Impact and Lived Experience of Parents of a Child With a Large or Giant Congenital Melanocytic Nevus

NCT ID: NCT06934759

Last Updated: 2025-12-30

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

ENROLLING_BY_INVITATION

Total Enrollment

30 participants

Study Classification

OBSERVATIONAL

Study Start Date

2025-12-01

Study Completion Date

2026-08-31

Brief Summary

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The goal of this observational study is to describe the experiences of parents at the birth of a child with a large or giant congenital melanocytic nevus through semi-structured interviews, and to identify potential intervention strategies to improve their care and support.

Detailed Description

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Conditions

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Congenital Melanocytic Nevi Congenital Melanocytic Nevus Parent Psychology, Social

Keywords

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parents congenital melanocytic nevus congenital melanocytic nevi psychology lived experience

Study Design

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Observational Model Type

COHORT

Study Time Perspective

CROSS_SECTIONAL

Study Groups

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Children with congenital melanocytic nevus

No Intervention: Observational Cohort

Intervention Type OTHER

There is no intervention

Interventions

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No Intervention: Observational Cohort

There is no intervention

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* Aged 18 years or older
* Willing to participate in a semi-structured interview
* Has received full information about the research and has not objected to participating or to the use of their data
* Able to understand and speak French
* Parent of a child under 18 years of age

Exclusion Criteria

* Under 18 years of age
* Not willing to participate
* Currently under legal protection (e.g., guardianship or curatorship)
* Cognitive and/or psychological impairments preventing participation in a semi-structured interview
* Poor understanding and/or expression of the French language
* Parent of a child over 18 years of age
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Assistance Publique Hopitaux De Marseille

OTHER

Sponsor Role collaborator

Hôpital Necker-Enfants Malades

OTHER

Sponsor Role collaborator

Centre Hospitalier Universitaire de Nice

OTHER

Sponsor Role collaborator

University Hospital, Brest

OTHER

Sponsor Role collaborator

Annecy Hospital, France

UNKNOWN

Sponsor Role collaborator

Centre Hospitalier Universitaire Dijon

OTHER

Sponsor Role collaborator

Nantes University Hospital

OTHER

Sponsor Role collaborator

University Hospital, Grenoble

OTHER

Sponsor Role collaborator

Centre Hospitalier Universitaire de la Réunion

OTHER

Sponsor Role collaborator

Central Hospital, Nancy, France

OTHER

Sponsor Role lead

Responsible Party

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Anne Claire BURSZTEJN

Clinical Professor and Principal Investigator

Responsibility Role PRINCIPAL_INVESTIGATOR

Locations

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Centre Hospitalier Régional Universitaire de Nancy

Nancy, France, France

Site Status

Countries

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France

Other Identifiers

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2024PI238

Identifier Type: -

Identifier Source: org_study_id