Treatment Decision-Making Among Patients With Chronic Rhinosinusitis

NCT ID: NCT07010679

Last Updated: 2025-12-18

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ENROLLING_BY_INVITATION

Clinical Phase

NA

Total Enrollment

50 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-06-02

Study Completion Date

2026-06-01

Brief Summary

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This project aims to develop and pilot-test a bilingual, patient-centered clinical decision support (PC CDS) web application for individuals with chronic rhinosinusitis (CRS), a condition affecting 16% of U.S. adults annually and significantly impacting quality of life. While endoscopic sinus surgery (ESS) is a recommended treatment for medically refractory cases, many patients experience barriers that lead to surgical hesitancy. Prior research at USC revealed significant disparities in ESS uptake (Odds Ratio = 7.92; 95% Confidence Interval: 2.95-21.28), highlighting the need for more tailored decision support.

The PC CDS will include educational resources, Large Language Model-assisted patient narratives, and a provider communication module to facilitate shared decision-making (SDM). The study has three aims: (1) to develop the tool; (2) to evaluate its feasibility in a randomized controlled trial with 50-60 patients from USC clinics; and (3) to assess outcomes using surveys and interviews. Participants will be randomized into either a control group (receiving standard CRS informational handouts) or an intervention group (receiving standard care plus the PC CDS tool).

Quantitative surveys will measure treatment choice, decision quality, SDM involvement, CRS knowledge, provider trust, and care satisfaction. Qualitative interviews will explore participants' healthcare journeys and experiences with the tool. Guided by experts in health technology and rhinology and in collaboration with a Patient Advisory Group, the study aims to ensure patient-centered design and lay the groundwork for future implementation and external funding (e.g., AHRQ).

Detailed Description

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This research aims to develop and pilot-test a patient-centered clinical decision support (PC CDS) web application specifically for patients with chronic rhinosinusitis (CRS). CRS, which affects approximately 16% of U.S. adults annually, significantly impacts quality of life (QOL). Endoscopic sinus surgery (ESS) is a recommended treatment for those unresponsive to medical therapy; however, many patients face unique barriers that contribute to surgical hesitancy and suboptimal outcomes. A previous study conducted at the University of Southern California (USC) revealed significant differences in the likelihood of undergoing ESS among patient subgroups (Odds Ratio = 7.92; 95% Confidence Interverval: 2.95-21.28; p \< 0.001). To address these disparities, the proposed PC CDS will integrate patient-centered support components tailored for individuals hesitant or resistant to ESS, including educational resources, Large Language Model-assisted patient narratives, and a patient-provider communication feature within a bilingual decision aid.

The project includes three primary aims: (1) develop the PC CDS to facilitate shared decision-making (SDM) between patients and clinicians, with the goal of reducing surgical hesitancy and improving outcomes; (2) recruit 50-60 medically refractory CRS patients from USC clinics in Los Angeles for a randomized controlled feasibility trial comparing standard care to the PC CDS intervention; and (3) assess patient healthcare journey outcomes, as well as the acceptability and usability of the PC CDS, through pre- and post-intervention evaluations using both quantitative and qualitative methods.

Participants will be randomly assigned to one of two groups:

Control Group: Will receive standard care, including informational handouts on CRS management.

Intervention Group: Will receive access to the PC CDS tool in addition to standard care.

Data will be collected through surveys and interviews to evaluate healthcare experiences and the influence of the PC CDS tool.

Surveys (Quantitative Measures):

To evaluate whether the PC CDS affects treatment decision-making in CRS care, participants in both groups will complete surveys capturing:

Treatment selection (surgery or no surgery) Quality of decision-making experience, including alignment with patient goals Level of involvement in shared decision-making Knowledge of CRS and trust in the healthcare provider Overall satisfaction with care

Interviews (Qualitative Measures):

Trained interviewers will conduct qualitative interviews with all participants to gain deeper insight into healthcare experiences, engagement with the educational materials or PC CDS tool, and factors influencing treatment decisions.

The research team, led by experts in health technology and rhinology, will collaborate with a Patient Advisory Group to ensure the tool is patient-centered and responsive to community needs.

Conditions

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Chronic Rhinosinusitis (CRS)

Keywords

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Patient decision aid Patient-centered Clinical Decision Support

Study Design

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Allocation Method

RANDOMIZED

Intervention Model

PARALLEL

Primary Study Purpose

TREATMENT

Blinding Strategy

NONE

Study Groups

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Intervention Group

Participants in this group will use the patient centered clinical decision support (PC CDS) tool in addition to receiving standard care.

Group Type EXPERIMENTAL

Patient Centered CRS Treatment Decision Support

Intervention Type OTHER

The intervention is a web-based tool that includes:

* Educational content and Frequently Asked Questions (FAQ) about CRS and treatment options
* Patient stories from CRS patient interviews with artificial intelligence-assisted narrative writing
* A communication tool to support discussions between patients and their doctors
* Culturally tailored components, including Chinese language options and culturally relevant narratives Participants will be introduced to the PC CDS during a routine clinic visit or through a scheduled virtual meeting. They will use the tool before making treatment decisions. The tool is designed to be user-friendly and accessible across devices.

Control Group

Participants in this group will receive standard care, which includes informational handouts about CRS management.

Group Type NO_INTERVENTION

No interventions assigned to this group

Interventions

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Patient Centered CRS Treatment Decision Support

The intervention is a web-based tool that includes:

* Educational content and Frequently Asked Questions (FAQ) about CRS and treatment options
* Patient stories from CRS patient interviews with artificial intelligence-assisted narrative writing
* A communication tool to support discussions between patients and their doctors
* Culturally tailored components, including Chinese language options and culturally relevant narratives Participants will be introduced to the PC CDS during a routine clinic visit or through a scheduled virtual meeting. They will use the tool before making treatment decisions. The tool is designed to be user-friendly and accessible across devices.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Age 18 years or older
* Patient receiving care at a USC otolaryngology clinic located in Los Angeles, Glendale, La Cañada, or Arcadia
* Diagnosis of chronic rhinosinusitis (CRS) as defined by the American Academy of Otolaryngology-Head and Neck Surgery criteria
* Medically refractory CRS (i.e., persistent symptoms despite appropriate medical therapy)
* Considered a candidate for endoscopic sinus surgery (ESS) by the treating otolaryngologist
* English- or Chinese-speaking
* Able and willing to provide informed consent
* Access to a smartphone, tablet, or computer with internet connection

Exclusion Criteria

• Not offered endoscopic sinus surgery (ESS) as a treatment option by the treating otolaryngologist
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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University of Southern California

OTHER

Sponsor Role lead

Responsible Party

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Shinyi Wu

Associate Professor

Responsibility Role PRINCIPAL_INVESTIGATOR

Principal Investigators

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Shinyi Wu, PhD

Role: PRINCIPAL_INVESTIGATOR

University of Southern California

Locations

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Keck Medicine of USC

Arcadia, California, United States

Site Status

Countries

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United States

Other Identifiers

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APP-25-00437

Identifier Type: OTHER

Identifier Source: secondary_id

UP-22-00453-AM008

Identifier Type: -

Identifier Source: org_study_id