervention Type DRUG

A matching placebo will be administered in the same regimen as the intervention

Subprotocol NCT07082543: Intervention Group GM1/GM2

Participants will be randomized to receive either nizubaglustat or placebo at a 2:1 ratio (nizubaglustat:placebo)

Group Type EXPERIMENTAL

AZ-3102

Intervention Type DRUG

Oral dispersible tablets

Placebo

Intervention Type DRUG

A matching placebo will be administered in the same regimen as the intervention

Interventions

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AZ-3102

Oral dispersible tablets

Intervention Type DRUG

Placebo

A matching placebo will be administered in the same regimen as the intervention

Intervention Type DRUG

Other Intervention Names

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nizubaglustat

Eligibility Criteria

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Inclusion Criteria

Inclusion Criteria:

* Male and female participants, aged 4 years and older with a diagnosis of the late-infantile or juvenile form of NPC disease. Detailed inclusion criteria are presented in the NPC disease-specific subprotocol AZA-001-301-NPC (NCT07082725).
* Male and female participants, aged 4 years and older with a diagnosis of GM1 or GM2 (Tay-Sachs, Sandhoff, or GM2AB variant disease) gangliosidosis of late-infantile/ juvenile onset. Detailed inclusion criteria are presented in the GM1/GM2 gangliosidosis-specific subprotocol AZA-001-301-GMx (NCT07082543).

Exclusion Criteria:

* Detailed exclusion criteria are presented in the NPC disease-specific subprotocol AZA-001-301-NPC
* Detailed exclusion criteria are presented in the GM1/GM2 gangliosidosis-specific subprotocol AZA-001-301-GMx
Minimum Eligible Age

4 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Azafaros A.G.

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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Children's Hospital and Research Center at Oakland

Oakland, California, United States

Site Status RECRUITING

University of Minnesota Medical School

Minneapolis, Minnesota, United States

Site Status NOT_YET_RECRUITING

Mayo Clinic Childrens Center - PIN

Rochester, Minnesota, United States

Site Status NOT_YET_RECRUITING

Children's Medical Center Dallas

Dallas, Texas, United States

Site Status NOT_YET_RECRUITING

Lysosomal Rare Disorders Research and Treatment Center

Fairfax, Virginia, United States

Site Status NOT_YET_RECRUITING

Hospital Universitario Austral

Ciudad Autónoma Buenos Aires, Buenos Aires, Argentina

Site Status NOT_YET_RECRUITING

Hospital de Niños de La Santisima Trinidad

Córdoba, Córdoba Province, Argentina

Site Status NOT_YET_RECRUITING

Women's and Children's Hospital

North Adelaide, South Australia, Australia

Site Status NOT_YET_RECRUITING

Royal Melbourne Hospital

Parkville, Victoria, Australia

Site Status NOT_YET_RECRUITING

Royal Children's Hospital Melbourne - PIN

Parkville, Victoria, Australia

Site Status NOT_YET_RECRUITING

Instituto Fernandes Figueira

Rio de Janeiro, Rio de Janeiro, Brazil

Site Status NOT_YET_RECRUITING

Hospital de Clinicas de Porto Alegre (HCPA) - PPDS

Porto Alegre, Rio Grande do Sul, Brazil

Site Status NOT_YET_RECRUITING

Hospital Pequeno Príncipe

Curitiba, , Brazil

Site Status NOT_YET_RECRUITING

M.A.G.I.C. Clinic Ltd. Metabolics and Genetics in Calgary

Calgary, Alberta, Canada

Site Status NOT_YET_RECRUITING

University of Alberta Medical Genetics Clinic

Edmonton, Alberta, Canada

Site Status NOT_YET_RECRUITING

Centre Hospitalier de l'Universite de Montreal-1000 rue Saint-Denis

Montreal, Quebec, Canada

Site Status NOT_YET_RECRUITING

AP-HP - Hôpital Armand Trousseau

Paris, , France

Site Status RECRUITING

SphinCS GmbH

Höchheim, , Germany

Site Status NOT_YET_RECRUITING

Amrita Institute of Medical Sciences and Research Centre

Ernākulam, Kerala, India

Site Status NOT_YET_RECRUITING

Seth G S Medical College and K E M Hospital

Mumbai, Maharashtra, India

Site Status NOT_YET_RECRUITING

All India Institute of Medical Sciences (AIIMS) - New Delhi

New Delhi, National Capital Territory of Delhi, India

Site Status NOT_YET_RECRUITING

JK Lone Hospital

Jaipur, Rajasthan, India

Site Status NOT_YET_RECRUITING

Fondazione IRCCS Istituto Neurologico Carlo Besta

Milan, , Italy

Site Status RECRUITING

ULS de Santo António, EPE - Centro Materno Infantil Norte

Porto, Porto District, Portugal

Site Status RECRUITING

ULS de Santa Maria,EPE - Hospital de Santa Maria - PPDS

Lisbon, , Portugal

Site Status RECRUITING

Hospital Universitario Vall d'Hebron - PPDS

Barcelona, Barcelona, Spain

Site Status RECRUITING

Hospital Infantil Universitario Niño Jesus - PIN

Madrid, Madrid, Spain

Site Status RECRUITING

Sahlgrenska universitetssjukhuset Östra

Gothenburg, Västra Götaland County, Sweden

Site Status RECRUITING

Inselspital - Universitätsspital Bern

Bern, Canton of Bern, Switzerland

Site Status NOT_YET_RECRUITING

Balcali Hastanesi Saglik Uygulama ve Arastirma Merkezi

Adana, Adana, Turkey (Türkiye)

Site Status NOT_YET_RECRUITING

Gazi Universitesi Saglik Arastirma ve Uygulama Merkezi

Çankaya, Ankara, Turkey (Türkiye)

Site Status NOT_YET_RECRUITING

Ege Universitesi Tip Fakultesi

Bornova, İzmir, Turkey (Türkiye)

Site Status NOT_YET_RECRUITING

Great Ormond Street Hospital

London, London, United Kingdom

Site Status NOT_YET_RECRUITING

University College London Hospitals (UCLH)

London, Middlesex, United Kingdom

Site Status NOT_YET_RECRUITING

Royal Manchester Children's Hospital

Manchester, , United Kingdom

Site Status NOT_YET_RECRUITING

Countries

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United States Argentina Australia Brazil Canada France Germany India Italy Portugal Spain Sweden Switzerland Turkey (Türkiye) United Kingdom

Central Contacts

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Patient Advocacy Representative

Role: CONTACT

Phone: Please reach out by email

Email: [email protected]

Contact for Healthcare Professionals

Role: CONTACT

Phone: Please reach out by email

Email: [email protected]

Other Identifiers

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2024-515778-28-00

Identifier Type: CTIS

Identifier Source: secondary_id

AZA-001-301

Identifier Type: -

Identifier Source: org_study_id