Parents' Experience of Child Loss During Pregnancy or Birth

NCT ID: NCT06771661

Last Updated: 2025-01-13

Study Results

Results pending

The study team has not published outcome measurements, participant flow, or safety data for this trial yet. Check back later for updates.

Basic Information

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Recruitment Status

RECRUITING

Total Enrollment

50 participants

Study Classification

OBSERVATIONAL

Study Start Date

2024-12-02

Study Completion Date

2026-12-31

Brief Summary

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The investigators are conducting a participatory study with and for parents after child loss during pregnancy or birth. Their aim is to develop treatment recommendations for healthcare professional. These focus on question, how to deal with parents when experiencing child loss.

Detailed Description

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The entire study is following a participatory approach and including parents after stillbirth in the research team. Along a co-creative design, the investigators planned a multistep-explorative mixed-methods study.

In detail, three key steps will be conducted. First, workshops and focus groups will be carried out to identify central needs of affected parents. Afterwards, one investigator will interview the parents narratively to gain an in-depth understanding of their experiencs. Finally, these findings will be summarized and translated into treatment recommendations for healthcare professionals.

Conditions

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Stillbirth and Fetal Death Miscarriages Experience

Study Design

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Observational Model Type

OTHER

Study Time Perspective

OTHER

Study Groups

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Parents after intrauterine or perinatal child loss

Workshops

Intervention Type OTHER

The investigators will conduct workshops with parents to get closer to the main topic.

Focus group interviews

Intervention Type OTHER

The investigators will conduct focus group interviews with parents on their needs before and during child loss.

Narrative interviews

Intervention Type OTHER

The investigators will conduct narrative interviews with parents to gain an in-depth understanding of their lived experience before and during the intrauterine or perinatal child loss.

Delphi approach

Intervention Type OTHER

The investigators will carry out a Delphi approach with parents to translate and confirm or revise the findings into treatment recommendations for healthcare professionals.

Interventions

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Workshops

The investigators will conduct workshops with parents to get closer to the main topic.

Intervention Type OTHER

Focus group interviews

The investigators will conduct focus group interviews with parents on their needs before and during child loss.

Intervention Type OTHER

Narrative interviews

The investigators will conduct narrative interviews with parents to gain an in-depth understanding of their lived experience before and during the intrauterine or perinatal child loss.

Intervention Type OTHER

Delphi approach

The investigators will carry out a Delphi approach with parents to translate and confirm or revise the findings into treatment recommendations for healthcare professionals.

Intervention Type OTHER

Eligibility Criteria

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Inclusion Criteria

* German speaking
* Living in Austria, Germany or Switzerland
* Child loss during pregnancy or birth
* Child loss within last 12 months
* Legal capacity
* Voluntary participation

Exclusion Criteria

* Loss of child after birth
* Not speaking and understanding German
* Not in a good mental condition to participate
Minimum Eligible Age

18 Years

Eligible Sex

ALL

Accepts Healthy Volunteers

No

Sponsors

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Fritz Sterr

OTHER

Sponsor Role lead

Responsible Party

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Fritz Sterr

Research associate

Responsibility Role SPONSOR_INVESTIGATOR

Principal Investigators

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Christian Rester, Prof. Dr.

Role: STUDY_CHAIR

Deggendorf Institute of Technology

Locations

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Deggendorf Institute of Technology, Faculty of Applied Healthcare Sciences

Deggendorf, Bavaria, Germany

Site Status RECRUITING

Countries

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Germany

Central Contacts

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Fritz Sterr, M.Sc.

Role: CONTACT

+49-991-3615-8344

Julian Siepmann, M.Sc.

Role: CONTACT

+49-991-3615-8368

Facility Contacts

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Fritz Sterr, M.Sc.

Role: primary

+49-991-3615-8344

Julian Siepmann, M.Sc.

Role: backup

+49-991-3615-8368

Fritz Sterr, M.Sc.

Role: backup

Julian Siepmann, M.Sc.

Role: backup

Lydia Bauernfeind, Ph.D.

Role: backup

Related Links

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https://www.th-deg.de/sterneneltern

Landing Page of the Study

Other Identifiers

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GEHBa-202409-V-237-R2

Identifier Type: -

Identifier Source: org_study_id

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