A Long-term Study to Monitor the Health Status of People With Cystic Fibrosis Who Took Part in a Previous Study With BI 3720931 (Lenticlair™-ON)

NCT ID: NCT06962852

Last Updated: 2025-12-19

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Clinical Phase

PHASE1/PHASE2

Total Enrollment

285 participants

Study Classification

INTERVENTIONAL

Study Start Date

2025-05-20

Study Completion Date

2048-11-24

Brief Summary

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This study is for people with cystic fibrosis who took part in a previous study with a medicine called BI 3720931. The main purpose of this study is to monitor the long-term health of participants who were treated with BI 3720931 in the previous study. Participants in this study do not receive additional treatment with BI 3720931.

Participants who previously took BI 3720931 are in this study for 15 years. Participants who previously took placebo are in the study only until it is disclosed that they were in the placebo group, after which they stop. Participants who previously took BI 3720931 visit the study site about 20 times. Participants visit once every 3 months during the first 2 years.

After that, they visit once a year. During study visits, doctors check the health of the participants and note any health problems that could have been caused by BI 3720931. They also do lung function tests to see if BI 3720931 helps people with cystic fibrosis in the long term.

Detailed Description

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Conditions

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Cystic Fibrosis

Study Design

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Allocation Method

NA

Intervention Model

SINGLE_GROUP

The trial is intended to assess 2 different objectives: long-term safety over 15 years and durability of efficacy over at least 2 years of BI 3720931 after single dose administration in a previous clinical trial in trial participants with cystic fibrosis (CF).
Primary Study Purpose

OTHER

Blinding Strategy

NONE

Study Groups

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All trial participants

All trial participants who have received at least one dose of BI 3720931 or matching placebo in a previous trial with BI 3720931.

Trial participants who received placebo in the previous trial do not need to be followed for 15 years; once the treatment in the previous trial has been unblinded, their participation in this trial is then terminated.

Group Type EXPERIMENTAL

BI 3720931

Intervention Type GENETIC

BI 3720931

Interventions

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BI 3720931

BI 3720931

Intervention Type GENETIC

Eligibility Criteria

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Inclusion Criteria

1. Trial participants who participated in a previous BI sponsored trial with BI 3720931 and have received any dose of BI 3720931, or matching placebo
2. Signed and dated written informed consent in accordance with International Council for Harmonisation (ICH)-Good Clinical Practice (GCP) and local legislation prior to admission to the trial
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Boehringer Ingelheim

INDUSTRY

Sponsor Role lead

Responsible Party

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Responsibility Role SPONSOR

Locations

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HOP Gui de Chauliac

Montpellier, , France

Site Status RECRUITING

HOP Necker

Paris, , France

Site Status NOT_YET_RECRUITING

Istituto G. Gaslini

Genova, , Italy

Site Status NOT_YET_RECRUITING

Osp. Pediatrico Bambin Gesù

Roma, , Italy

Site Status RECRUITING

Universitair Medisch Centrum Utrecht

Utrecht, , Netherlands

Site Status RECRUITING

Hospital Universitari Vall D Hebron

Barcelona, , Spain

Site Status RECRUITING

University Hospital Llandough

Cardiff, , United Kingdom

Site Status NOT_YET_RECRUITING

Queen Elizabeth University Hospital

Glasgow, , United Kingdom

Site Status NOT_YET_RECRUITING

Royal Brompton Hospital

London, , United Kingdom

Site Status RECRUITING

Wythenshawe Hospital

Manchester, , United Kingdom

Site Status NOT_YET_RECRUITING

Countries

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France Italy Netherlands Spain United Kingdom

Central Contacts

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Boehringer Ingelheim

Role: CONTACT

Phone: 1-800-243-0127

Email: [email protected]

Facility Contacts

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Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Boehringer Ingelheim

Role: primary

Related Links

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Other Identifiers

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2023-504909-37-00

Identifier Type: REGISTRY

Identifier Source: secondary_id

U1111-1291-2932

Identifier Type: REGISTRY

Identifier Source: secondary_id

1504-0003

Identifier Type: -

Identifier Source: org_study_id